OPENING CEREMONY

Welcome
Proclamations

A Message from HDSA Chairman of the Board
Steve Seekins

State of the Society
Louise Vetter, CEO


 
 
 
 

KEYNOTE SPEAKER

powerpoint Presentation

Mark Holder, PhD

WORKSHOPS

Behavior Issues/Unawareness and Apathy

Powerpoint Presentation

Danielle Blinkoff, B.A.

Cognition and HD/ HD 101

 Workshop Recorded

Powerpoint Presentation

Juan Sanchez-Ramos, MD, PhD

 

 

Movement and HD/ PT and Movement

workshop recorded

Powerpoint Presentation

Meredith Defranco

 

Caregiver Issues/ Applying for Disability

 Power Point Presentation

Art Spencer

Social Security Administration


How the HD Gene Works

 PowerPoint Presentation

Ed Wild, MD, PhD and Jeff Carroll, PhD

 

Youth/Teens Ages 12-19- Talking About HD with parents & Friends


Lauren Holder and Lindsey Zan

Powerpoint Presentation

 

Behavior Issues/ Irritability and Depression

Workshop recorded

Powerpoint Presentation

Peg Nopoulos, MD

 

Cognition and HD/
Job Accommodations and HD

Lisa Dorinzi, MA

 


Movement and HD/ Managing Movements

Workshop Recorded

Powerpoint Presentation

Victor Sung, MD

 

Caregivers Issues/
Preparing for the Future - Legal Issues

Sean Scott, Esq.

 

Advocacy and HD

Paul Lee and Jason Gromley, Esq.

 

Youth and Teens Ages 12-19/ Coping with HD


Stacey Barton, MSW, LCSW

Powerpoint Presentation

 

School and the JHD Child

HDSA RESEARCH/ Keynote Speaker


Keynote Speaker

Michael Hayden, MD, PhD


HDSA RESEARCH/Hot topics

HOT TOPICS

Ed Wild, MD, PhD and Jeff Carroll, PhD

 

Cognitive, Behavioral and Motor Issues / Early Motor Symptoms

Powerpoint Presentation

Juan Sanchez-Ramos, MD, PhD

workshop recorded

 

Caregiver Issues/ Preparing for the Unknown


Changing Expectations of Caregivers

Amy Woodard, MSW

workshop webcast

Powerpoint Presentation

 


Young Adults/ Coping with a Positive Test Result

Powepoint Presentation

Amy Chesire, LCSW-R, MSG

 

 

HDSA RESEARCH

PREDICT Update
Powerpoint Presentation 

Jane Paulsen, PhD

 

 

Cognitive, Behavioral and motor Symptoms/
Coping with Obsessive/Compulsive Behaviors

Daniell Blinkoff

Powerpoint Presentation

Caregiver Issues/ Talking with Kids about HD

Karen Baker and Cori Robin

 

Law Enforcement and HD

 

Lauren Holder

workshop recorded

 

Young Adults/ Family Planning

 Powerpoint Presentation

Allison Daley

workshop recorded

 

HDSA RESEARCH

Potential New Therapies

Moderator: Jane Paulsen, PhD

Speakers: Lisa Stanek, PhD (Genzyme)
Powerpoint Presentation

Dr. David Stamler (Auspex)
Powerpoint Presentation

 

 

Cognitive, Behavioral and Motor Symptoms/ Managing Cognitive Problems

 

Arik Johnson, PsyD

Powerpoint Presentation

workshop Recorded

 

Caregiver Issues/ In Home Care Options

Powerpoint Presentation

Tina Spinks, PT and Kyle Haynes, PT

Senior Home Care

Managing Late Stage HD 


Victor Sung, MD

workshop Recorded

 

Young Adults/ To Test or Not to Test Panel

Powerpoint Presentation

Moderator: Lynn Ross, LMSW

Panel: Tina Hellum, Andrea Olitsky and Jeanine Smith

 

 



Help HDSA Plan the 29th Annual National Convention in Louisville, KY, June 20-22, 2014 by taking this survey. Please click here.

READ MORE