HD Advocacy


The HD Parity Act has been re-introduced in Congress on March 7, 2013, as HR1015. Please write to your respective U.S. Representatives and encourage them to sign on as co-sponsors!

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HD Parity Act Myths vs. Facts  This revised handout features an overview of what HDSA and advocates are hearing from Congress

Costs Associated with the Huntington’s Disease Parity Act:  This document provides an estimate of the costs associated with the Huntington’s Disease Parity Act using Congressional Budget Office (CBO) criteria.

brief overview

 This document is a summary of the difficulties people with HD face when applying for SSDI and receiving Medicare that explains the need for the Huntington’s Disease Parity Act.


For information click here.