Living With HD
Topics
Physical Therapy/Occupational Therapy/Speech Therapy/Nutrition:
Our Way to Make HD in Our Life a Positive Experience, by Kathleen Smulski, The Marker, Spring 2012
HDSA Hosts Inaugural Congressional Briefing, by Jane Kogan, We Are HDSA, January 2012
Know Your Rights: How GINA Protects You, by Peggy Tighe, Caregiver's Corner, January 2012
HDSA Advocacy, by Jane Kogan, Caregiver’s Corner Webinar, May 2011
A Primer on the Americans with Disabilities Act, by Charles C. Diggs, The Marker, 2003
Managing Psychiatric Symptoms, by Peggy Nopoulos, Caregiver's Corner Webinar, December 2012
Explosive HD, by Arik Johnson, We Are HDSA, January 2011
Learning More About Suicide and HD, by Carissa R. Gehl and Jane S. Paulsen, The Marker, May 2009
Partnership: Managing Conflict, by Elizabeth Penziner, The Marker, October 2006
Travel Thoughts, by Karen Tarapata, We Are HDSA, August 2012
Self-Compassion: An Exercise in Healing, by Sharon R. Cascone, We Are HDSA, November/December 2011
Care for the Caregiver, by Lisa Kjer, Caregiver’s Corner Webinar, October 2011
How Do I Ask for Help with Caregiving?, Lynn Ross, We Are HDSA, June 2011
What You Need to Know About Respite, The Marker, Spring 2011
Caregiving Coping Strategies, by Marsha Miller, We Are HDSA, May 2011
Caregiver Depression, We Are HDSA, November 2010
Caregiver Interventions, by Mary Edmondson, Caregiver’s Corner Webinar, August 2010
Caregiver Coping Strategies, by Marsha Miller, Caregiver’s Corner, June 2010
Managing Caregiving: Techniques that Can Help, The Marker, Spring 2010
Caregivers as Advocates, The Marker, May 2007
Finding Facts on the Internet, The Marker, May 2007
Growing Up in an HD Family, by Janet K. Williams, The Marker, October 2006
Communicating with Caregivers: How Caregivers View Their Role, The Marker, Fall 2005
Signs of Struggle: When to Worry About Caregivers Stress, The Marker, Fall 2005
Respite Care: Renewing the Spirit with Relief Breaks, The Marker, Fall 2005
Caregiver Depression, The Marker, 2004
Caregiver Self Advocacy: Messages to Live By, The Marker, 2003
From the Bench: The Future of HD Research at HDSA, by George Yohrling, Toward A Cure, Winter 2012
The Changing Prevalence of Huntington's Disease, by Chris Kay, emily Fisher, & Michael Hayden, Toward A cure, Winter 2012
Zinc Finger Proteins: Novel Technology to Target Huntingtin DNA, by George Yohrling, Toward a Cure, Winter 2012
ENCODE identifies "Genetic Switches" in DNA, by Marsha Miller, We Are HDSA, October 2012
Researchers Meet in Palm Springs to Discuss Advances in the HD Pipeline, by Fred Taubman, The Marker, Spring 2012
Update on the Pipeline for Drug Discover, The Marker, Spring 2011
Second Induced Pluripotent Stem Cell (ISPC) Consorita Workship, The Marker, Spring 2011
Participant Involvement Leads to Breakthroughs in PREDICT-HD Study, The Marker, Spring 2011
Research Volunteers-Heroes in Helping, by Jane Kogan, We Are HDSA, February 2011
Be A Hero in Helping, by Jane Kogan, We Are HDSA, February 2011
In Focus: Update on PREDICT by Sean Thompson, Toward a Cure, Winter 2010
From Bench to Bedside, by Mary MacDonald, The Marker, Spring 2010
Hope in Balance, by Michael Hayden, The Marker, Spring 2010
What is HD Trials.org?, The Marker, Spring 2010
Why Should We Bother with ACR16 by LaVonne Goodman, The Marker, May 2009
