Las Vegas Affiliate
The HDSA Las Vegas Affiliate was established in 2011 to offer support locally to people who are impacted by Huntington's Disease. It is estimated that over 8,000 Nevadans either are gene positive or are at risk for inheriting the disease.
Our goal is to help connect those affected by the disease to offer support on an ongoing basis. Current support groups available are listed here
We organize events throughout the Southern Nevada community to raise money to support research for HD as well as raise awareness about the disease. Check the events page for more details.
We are currently working to get a co-sponsor for the Parity Act of 2011 in Nevada. If this bill passes, it will change the current Social Security Administration guidelines that allow people with Huntington's Disease to receive disability benefits. It will also waive the two year waiting period for HD patients to receive Medicare benefits.