What is the World Congress on HD? The 2009 Congress included presentations by caregivers and international HD organizations, with sessions on social, historical and ethical perspectives of HD. As well as a lunch specifically for the youths representing HD Youth organizations from around the world.
The 2009 WCHD will be organized by a committee led by Dr. Michael R. Hayden and Dr. Blair R. Leavitt. Huntington's disease (HD) researchers, clinicians, and members of the HD community from around the world will convene to participate in the meeting. The scientific program will feature presentations on recent advances in genetics and the disease mechanisms of HD, recent approaches to developing experimental treatments, and the latest findings from clinical trials.
What is the NYA World Congress Scholarship?
The NYA was awarded a grant form CHDI to send a few member of the National Youth Alliance to the WCHD. The purpose of this grant is to encourage the youth to take a more active role in HD research.
Four NYA Members attended the recent World Congress on Huntington's Disease in Vancouver, British Columbia. At the Congress they attended sessions on research and care; participated in discussions; and were able to meet with youth representatives from many countries. Here is how they characterized their experiences at this extraordinary event.
Please read about the NYA members experiences at the conference:
Shana Martin, WI
Heather Alimossy, OR
Joseph Romo, CA
Melinda Wagner, MO
The 2011 World Congress is scheduled to be help on September 11-14th in Melbourne, Australia.
For more information on the conference go to: http://www.worldcongress-hd2011.org/
At this time we are not aware if scholarships for the conference will be awarded. If the NYA is lucky enough to recieve scholarships again we will update our members via email.