Our HD Center of Excellence in Texas

 

For more information about
the Texas COE, contact:

HDSA Center of Excellence
Baylor College of Medicine
Huntington's Disease Clinic
6550 Fannin, Suite 1801
Houston, Texas 77030
Phone: (713) 798-7438
Fax: (713) 798-6808
Website: www.jankovic.org

Social Work Support
Contact: Christine Hunter
Email: chunter@bcm.tmc.edu
Phone: (713) 798-3951
Fax: (713)798-1488

Neurologists
Patient Appointment:
Phone (713) 798-7438
Fax: (713) 798-6808

Joseph Jankovic, M.D.
Email: josephj@bcm.tmc.edu

Dr. William Ondo
Email: wondo@bcm.tmc.edu

Dr. Joohi Shahed

The Movement Disorders Center at Baylor College of Medicine, Department of Neurology, was selected by the Huntington's Disease Society of America as the HDSA Center of Excellence in 2001. Directed by Dr. Joseph Jankovic, Professor of Neurology, the Huntington Disease Center of Excellence (COE) is committed to providing the most expert and compassionate care for patients with HD. In addition to social services, physical, occupational and speech therapy, the patient's condition is managed by a team of skilled clinicians with medications and other therapies targeted to the specific neurologic and psychiatric symptoms. Patients are also invited to participate in a broad range of clinical trials. In addition to experimental therapeutics, the HDC focuses on research into mechanisms of neurodegeneration. Finally the HDC provides a setting for training of young physician-scientists and for educational programs directed to scientists, physicians, allied health professionals and patients and their families. The COE, located on the 18th floor of Smith Tower.

Baylor College of Medicine, Center of Excellence for the Huntington Disease Society of America (HDSA) is a participating site in many clinicial trials. Contact them for more details.

Social Services

Cheryl Lenheiser is the HDSA Social Worker for the state of Texas. She covers an unbelievable territory and as you can image it's a challenge. But she does an outstanding job and is there to help you. Click here to read more from Cheryl herself.

Cheryl Lenheiser, LCSW
Texas Affiliate Chapter Social Worker
Email :clenheiser@hdsa.org
Phone: 1-800-910-6111
FAX: 972-539-7006
Address: P. O. Box 270261
Flower Mound, Texas 75027-0261

Local Community Services

Austin

  • Meals on Wheel 512.476.6325
  • To Report Abuses 800.252.5400
  • Eldercare Consultation & Referral, Family Eldercare 512.450.0844
  • Home Repairs (Austin Area Urban League) 512.478.9647
  • Special Transit 512.478.9647

PLEASE help me identify additional services that you've used that would help other HD families in your area. Register and add a comment to this thread providing the city name, services provided and contact information. I'll then add the information to the page. Thanks!


Texas Support Groups

 Austin General Support Group Meeting

Second (2nd) Thursday of the Month, 7-8:30 PM

Seaton Northwest Hospital

11113 Research Blvd., Austin, TX

Dale Sonnenberg, PhD , Group Facilitator

 dsonnenberg@austin.rr.com

 

Denton/Dallas/Grapevine  ALSO KNOWN as

The Mid-Cities Group

Third (3rd) Tuesday of the Month, 7-8:30 PM

Harris Methodist HEB Hospital

1600 Hospital Parkway, Conference Room D

(Main Floor of Hospital, Entrance of Edwards Cancer Center)

Bedford, TX 76022

Don Jones, Peer Group Leader, hd.dfwgroup@gmail.com

 Dallas / Mesquite Peer-Led

Support Group Meeting

Second (2nd) Saturday of the month, 1-2:30 PM

Dallas Regional Medical Office Bldg.

929 N. Galloway, Mesquite, TX

Jean Barnes, Peer Group Leader, jeanbarnes29@yahoo.com

CURRENTLY ON HOLD


Greater Houston Area

Second (2nd) Sunday of Every Other Month, 2:30-4:30 PM

St. Thomas More Church – Adult Education Bldg

10330 Hillcroft (Hillcroft & Wigton), Houston, TX  77096

Erica Thomas (713) 798-6902 or

Christine Hunter (713) 798-3951

 

San Antonio Peer-Led Support Group Meeting

Third (3rd) Saturday of the Month, 12 noon – 2 PM

North Central Baptist Hospital (Atrium Educ. RM 1A)

520 Madison Oak Drive, San Antonio, TX

Gerleine Schoonover, Group Coordinator

Ph. (210) 691-0047, Cell (210)452-2567

 or curehdnow@aol.com

 

Waco Peer-Led Support Group

Quarterly Meetings, 6:30 – 8:30 PM

* call or email for dates *

Highland Baptist Church

3014 Maple, Waco, TX  76707

Phil Holmes, Peer Group Coordinator

 pholmes@grandecom.net or 254-235-9353

 

For any assistance or questions, please call

Cheryl Lenheiser, LCSW, Licensed Clinical Social Worker

       South Central Region

1 (800) 910-6111 or clenheiser@hdsa.org