HDSA Law Enforcement Education Program



Law Enforcement professionals can be allies and potential advocates for a family managing Huntington’s disease.  From helping to find a lost loved one to helping provide support to a family dealing with aggressive behaviors, building a relationship early can save time and energy, as well as facilitate better outcomes for all involved.  

For this reason, HDSA has created the Law Enforcement Toolkit.  Below, you will find all the components for both the caregiver and the local law enforcement, as well as webinar trainings.  You can also order a free copy of the toolkit (one per person) by contacting Anita Mark-Paul at amarkpaul@hdsa.org or via phone at (800) 345-HDSA.

There are two parts to the Toolkit, one for HD family members and caregivers, and one for law enforcement and first responders:


HDSA Law Enforcement Toolkit (HD Family Members & Caregivers)

Caregiver Guide to working with Law Enforcement:
This booklet contains general guidelines for working with law enforcement, feedback regarding situations that may cause confrontations, and information about what to do in case of arrest or detainment.  

I have HD Card: A wallet card with information about HD.

HD Profile Card:
A form that can be personalized with an individual’s photo and identifying information.

My Crisis Template: A form that can be personalized with emergency numbers.

Click here to order a copy (one free copy per family)


HDSA Law Enforcement Toolkit (police & first responders)

HDSA Law Enforcement Training Guide: This booklet contains an introduction to HD, and information about managing the motor disorder, the cognitive disorder, and the psychiatric disorder. It also contains a list of supporting questions to ask the caregiver, as well as information about special issues that arise in incarceration and confinement.

Key Points for Law Enforcement
: A one-page document containing key points for law enforcement (prints double-sided on legal size paper).

Click here to order a copy (one free copy per family)




Working with Law Enforcement
Lauren Holder


Law Enforcement Toolkit: Tips for Caregivers
Cheryl Sullivan Staveley, RN


HDSA Law Enforcement Toolkit II: Working with Law Enforcement
Captain Kevin Staveley, Lynn Ross, LMSW