It often seems that you're alone with this disease, either as someone that tested positive or as a caregiver. But if you make just a little effort you will be amazed at the amount of support that is available to you.
Once you start working with a support group you will begin to realize that you don't need to deal with this disease alone and that can be a major source of stress relief.
In the State of Texas, there are seven HDSA assisted support groups. You may be fortunate enough to find a local support group that meets anywhere from once a month to once every three months.
If you can't find a local support group then please participate in a cyber-support group. There are several and you should visit each one, introduce yourself and participate. You'll be amazed at how much help they can be. For online-support visit hdac.org and click on "Message Board" under "Places to Visit".
LOCAL SUPPORT GROUPS:
Abilene Peer-led Group
The Abilene group has temporarily disbanded.
Call Shirley Roys at (325) 690-1031 if you'd like to participate in restarting the group or just wish to talk to someone about HD support in the area.
Austin Area Support Group/ Facilitated by a Social Worker
The Austin Area Support Group is an active group that meets the first Thursday of each month (except for January which is the second Thursday).
Dallas/Denton/Grapevine/Ft. Worth Support Group
This group meets the third Tuesday of the month at 7:00 PM. We have a meeting space at HEB Hospital in Bedford, 1600 Hospital Parkway, Bedford, TX 76022. AMB Conference Room
The easiest way to get to HEB from either direction is: Exit on Central Drive then take the access road EAST to HEB Hospital. Pass the fitness center on the right and go to the entrance at the bottom of the hill. Turn into the entrance road and park as close to the first building as possible. This is the Edward's Cancer Center. The entrance is in the middle of the first building. Go thru the revolving door and our AMB Conference Room is on the right adjacent to the rest rooms.
Contact Cheryl Lenheiser at the HDSA Texas Helpline (972) 724-1367 or (800) 910-6111 for more information.
Mesquite Support Group
The Mesquite group meets at Dallas Regional Medical Office Building, across the street from the Dallas Regional Medical Center Hospital, located s at 929 North Gallaway in Mesquite. Take the elevator to the Education Classroom on the 3rd floor.
For additional questions, contact Cheryl Lenheiser at the Texas Affiliate Helpline (972) 724-1367 or (800) 910-6111 for more information.
Houston Peer-led Group
San Antonio Peer-Led Support Group
This group meets the third Saturday at North Central Baptist Hospital [Mapquest] in the Atrium which can be reached from the front area or the Emergency Room. See the following schedule.
The San Antonio Support Group will meet at the North Central Baptist Hospital, 520 Madison Oak Drive, San Antonio, Texas (Atrium Education Room 1A). Meetings are from 12:00 noon to 2:00 PM on the 3rd Saturday of each month except December.
- The hospital is located off loop 1604 on the North side of San Antonio.
- Take the Stone Oak Parkway exit and go north (outside the loop).
- Go to Madison Oak Drive and turn right, you will see the North Central Baptist Hospital.
- Go past the front of the hospital until you see the Atrium on your right.
- You can park in this area and go through to the Atrium area to the meeting room or you can go on to the parking garage and enter through the Emergency entrance. Please see the map and follow the red line from either entrance to the room marked with a RED X.
- If you enter by the Atrium door, you can ask directions at the info desk as you come in to the area.
For more information on the San Antonio Group, call Gerleine Schoonover at (210) 691-0047 or (210) 452-2567. Email Gerleine at firstname.lastname@example.org.
El Paso Support Group
Group has been suspended until we have more members. Contact below to be added as a member.
This "international" support group meets quarterly from 9:00 to 10:30 AM.
The meetings meet at Lee & Beulah Moor Children's Home[Mapquest], 1100 E. Cliff.
Contact Ceci Burgos at (915) 525-9246 for more information or email her at email@example.com (checked weekly).
For more Information on Huntington's Disease, call the National office of the Huntington's Disease Society of America at 1-800-345-4372.
The toll-free Helpline for the Texas Chapter of HDSA Social Worker (800) 910-6111
If any corrections need to be made OR you have an HD support group going on that you'd like to make others aware of please note them in comments to this post. Thanks!