Upcoming Events & Announcements

Save the date: HDSA Blue Tie Gala 2015 

Please join us for a Celebration of Hope at our 3rd Annual Blue Tie Gala on Saturday May 16th, 2015, honoring Dr. Ira Shoulson, founder of the Huntington's Study Group.

The Blue Tie Gala will be an exquisite event of dinner, dancing, live and silent auctions, and an award for best Blue Tie Attire!  The event will take place at an elite Country Club in Chevy Chase, MD at six o'clockin the evening. (Black and Blue Tie Optional) 

The Blue Tie Gala plays a major role in fundraising for the Huntington’s Disease Society of America’s Washington, DC Metro Chapter.  Last year we raised $30,000 and the goal this year is to raise $75,000!  

Please SAVE the DATE and register for the event by clicking the link below, tickets are $150 per person and include dinner, drinks, dancing and valet parking service.

Please contact Hank Grabowski, hank@applieddefense.com for sponsorship opportunities.

We look forward to celebrating with you!

reserver your tickets now! 

*Full-table reservation information will be added shortly.

YOUR CHAPTER NEEDS VOLUNTEERS!

Volunteers make all the difference at HDSA and we need your help to keep our chapter great. Please think about volunteering for an event or for a Board position. Every bit helps and you have the power to help support your HD community! 

Interested? We'd love to chat with you!

 



About the Huntington’s Disease Society of America

The Huntington's Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 200,000 at-risk in the United States.  Notably, HDSA founded the HDSA Coalition for the Cure, a collaboration of 16 international researchers, as part of the HD Drug Research Pipeline, and supports research which develops potential therapies to treat and eventually cure HD; and HDSA also supports 21 Centers of Excellence at major medical facilities throughout the U.S., where people with HD and their families receive comprehensive medical, psychological and social services, in addition to physical and occupational therapy and genetic testing and counseling. The Society is comprised of 46 local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 160 support groups for people with HD, their families, caregivers and people at-risk, and is the premiere resource on Huntington’s Disease for medical professionals and the general public.  To learn more about Huntington’s disease and to get involved in HDSA, please visit www.hdsa.org or call 1-800-345-HDSA.

What is Huntington's Disease?
Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no cure and only one FDA-approved treatment for a symptom of HD. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period.  Cases of Juvenile HD has been diagnosed in children as young as two years of age.  Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD.  Each of their siblings and children has a 50 percent risk of developing the disease, therefore 250,000 are at risk.  Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

How do proceeds benefit HDSA?
All proceeds support HDSA's fight to improve the lives of people affected by HD and their families.



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