"The NYA is powerful and inspiring because of the way that each member supports one another and embraces a future free of HD.  Young people ARE the future and they have an important voice in HDSA today." 

Louise Vetter, HDSA's Chief Executive Officer

 

Young people in the HD community are doing amazing things these days. They are taking action in big ways. Many of the members of NYA have started speaking up on behalf of their families, friends and fellow members who are affected by Huntington’s disease. They are hosting education days, fund raisers such as Team Hope Walks, bowl-a-thons and bake sales, and are creating awareness for HD with each person they meet. Recently many of our members have begun to take part in HDSA Chapters & Affiliates by participating in events and support groups. The stigma of young people talking about Huntington’s disease is coming to an end, as a new generation is ready to dedicate their time and efforts in helping support HDSA’s mission to  be dedicated to improving the lives of people with Huntington's disease and their families, promote and support research and medical efforts to eradicate Huntington's Disease, assist people and families affected by Huntington's Disease to cope with the problems presented by the disease, and educate the public and health professionals about Huntington's disease. The NYA strives to not only create opportunities for our members partake in the National Convention through scholarship opportunities;  we are also fighting alongside HDSA as we are dedicated to making this the last generation with Huntington’s disease.