EDUCATIONAL INFORMATION and HD LINKS

Click here to download the “Physician’s Guide to the Management of Huntington’s Disease” (3rd edition)

http://www.hdsa.org/living-with-huntingtons/family-care/physician-s-guide-to-the-management-of-hd-3rd-edition.html

* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *

HD LINKS

HDBuzz
This interesting site features research articles on Huntington's written in every-day language so that we can understand the science and the advances in HD!!

HD Lighthouse Research Portal
The HDLighthouse mission is to present and explain the latest research findings so that HD families can become proactive in their care, have hope for the future, and make good decisions in the present.

Huntington Disease Advocacy Center (HDAC)
Huntington's Disease Advocacy Center. Much useful information on many aspects of Huntington's Disease.

HD Drug Works
This site focuses on treatment options for the multiple symptoms of Huntington's disease, on information about clinical studies and trials, and on social issues facing HD individuals and families.

Hereditary Disease Foundation
The homepage of the Hereditary Disease Foundation with links to information about many different aspects of HD.

HOPES (Huntington's Outreach Project for Education, at Stanford)
Created by a team of faculty and undergraduate students at Stanford University, this web site provides detailed descriptions of current scientific understanding of HD.

HD Roster
The National Research Roster for Huntington Disease Patients and Families. The goal of the Roster is to help researchers learn more about Huntington disease.

Huntington's Disease Society of America
The homepage of the Huntington's Disease Society of America.

Huntington Society of Canada
The homepage of the Huntington Society of Canada.

Caring for People with Huntington's Disease
Many links to information about caring for people with Huntington's Disease from Kansas University Medical Center Department of Neurology.

Harvard Brain Tissue Resource Center
The Harvard Brain Bank accepts brain donations from deceased HD patients to study the changes in the brain.

SomeOne Cares
Information about the latest books on Huntington's Disease from the well-known author Carmen Leal

Huntington Study Group (HSG)
The HSG is made up of clinical researchers in North America, Europe, Australia, New Zealand and South America, who care for HD patients and families and who are working diligently to combat this disease.

Medicare.gov
Directory of every Medicare and Medicaid certified nursing home. Includes latest nursing home inspection reports.

Health Grades
Independent health care ratings organization. Reports and ratings to guide you to better care providers: physicians, hospitals, and dentists.




 

Click here to contact us

 

READ MORE