Links to other Sources of Research Information

 

 

You can also read news, summaries, analyses, and commentaries on HD research on other web sites.

 

 CHDI  is a non-profit organization that is pursuing a biotech approach to rapidly discover and develop drugs that prevent or slow Huntington disease (HD).

 

 European HD Network provides a platform for professionals and people affected by HD and their relatives to facilitate working together throughout Europe. 

 

 The HD Drug Works  provides news and information on treatments and clinical trials reviews research with immediate relevance to treatment.

 

The HD Lighthouse mission is to present and explain the latest research findings so that HD families can become proactive in their care, have hope for the future, and make good decisions in the present.

 

The National Research Roster for Huntington Disease Patients and Families was established in 1979 at Indiana University.  The goal of the Roster is to help researchers learn more about Huntington's Disease.

 

The Hereditary Disease Foundation sponsors workshops, grants, fellowships, and targeted research contracts to solve the mysteries of genetic disease and develop new treatments and cures.

 

HOPES – The Huntington’s Outreach Project for Education, at Stanford  is a student-run project at Stanford University that summarize and synthesizes recent research on Huntington’s Disease for a non-technical audience.

 

 The Huntington Project brings together the entire clinical research community, including government and industry, to engage in the decision-making process required to develop treatments that make a difference for HD.

 

The Huntington Study Group is a non-profit group of physicians and other health care providers from medical centers in the U.S., Canada, Europe and Australia, experienced in the care of Huntington patients and dedicated to clinical research of Huntington's disease.  

 

 Pub Med is a service of the National Library of Medicine and the National Institute of Health.  Type in “Huntington’s Disease” to find the abstracts of the latest scientific reports on HD.