Exit this survey Support Group Survey: Members Question Title * 1. Do you primarily identify as: Person with HD Caregiver Family Member At-Risk Individual Other (please specify) Question Title * 2. What support group(s) are you a member of? Question Title * 3. How many years have you been a member of this support group? Question Title * 4. Are you a member of your local HDSA Chapter? This can include being a part of the chapter mailing list or attending chapter events. Yes No There is no HDSA chapter in my area Question Title * 5. Are you on the HDSA National Mailing list? Yes No I don't know Question Title * 6. In the last year, have you.... Yes No Taken part in advocacy outreach Taken part in advocacy outreach Yes Taken part in advocacy outreach No Visited the HDSA national website Visited the HDSA national website Yes Visited the HDSA national website No Taken part in a clinical trial Taken part in a clinical trial Yes Taken part in a clinical trial No Watched a caregiver's corner webinar, either live or archived Watched a caregiver's corner webinar, either live or archived Yes Watched a caregiver's corner webinar, either live or archived No Attended an education day event or symposium Attended an education day event or symposium Yes Attended an education day event or symposium No Read an HDSA publication Read an HDSA publication Yes Read an HDSA publication No Question Title * 7. How far (in minutes) do you travel for your support group? Question Title * 8. Do you visit your local Center of Excellence? Yes No There is no Center of Excellence in my area Question Title * 9. Do you prefer to attend support group meetings when there is a guest speaker? Yes No It does not make a difference Question Title * 10. Are there any guest speakers or guest speaker topics that you have liked? Question Title * 11. Are there any guest speakers you would like to see in your support group? Question Title * 12. Do you feel your support group leader is: Yes No Knowledgeable about Huntington's disease Knowledgeable about Huntington's disease Yes Knowledgeable about Huntington's disease No A good support group facilitator A good support group facilitator Yes A good support group facilitator No Able to deal with difficult situations in a professional manner Able to deal with difficult situations in a professional manner Yes Able to deal with difficult situations in a professional manner No Question Title * 13. Do you feel there is enough time for you to discuss what you would like to discuss? Yes No Question Title * 14. Which type of support group would you prefer attending? Caregiver Only Person with HD only At-Risk Only Mixed group Doesn't matter Other (please specify) Question Title * 15. Do you have any additional questions or thoughts on how HDSA can make the support group experience better? Thank you very much for your time. If you have any additional questions or thoughts, please contact Seth J. Meyer at smeyer@hdsa.org. Done