News & Announcements

2015 PHYSICIAN'S EDUCATIONAL SERIES
@ RI HOSPITAL'S HD MONTHLY SUPPORT GROUP
6:30 to 8:00 p.m.

January 6, 2015
Topic:  "Diagnosing HD - Not Just a Gene Test"
Presented by:  Joseph Friedman, PhD

February 3, 2015
Topic:  "Busting the Hospice Myth"
Presented by:  Rhonda Taddei, RN,BSN,CHPN, Care Transition Nurse
Hospice Care of Rhode Island

April 7, 2015
Topic:  Enroll HD
Presented by:  Jim Pollard

October 6, 2015
Topic:  HD Genetic Testing/Family Planning
Presented by:  Dr. Sam Frank
& Laura Lichten
 

Refreshments will be served! 
Please contact Marge to sign-up for this event 

 


 
TEAM HOPE WALK
Colt State Park in Bristol, RI
@ The Bristol Sports Complex
 

THANK YOU TO ALL THE VOLUNTEERS, PARTICIPANTS, RAFFLE DONORS, FAMILY & FRIENDS FOR MAKING THIS A SUCCESSFUL EVENT! SPECIAL THANKS TO OUR SPONSORS- ATHENA HEALTH CARE, REGENCY CIGAR EMPORIUM, BANK RI, ANN ARBOR ANNUITY EXCHANGE, CORNERSTONE RESTORATION, PICCERELLI GILSTEIN & COMPANY, QUESTAR CAPITAL, PJM, ROBERTS HEALTH CENTRE, TACO/THE WHITE FAMLY FOUNDATION, EM RESENDES CONSTRUCTION, WHOLE FOODS/UNIVERSITY HEIGHTS, BLOUNT SEAFOOD, AND DJ- DANNY DEMELO!  NATIONALLY SPONSORED BY LUNBECK AND AUSPEX PHARMACEUTICALS!

WITH YOUR HELP WE WERE ABLE TO RAISE $27,492!

TOP 3 FUNDRAISING TEAMS FOR 2014
TEAM SHARON/ASHLEY STEVENS
TEAM SHALVEY
TEAM KING RICHARD 

THANK YOU AGAIN! 
The Huntington's Disease Society of America- Rhode Island Chapter

 

 
HDSA -RI CHAPTER ON TWITTER
Image result for TWITTER LOGO
https://www.facebook.com/pages/Huntingtons-Disease-Society-of-America-HDSAWashington-Metro-Area-Chapter/113215083159
 
JOIN OUR CHAPTER EMAIL/MAILING LIST: 
EMAIL US AT hdsarichapter@cox.net

 


   

Welcome!

Welcome to the homepage of the Huntington's Disease Society of America, Rhode Island Chapter.

We are a chapter of the Huntington's Disease Society of America, a national, not-for-profit voluntary health agency.

The purpose of our chapter is:

• To help individuals affected by Huntington's Disease and their families through support and services

• To educate both the public and health care professionals about Huntington's Disease

• To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's Disease.

While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.

 HD MONTHLY SUPPORT GROUP
Meets the FIRST Tuesday of every month
RI Hospital - 6:30 to 8:00 p.m.
Cafeteria Private Dining Room 1-2-3

Facilitator: Maureen Hebert, LICSW (401) 368-5123
Note: Please call Maureen before attending moemsw99@aol.com



HD CAREEGIVER'S SUPPORT GROUP
Meets the FOURTH Tuesday of every-other month
Waterview Villa
1275 S Broadway, East Providence, RI

6:30 to 8:00 p.m.

MEET DEBBIE PAUSIG -Author of An Affair Worth Remembering
With Huntington's Disease at January 27th meeting!

2015 Caregiver Meeting Dates:
January 27 
March 24 
May 26 
July 28 
September 22 
November 24

Facilitator: Jean Baxendale, LICSW (401) 433-4242
Note: Please call Jean before attending jeanmbax@msn.com


 

HDSA- RI CHAPTER HELPLINE!
Need help locating resources, support, or 
want to schedule a facility
 in-service training

Please Contact:  Karen Baker, LICSW 
HDSA New England Regional Social Worker
Tel: (508) 446-7705
kbaker@hdsa.org


 

 Huntington’s Disease Research News

 


 

MA & RI MAKE A WISH FOUNDATION

MAKE A WISH FOR A CHILD!
CLICK HERE


 

 

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