Orange County Chapter
EDUCATIONAL INFORMATION and HD LINKS
Click here to download the “Physician’s Guide to the Management of Huntington’s Disease” (3rd edition)
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1st Innagual Regional Education Day
On Saturday, March 10, 2012 HDSA held the 1st Regional Education Day at UC Irvine Student Center.
There were approximately 135 attendees who were eager to learn about Huntington’s Disease and hear from several speakers to discuss topics such as:
Below are links to hear the speakers:
“Caring for the Caregivers” – speaker: Arik Johnson, PsyD, HDSA Center of Excellence at UCLA.
“HD Advocacy” – speaker: Misty Oto, HDSA San Diego Board
“HD Clinical Trial Process” – speaker: Dr. Yvette Bordelon, M.D., PhD, Assistant Professor, Neurology at UCLA.
“Stem Cells” – speaker: Peter Donovan, PhD, Director, Sue and Bill Gross Stem Cell research Center, UC-Irvine.
Thank you to our sponsors HDSA, Lundbeck and UCI Remind Club.
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This interesting site features research articles on Huntington's written in every-day language so that we can understand the science and the advances in HD!!
HD Lighthouse Research Portal
The HDLighthouse mission is to present and explain the latest research findings so that HD families can become proactive in their care, have hope for the future, and make good decisions in the present.
Huntington Disease Advocacy Center (HDAC)
Huntington's Disease Advocacy Center. Much useful information on many aspects of Huntington's Disease.
HD Drug Works
This site focuses on treatment options for the multiple symptoms of Huntington's disease, on information about clinical studies and trials, and on social issues facing HD individuals and families.
Hereditary Disease Foundation
The homepage of the Hereditary Disease Foundation with links to information about many different aspects of HD.
HOPES (Huntington's Outreach Project for Education, at Stanford)
Created by a team of faculty and undergraduate students at Stanford University, this web site provides detailed descriptions of current scientific understanding of HD.
The National Research Roster for Huntington Disease Patients and Families. The goal of the Roster is to help researchers learn more about Huntington disease.
Huntington's Disease Society of America
The homepage of the Huntington's Disease Society of America.
Huntington Society of Canada
The homepage of the Huntington Society of Canada.
Caring for People with Huntington's Disease
Many links to information about caring for people with Huntington's Disease from Kansas University Medical Center Department of Neurology.
Harvard Brain Tissue Resource Center
The Harvard Brain Bank accepts brain donations from deceased HD patients to study the changes in the brain.
Information about the latest books on Huntington's Disease from the well-known author Carmen Leal
Huntington Study Group (HSG)
The HSG is made up of clinical researchers in North America, Europe, Australia, New Zealand and South America, who care for HD patients and families and who are working diligently to combat this disease.
Directory of every Medicare and Medicaid certified nursing home. Includes latest nursing home inspection reports.
Independent health care ratings organization. Reports and ratings to guide you to better care providers: physicians, hospitals, and dentists.