Do you know me?

Hello. My name is Katie Long, I’m 22 years of age and from St. Louis and I am HD gene positive. The reason I’m writing you is because I believe there is a young person, who you know or associate with, who is as passionate about Huntington’s disease as I am. We need to findthem. We need them to help us.I know I speak for myself and many others who carry the gene; we are willing to do anything in our power not to pass along the disease to our children.

Do you know me?

My story with HD began when I was a very young girl. Huntington’s Disease has been around my family for almost as long as I can remember. My Mother is the baby of five older brothers and her oldest brother passed away from HD a little over seven years ago. My Mother and my other Uncle found out they were gene positive about five years ago. Hearing the news that this would be affecting my family directly gave me courage to allow the world to begin to understand what Huntington’s was and what we could do to help find a cure. Before I left for college, at the age of 18 I decided to be tested for HD. I am also gene positive along with my Mother and Uncle. Hearing the news at such a young age has only pushed me harder to find a cure. Recently, I have just completed chemo and radiation for Hodgkin’s Lymphoma and I am blessed to be cancer free.

Do you know me?

This is where “Heart’s” comes into place. In 2006, I began “Heart’s for Huntington’s,” selling paper hearts in schools, businesses, restaurants, etc.Since then, this project has gone nationwide and chapters across the country are selling "hearts" in their communities raising thousands of dollars for Huntington's Disease. Seeing these hearts hanging all over can help one who has never heard of HD be aware and learn, one who is affected my HD find hope and soon find a cure to this devastating disease that is still killing the lives of remarkable people every day.

Do you know me?

Life is so fragile, I feel so lucky for everyday I have. My passion for finding a cure to HD is beyond words and I know there are many who feel as I do. We need help raising funds for research. We all have voices, we all have our own stories and we all can make an impact and help to live in a world without HD.

 

 

If you are interested in selling hearts in your community, please contact Dan Leugers today at (513) 608-8712 or email dan.leugers@morgankeegan.com. Dan will discuss with you the ways you can help make a difference in the lives of so many.




If you are interested in selling hearts in your community, please contact Dan Leugers today at (513) 608-8712 or email. Dan will discuss with you the ways you can help make a difference in the lives of so many.

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