What is the HDSA National Convention?
Convention is held each year at a different location across the country. It is an event put on by the HDSA to bring together people for support, education, awareness and research. Huntington's disease (HD) researchers, clinicians, and members of the HD community from around the country convene to participate.
The NYA hosts our own day the Thursday just before convention begins on Friday. On this day we hold team building exercises to develop a bond between members, sharing sessions to learn each others HD stories, and have guest speakers teach our members about Research, Advocacy, & Fundraising.
The NYA Silent Auction
The NYA silent auction is the primary fundraiser for the NYA Convention scholarship. The silent auction is held on the Friday of convention and items may be bid on all day. Auction closes at 5pm and items may be picked up on Saturday. If you wish to make a contribution to the Silent Auction you may do so by dropping your items off on Thursday evening at the Convention registration office.
If you wish to mail your item in please contact Mynelly Perez at email@example.com for details on how to do so.
What is NYA day at convention?
Each year NYA members who attend convention have a chance to attend the annual NYA day, which is the day before convention starts. It is a time for youth to meet other youth across the country and world who are coping with this disease. The NYA day is a day filled with support, education and fun activities. Each year the NYA committee organizes different activities, which are fun for the youth to be involved in. At the convention the NYA members also hold a silent auction and a dance auction to help raise funds for the NYA scholarship fund. Over the last ten years there have been over 150 scholarships provided to members of the NYA. By joining the NYA you make yourself eligible to submit an application to receive a scholarship. Scholarships applications are usually due each year in the spring and the convention is held every year in June.
World Congress on HD
What is the World Congress on HD?
The World Congress for HD is put together and held in a different country every year. Huntington's disease (HD) researchers, clinicians, and members of the HD community from around the world will convene to participate in the meeting. The scientific program will feature presentations on recent advances in genetics and the disease mechanisms of HD, recent approaches to developing experimental treatments, and the latest findings from clinical trials.
What is the NYA World Congress Scholarship?
The NYA was awarded a grant from CHDI to send a member of the National Youth Alliance to the WCHD. The purpose of this grant is to encourage the youth to take a more active role in HD research.
Five NYA Members have attended past World Congress on Huntington's Disease. They attended sessions on research and care; participated in discussions; and were able to meet with youth representatives from many countries. Here is how they characterized their experiences at this extraordinary event.
Contributions to the NYA Scholarship Fund
If you would like to contribute to this scholarship fund, please mail your check or money order, payable to the "HDSA NYA Convention Scholarship Fund" to:
Huntington's Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
Attention: Mynelly Perez, NYA
Thank you for your continued support to the Huntington’s Disease Society of America and the HDSA National Youth Alliance!