Upcoming Events & Announcements

Save the date: HDSA Blue Tie Gala 2015 

 When: May 16, 2015


Where: Location TBD

**Check back for updates shortly**


Volunteers make all the difference at HDSA and we need your help to keep our chapter great. Please think about volunteering for an event or for a Board position. Every bit helps and you have the power to help support your HD community! 

Interested? We'd love to chat with you!

Sign up to learn more: https://www.surveymonkey.com/s/2G9HJS3

Free Huntington's Disease Symposium

When: November15, 2014; 9:30am – 4:15pm (Extended program for Future Chapter Volunteersuntil 5:30pm)

Where: Holiday Inn Rosslyn Key Bridge; 1900 N Fort Myer Dr; Arlington, VA 22209

Sponsored by: DC Metro Chapter, Huntington ’s Disease Societyof America

To Register: https://www.surveymonkey.com/s/2VTXNLD

Planned Sessions Include:

  • Huntington’s Study Group Update & Clinical Trials Update
  • HDSA Advocacy Update
  • HD YO – Youth Breakout Session
  • So You Have Tested Positive – Now What?
  • Life planning/caregiving Breakout Session
  • Considerations in Genetic Testing
  • Updates from Local and Regional Huntington’s
  • Medical Service Programs
  • Learn More About Your Local DC Metro HDSA Chapter

Speakers and representatives to include: Social Workers and Medical Professionals from DC Metro Chapter, HDSA;Georgetown University Medical Center’s Huntington's Disease Care, Education and Research Center; HDSACenter of Excellence at the University of Virginia; University of Maryland Medical Center Huntington’s DiseaseProgram; HDSA Center of Excellence at Johns Hopkins University Hospital; Virginia Commonwealth UniversityMovement Disorder Program.

This is a FREEvent but ADVANCED Registration Required by November 7, 2015 – no on‐site registration will be available.

To Register: https://www.surveymonkey.com/s/2VTXNLD

Following the educational sessions; attendees interested will be invited to stay for an interactive reception(4:15pm ‐ 5:30pm) to learn more about local Chapter volunteer Board opportunities.

The Holiday Inn offers limited free parking for our event and is a short walk from the Rosslyn Metro Station. Afinal Program will be provided and posted closer to the event on the 

Got questions? Contact our Chapter President Lori Swain swain63@verizon.net

*Last Chance to Sign up*

Team Hope Walk 2014 -- This Saturday!

For questions or information, contact: Kassandra Kearse @ kkearse@walkforhd.org

About the Huntington’s Disease Society of America

The Huntington's Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 200,000 at-risk in the United States.  Notably, HDSA founded the HDSA Coalition for the Cure, a collaboration of 16 international researchers, as part of the HD Drug Research Pipeline, and supports research which develops potential therapies to treat and eventually cure HD; and HDSA also supports 21 Centers of Excellence at major medical facilities throughout the U.S., where people with HD and their families receive comprehensive medical, psychological and social services, in addition to physical and occupational therapy and genetic testing and counseling. The Society is comprised of 46 local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 160 support groups for people with HD, their families, caregivers and people at-risk, and is the premiere resource on Huntington’s Disease for medical professionals and the general public.  To learn more about Huntington’s disease and to get involved in HDSA, please visit www.hdsa.org or call 1-800-345-HDSA.

What is Huntington's Disease?
Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no cure and only one FDA-approved treatment for a symptom of HD. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period.  Cases of Juvenile HD has been diagnosed in children as young as two years of age.  Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD.  Each of their siblings and children has a 50 percent risk of developing the disease, therefore 250,000 are at risk.  Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

How do proceeds benefit HDSA?
All proceeds support HDSA's fight to improve the lives of people affected by HD and their families.

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