5th Annual Phyllis E. Dake Huntington’s Disease Research Symposium, The Marker, November 2007
HDSA Pipeline to Drug Discovery, by Jim Gusella, The Marker, October 2006
Are Clinical Trials Right for You or Your Family Members?, The Marker, Fall 2005
Novel Approach to Gene Therapy Holds Great Promise for HD, The Marker, Spring 2005
Fighting Back Against HD, by Christopher Ross, The Marker, Fall 2001
Coping with Cognitive Decline, by Kevin Duff, The Marker, November 2008
Disability FAQs, by Drew Yeannakis, We Are HDSA, November/December 2011
Applying for Disability Benefits, by Jane Kogan, We Are HDSA, July 2011
“Ask Medicare” A Website in Support of Caregivers, The Marker, Spring 2011
Disability Strategies II, by Drew Yeannakis, Caregiver’s Corner Webinar, October 2010
Applying for Disability, Drew Yeannakis, Caregiver’s Corner Webinar, July 2010
When Should I Speak to A Genetic Counselor?, Lauren Dennis, We Are HDSA, June 2011
To Test or Not To Test, by Ami Rosen, We Are HDSA, April 2011
The Genetic Information Nondiscrimination Act, The Marker, Spring 2010
Presymptomatic Testing in Huntington Disease, by Kimberly Quaid, The Marker, May 2009
Genetic Testing Before 18: Should a Child Decide?, by Kimberly A Quaid, The Marker, October 2006
What is unawareness and how do I deal with it?, by Anne Leserman, We Are HDSA, December 2012
Tips for Identifying Community Resources, by Karen Baker, Lunch and Learn Webinar, August 2012
Youth Support Growing Around the World!, by B.J. Viau, We Are HDSA, June 2012
Spirituality & HD, by Jim Bridges, Caregiver's Corner, February 2012
Living Positively At-Risk for HD, by Jang-Ho Cha, The Marker, Spring 2011
At-Risk Dating: When to Talk About HD, by Randi Jones, We Are HDSA, March 2011
Team Management of HD, By Martha Nance, Caregiver’s Corner Webinar, February, 2011
Nutrition Intervention in Huntington’s Disease, by Susan Sandler, The Marker, Spring 2010
Finding the Care You Need, by Martha Nance, We Are HDSA, November 2010
Living Positively, by Jang Ho Cha, Caregiver’s Corner Webinar, September, 2010
In Focus: Weight Loss in HD Increases with Higher CAG Repeat Number, The Marker, Spring 2010
Eating Right Can Make A Difference, by Stacey Peyerl, The Marker, October 2006
Huntington’s Disease and Driving, The Marker, Spring 2005
Dehydration and HD, by Teresa Tempkin, The Marker, 2003
At-Risk for Abuse in HD, by Richard M. Dubinsky, The Marker, Spring 2001
Living with Grief and Loss, by Barb Heiman, The Marker, Spring 2001
Preventing Weight Loss in HD Patients, The Marker, 2001
Navigating the Health Care Maze, by Lift Caregiving, We Are HDSA, October 2011
Patient & Family Centered Care, Tara LoCastro, We Are HDSA, October 2011
Navigating Emergency Room Visits, by Steven Hersch, The Marker, Spring 2011
Communicating with Healthcare Professionals, The Marker, Fall 2001
Telemedicine Aids HD Care in Rural Virginia, The Marker, Spring 2001
Telecommunications Aids Diagnosis and Patient Care, The Marker, Spring 2001
Diagnosing JHD, by Dr. Martha Nance, Caregiver's Corner, April 2012
Back to School with Juvenile-Onset HD, By Karen Tarapata, We Are HDSA, October 2011
Seeking Diagnosis, Care, and a Cure for Juvenile HD, The Marker, Fall 2001
Youth and Juvenile HD: Finding Time for Fun, The Marker, Fall 2001
Juvenile Huntington’s Disease, by Martha Nance, The Marker, 2000
