Facing the Future

At-Risk Retreat

April 25-26, 2015
JCC Perlstein Resort
Conference Center
Lake Delton   
Wisconsin Dells
Space Is Limited !
Register NOW
NO COST
Contact Jean Morack at 877-330-2699 to Register

Schedule - At-Risk Retreat

April 25, 2015

  • 8:00-8:30 Arrival/Registration
  • 9:00-9:15 Welcome
    • Ellie Scheller, President HDSA-WI
    • Emmy Lex, HDYO/NYA
  • 9:15-10:00 Huntington's 101
    • Dr. Laura Dent
    • UW-Madison
  • 10:00-11:00 HD Genetics
    • Yi-Lee Ting, MS, CGC
    • Genetic Counselor
    • Medical College of Wisconsin
  • 11:15-12:15 Experiences of Testing
    • Panel
  • 12:15 - 1:30 Lunch
  • 1:30 - 2:30 PGD
    • Diva Shah, MS, CGC
    • Reproductive Genetic Innovations
  • 2:30 - 3:30 Enroll HD/Clinical Trials
    • Dr. Shannon and Courtney Timms
    • HDSA-Rush Center of Excellence
  • 3:30-4:30 Informal Networking
  • 5:00-6:00 Dinner
  • 7:00 Movie (optional)

Schedule - At-Risk Retreat

Sunday, April 26, 2015

    • 8:00-8:30 Inclusively Designed Yoga
      • Amy Merkel LPN, RYT
      • Starfish Yoga
    • 9:00-10:15 Breakfast
    • 10:00-11:00 Adoption/Foster Care
      • Jade Johnson MSW, APSW
      • Lead Resource Specialist
      • Coalition For Children
      • Youth and Families
    • 11:00-12:00 HD Advocacy & Resources
      • Teresa Skora
    • Depart

 

___________________________________

Team Hope Walk - Milwaukee

 July 25, 2015

___________________________________

Team Hope Walk - Fox Valley

August 16, 2015
___________________________________

Team Hope Walk - Madison

August 29, 2015

_________________________________

Team Hope Walk - Eau Claire

August 22, 2015

Carson Park

Contact Deb Boyd, Regional Director





At-Risk Retreat

 The retreat is for adults 18 years and older (no children)

Each at-risk person may bring a spouse or partner if desired.

Purpose: To provide an informal get together for those at-risk to discuss issues, concerns, status, the future and more with professionals in the HD community.  There will be an opportunity to informally network.  Come and learn about testing issues, research opportunities, family options and how to live fully.

Directions, visit this site:  http:// www.gojccorg/perlstein-resort/event-planning-and-maps/

 

 

 

 

READ MORE