News & Announcements

PHYSICIAN'S EDUCATIONAL SERIES
@ RI HOSPITAL'S HD MONTHLY SUPPORT GROUP
December 2, 2014 - 6:30 to 8:00 p.m.
 
Topic: Investigating Cellular Specificity of HD Neuropathology
Presented by:  Robert Fenster, PhD
 
Dr. Fenster is a third-year psychiatry resident at Brown Univeristy.  He graduated summa cum laude from Harvard University and received his M.D. degree at Weill Cornell Medical College.  Dr. Fenster received his PH.D. working in Dr. Paul Greengard's laboratory at The Rockefeller University studying cell-type specific transciptional changes in Huntington's Disease mouse models.  He continues research in HD in the laboratory of Dr. Myriam Heiman at The Broad Institute of Harvard and MIT.
 
Refreshments will be served! 
Please contact Marge to sign-up for this event 
508-336-5236 or margueritelamb@comcast.net

 

2015 PHYSICIAN'S EDUCATIONAL SERIES
@ RI HOSPITAL'S HD MONTHLY SUPPORT GROUP
6:30 to 8:00 p.m.

February 3, 2015
Topic:  "Busting the Hospice Myth"
Presented by:  Rhonda Taddei, RN,BSN,CHPN, Care Transition Nurse
Hospice Care of Rhode Island

April 7, 2015
 Topic:  Enroll HD
Presented by:  Jim Pollard

October 6, 2015
Topic:  HD Genetic Testing/Family Planning
Presented by:  Dr. Sam Frank
& Laura Lichten
 


 

 HDSA- RI CHAPTER HELPLINE!
Need help locating resources, support, or want to schedule a facility in-service training - Please Contact:  Karen Baker, LICSW 
HDSA New England Regional Social Worker
Tel: (508) 446-7705
kbaker@hdsa.org

 
TEAM HOPE WALK
Saturday, June 7, 2014
Colt State Park in Bristol, RI
@ The Bristol Sports Complex
 

THANK YOU TO ALL THE VOLUNTEERS, SPONSORS, PARTICIPANTS, RAFFLE DONORS, FAMILY & FRIENDS FOR MAKING THIS A SUCCESSFUL EVENT! 

WITH YOUR HELP WE WERE ABLE TO RAISE $25,000!

TOP 3 FUNDRAISING TEAMS FOR 2014
TEAM SHARON/ASHLEY STEVENS
TEAM SHALVEY
TEAM KING RICHARD 

THANK YOU AGAIN! 
The Huntington's Disease Society of America- Rhode Island Chapter

 

 


 
 Huntington's Disease Patient & Provider Symposium
Research, Resources, and Treatments - A Family Education Day!

 
Saturday, April 12, 2014
9:00am to 1:45pm
Ray Conference Center @ Butler Hospital
345 Blackstone Blvd., Providence, RI

HD Symposium Speakers

A SINCERE THANK YOU TO DR. JOSEPH FRIEDMAN
BUTLER HOSPITAL, LUNDBECK, NASW RI CHAPTER, SPEAKERS,
 AND RI CHAPTER HDSA FOR MAKING THIS EVENT POSSIBLE!


 
JOIN OUR CHAPTER MAILING LIST: 
EMAIL US AT hdsarichapter@cox.net

 


   

Welcome!

Welcome to the homepage of the Huntington's Disease Society of America, Rhode Island Chapter.

We are a chapter of the Huntington's Disease Society of America, a national, not-for-profit voluntary health agency.

The purpose of our chapter is:

• To help individuals affected by Huntington's Disease and their families through support and services

• To educate both the public and health care professionals about Huntington's Disease

• To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's Disease.

While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.

HD MONTHLY SUPPORT GROUP
Meets the FIRST Tuesday of every month
RI Hospital - 6:30 to 8:00 p.m.
Cafeteria Private Dining Room 1-2-3

Facilitator: Maureen Hebert, LICSW (401) 368-5123
Note: Please call Maureen before attending moemsw99@aol.com



HD CAREEGIVER'S SUPPORT GROUP
Meets the FOURTH Tuesday of every-other month
Barrington Public Library
6:30 to 8:00 p.m.
2nd Floor meeting room

2014 Dates:  9/23 & 11/25

Facilitator: Jean Baxendale, LICSW (401) 433-4242
Note: Please call Jean before attending jeanmbax@msn.com


 

HDSA- RI CHAPTER HELPLINE!
Need help locating resources, support, or 
want to schedule a facility
 in-service training

Please Contact:  Karen Baker, LICSW 
HDSA New England Regional Social Worker
Tel: (508) 446-7705
kbaker@hdsa.org


 

 Huntington’s Disease Research News

www.hdbuzz.org 

 


 

 THANK YOU

TEAM HOPE WALK SPONSORS

 

NATIONAL SPONSOR

 

GOLD SPONSORS

 

SILVER SPONSORS

 

 

 

BRONZE SPONSORS

 

 

READ MORE
Click below to order your HD Cookbook TODAY!
 

 

Click below to recieve a free copy of "A Physicians's Guide to the Management of Huntington's Disease"


Hurry Up and Wait 

By James Pollard

  

READ MORE