Long Term Care Insurance by Stacey Barton, We Are HDSA, February 2013
Long Term Care Placement by Gwen Johnson, We Are HDSA, August 2011
Ready for Placement?, By Barb Heiman, We Are HDSA, August 2011
Taking Control, by Karen Tarapata, We Are HDSA, August 2011
Nursing Homes: Information to Ponder, by Jessica Hancock, We Are HDSA, August 2011
Palliative Care in Huntington’s Disease, by Richard Dubinsky, The Marker, 2003
Choosing Home Healthcare Assistance, The Marker, Fall 2001
Why I Give My Voice to HD, by Marie Clay, The Marker, Spring 2012
Why I Volunteer for HDSA, by Don Higgins, M.D., The Marker, Spring 2012
Giving Back, by Shana Martin, The Marker, Spring 2012
The DNA of Giving Back, by Kristen Powers, The Marker, Spring 2012
Why I am an HD Advocate & Volunteer, by Stacey K. Barton, MSW, LCSW, The Marker, Spring 2012
Why I Have Not Gotten Tested, by Lindsey Zan, We Are HDSA, November/December 2011
Testing, We Are HDSA, November/December 2011
Why I Got Tested, by Staci Cushenberry, We Are HDSA, November/December 2011
My Decision, by Laura Petruzzi, We Are HDSA, November/December 2011
Staying Active, Speaking, Helping Others, and Smiling, by Shana Martin, We Are HDSA, September 2011
One Man’s Story: Entering the Light, by Kenneth P. Serbin, We Are HDSA, September 2011
Adapting My House for HD, by Katie Moser, The Marker, Spring 2011
Progress Report: Living At-Risk, The Marker, 2003
Preimplatation Testing: One Family’s Story, The Marker, Fall 2001
Physical Therapy/Occupational Therapy/Speech Therapy/Nutrition:
Nutrition in HD - Make it A Matter of Taste, by Karen Tarapata, We Are HDSA, February 2012
Dietitians in Huntington's Disease, by Stacey Hoffman, We Are HDSA, February 2012
Occupational Therapy and Huntington's Disease, by Kate H. Lafont, We Are HDSA, January 2012
Gait & Balance, by Deb Kegelmeyer, Sandra Kostyk, and Anne Kloos, Caregiver's Corner, November 2011
Augemented Communication Devices, by Kathleen Samulski, The Marker, Spring 2011
PT/OT & HD, by Suzanne Imbriglio, Caregiver’s Corner Webinar, March 2011
HD & Nutrition, by Anna Gaba, Caregiver’s Corner Webinar, January 2011
Early Intervention with Physical Therapy, by Lori Quinn, The Marker, May 2009
Tai Chi for Individuals with Huntington’s Disease, by Nicola Briggs, The Marker, May 2007
Strategies for Speaking and Eating with HD, by Jeanne E. Thomson, The Marker, Spring 2001
Prolonging Quality of Life with Physical and Occupational Therapy, The Marker, 2000
Hospitals: Admission and Discharge, by Lift Caregiving, We Are HDSA, January 2012
When and How to Talk About Driving, by Claudia Testa, We Are HDSA, July 2011
Managing Advanced Directives, by Karen Baker, We Are HDSA, July 2011
How Do You Handle Food Away From Home?, by Ann Gaba, We Are HDSA, May 2011
Family Planning and HD, by Kimberly Quaid, We Are HDSA, April 2011
Planning Ahead-10 Tips for the Long Run, by Lisa Kjer, We Are HDSA, January 2011
Palliative Care & End of Life Issues, By Debra Blue, Caregiver’s Corner, November 2010
Hospice: Living Each Day in Comfort and Dignity, The Marker, May 2007
Planning for the Future, by Barbara Heiman, The Marker, October 2006
Is a Living Will Enough to Protect You?, The Maker, Fall 2005
Planning Ahead with Long Term Care Insurance, The Marker, 2004
Advanced Directives and End of Life Decision Making, The Marker, Fall 2001