UPCOMING EVENTS:

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Don’t forget to REGISTER for the walk today by clicking on the Team Hope logo below. See you there!

Huntington's Disease Society of America
Upper Midwest Region

Team Hope Walk and 5K Fun Run

Saturday, August 11, 2012 

Eagle Scout Park  

3050 Broadwell Avenue N 

Grand Island, NE

 

Registration 9 am * Walk/Run 10 am

 

Did you know that a donation made online tends to be 65% higher and

100% more convenient for YOU?

 

Get a jump start on your fundraising by registering online at:

http://www.firstgiving.com/hdsa-umwr/thwnebraska

The first 25 people to register on Firstgiving and raise $500 will go into a drawing for a chance to WIN a NEW iPAD!!

(winner announced at walk)

Help for Today. Hope for Tomorrow.

For more information call 763.502.1407 or e-mail masmussen@hdsa.org 



FALL EDUCATION EVENT 2014

SUNDAY, SEPTEMBER 28TH, 2014 / NOON TO 4 PM

 Our Sioux Valley Huntington's Disease Fall Education Seminar was held Sunday, September 28. We had 45 attendees, including eight living with HD. What a day! Thanks go out to Dr. Arik Johnson for his dynamic presentations on understanding behaviors in HD and talking with kids about HD. Thanks go out to all who attended and asked great questions. Thanks go out to all who purchased items on our silent auction. We can't do these without your support. We hope to see you next spring - and fall - for future education seminars.

Following the education seminar Sunday, 11 of us gathered together at Backyard Grill to enjoy the best BBQ ribs in the area. If you weren't able to join us, we missed you. Included in this photo - front row: Eileen Krueger (our Sioux Valley support group's social worker) and Mary Barlow (a member of HDSA's National Field Committee, who is also a special friend from Minnesota). L-R in the back row: Board Member Peter Anderson, Evelyn Anderson, Board President/Member Debbie Augustad, Paul Augustad, Board Member Brenda Gehling, Board VP/Member Margaret Geertsema, Shelly Como, guest speaker Dr. Arik Johnson and Board Co-Secretary/Member Betty Strom.


USD Fall Education Event - Panel Discussion

Monday, September 29, 2014 -  10 am to Noon

Sanford School of Medicine, The University of South Dakota, Vermillion, SD

GUEST SPEAKER:  Dr. Arik Johnson, Psy.D., UCLA, Lior Borovik, certified genetics counselor with Sanford USD Hospital in Sioux Falls, and an HD family volunteer panel.

Dr. Arik Johnson gave a 50-minute presentation to USD's first-year medical students, speaking on the topic of Clinical Aspects of Huntington's Disease.  Arik began his presentation with a brief description of "what is HD?"  He then discussed some of the clinical behaviors these future clinicians might encounter, what pharmacological interventions might be appropriate - why and when, treatment options, and genetics - why and when HD testing can/should occur.

Seven volunteers served on the HD family panel to discuss what circumstances brought them into the HD family, each bringing a different background and perspective to the discussion.  The USD students asked many great questions and we can only hope they will recall some of this presentation once in their future practice. 

If you couldn't join us on the panel, perhaps you will consider doing so in future years as this presentation to the first-year medical students is something the Sioux Valley chapter will continue to strive for.  Please let us know if you would like to join the panel next time - or if you would like more information.


 

   SUPPORT GROUP MEETING

SATURDAY, OCTOBER 11, 2014 --- 11:00 AM to 1:00 PM

LOCATION:  CAILLE LIBRARY - at 4100 S Carnegie Circle, Sioux Falls

If you wish, bring your lunch.  Coffee and water are provided.

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TOUR OF TABLES - FUNDRAISER

(Tentative:  October or November 2014)

Watch for details.

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 SUPPORT GROUP MEETING

SATURDAY, NOVEMBER 8, 2014 --- 11:00 AM to 1:00 PM

LOCATION:  CAILLE LIBRARY - at 4100 S Carnegie Circle, Sioux Falls

If you wish, bring your lunch.  Coffee and water are provided.

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SVHDA BOARD OF DIRECTORS' ANNUAL MEETING

SATURDAY, NOVEMBER 8, 2014 -- 1:30 - 3:30 PM.

 LOCATION:  RONNING LIBRARY - at 3100 E. 49th Street, Sioux Falls

 If you wish, bring a sack lunch.  Coffee and water are provided.

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Huntington Study Group's HD Clinical Research Symposium and HD Family Education Day

Saturday, November 8, 2014 - 8:00 AM - 3:30 PM

Hyatt Regency Minneapolis, Minneapolis, MN

Dear all—enclosed is a flyer about the upcoming Minnesota state HD conference for patients and families, being held this year in conjunction with the Huntington Study Group meeting (for researchers and doctors).  If you are a person who would like to attend the patient/family conference, now is the time to register!  If you are a person who takes care of people with HD, please print this out and pass it on!  I would love to have a large attendance at this year’s conference—it is your chance to mingle with and ask questions of, the people who do the research that will bring better treatments!  There are also parts of the conference that are for patients and families only, without the researchers.  Both the “research symposium” and the “HD family day” are open to patients and families, and both are FREE, but we need you to register.

Please attend!  Please register!  Please call or email me if you have questions!

Martha A. Nance MD

Medical Director  

Struthers Parkinson's Center

6701 Country Club Drive, Golden Valley, MN 55427

Telephone: 952.993.6592 | Fax: 952.993.2250

martha.nance@parknicollet.com

A National Parkinson Foundation Center of Excellence

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 In-service at Menno-Olivet Care Center

MENNO, SD

WEDNESDAY, NOVEMBER 19, 2014 AT 1:30 PM

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