Huntington's Disease Society of America - 2012 Convention Presentations

Living With HD

860 family members, clinicians, researchers and interested guests attended the 27th Annual HDSA Convention in Las Vegas, June 9-11.

Videos of major symposia and several workshops are available by clicking on the pages below. Powerpoint presentations from other workshops will be available in the next few weeks.

Opening Ceremony

Welcome from Jenny Rogers, Chair of Las Vegas Affiliate of HDSA; Message from HDSA by Don Barr , Chair of HDSA Board of Trustees; State of the Society by Louise Vetter, CEO

We Are HDSA
Panel of HDSA family Members : Ted Krull, Shana Martin, Ken Serbin

Saturday Morning

HDSA Research Keynote Address
Huntington's Disease - Yes We Can!
Sarah Tabrizi, MD, FRCP, PhD
University College London

Clinical Research Showcase

Moderator: Ira Shoulson, MD

Panelists:
Bernard Landwehrmeyer, MD, PhD - ENROLL-HD
Jane Paulson, PhD - PREDICT 2.0
Steven Hersch, MD, PhD - CREST-E
Ira Shoulson, MD - Reach2HD

Workshops

Movement and HD HD 101: Martha Nance, MD

Behavior, Cognition and Movement and HD
Alternative Medicine: Kathleen Shannon, MD

Ethical Issues
Psychological Consequences of a Negative Test Result: Carol Manning, PhD

Behavior Issues Treatment Options , Pharmacologic Options: Dylan Wint, MD

Cognition and HD Detection of Early and Mid Stage Cognition Problems: Don Higgins, Jr., MD

Please check back often. We are posting presentations everyday.
Topic	Title	Speaker	Presentation for Download
Behavior Issues	Behavior Management Issues in Early HD	Lorin Scher, MD	http://www.hdsa.org/images/content/1/7/17189/120608 HDSA talk SCHER.pdf
Cognition and HD	Overview of Cognitive Problems and HD	Jane Paulsen, PhD
Movement and HD	HD 101	Martha Nance, MD	http://www.hdsa.org/images/content/1/7/17191/HDSAnance1012012.pdf
Ethical Issues	Caring for the Caregiver	Amy Chesire, LCSW-R, MSG	http://www.hdsa.org/images/content/1/7/17142/HDSA 2012 Caregiver talk.pdf
All Attendees	Estate Planning	MetLife Center for Special Needs Planning, Robert Westbrook, CLU, ChFC, CFP© & Mark Loftis, CFP©, CLU, ChFC
Field Leadership	Board, Volunteer and Committee Development
JHD	What Is Juvenile Onset HD?	Sandra Kostyk, MD, PhD	http://www.hdsa.org/images/content/1/7/17151/jhd kostyk.pdf
Behavior Issues	Managing Behavior Non-Pharmacologic Approaches	Donna Munic-Miller, PhD	http://www.hdsa.org/images/content/1/7/17140/behavior%20issues-%20donna%20miller.pdf
Cognition and HD	Detection of Early and Mid Stage Cognitive Problems	Don Higgins, Jr., MD
Movement and HD	Medical Management of Motor Symptoms	Victor Sung, MD	http://www.hdsa.org/images/content/1/7/17144/HDSA Medical Management Motor Symptoms 2012- victor sung.pdf
All Attendees	How to Start an HDSA Support Group	Seth Meyer, LMSW	http://www.hdsa.org/images/content/1/7/17149/Starting a support group- smeyer.pdf
HDSA Field Leadership	Start a Team Hope Walk in Your Community
JHD	JHD Natural History	Jane Paulsen, PhD
Behavior Issues	Treatment Options Pharmacologic Options	Dylan Wint, MD	http://www.hdsa.org/images/content/1/7/17139/Behavior in HD_HDSA June 2012- dylan wint.pdf
Movement and HD	Nutrition Assistance	Zhaoping Li, MD	http://www.hdsa.org/images/content/1/7/17227/HDSA Are calorie the same.PDF
Ethical Issues	Psychological Issues of Testing Positive for HD	Kim Quaid, PhD	http://www.hdsa.org/images/content/1/7/17148/Psychologicalissuesof testingpositive - quaid.pdf
All Attendees	Advocacy Meet and Greet	Peggy Tighe, JD, Jason Gromley, Esq. and Jane Kogan, LMSW	http://www.hdsa.org/images/content/1/7/17143/HDSA Convention 2012 Presentation.pdf
Youth, Teens and Young Adults	The Genetic Testing Process Unraveled	Katie Plunkett, MS	http://www.hdsa.org/images/content/1/7/17141/Genetic Testing HDSA- katie plunkett.pdf
HDSA Field Leadership	Create a New Fundraising Event in Your Community
JHD	Multidisciplinary Approach to Treatment and Care	Martha Nance, MD	http://www.hdsa.org/images/content/1/7/17192/Juvenile-onsetHD2012revised.pdf
HDSA RESEARCH	*Huntington's disease - Yes We Can!*	Sarah Tabrizi, MD, FRCP, PhD
HDSA RESEARCH	CLINICAL RESEARCH SHOWCASE	Moderator: Ira Shoulson, MD Panelists: Bernhard Landwehrmeyer, MD, PhD - ENROLL-HD Jane Paulsen, PhD - PREDICT 2.0 Steven Hersch, MD, PhD - Crest-E Ira Shoulson, MD - Reach2HD
Behavior, Cognition and Movement and HD	Alternative Medicine	Kathleen Shannon, MD	http://www.hdsa.org/images/content/1/7/17138/alternative medicinefinal.pdf
Ethical Issues	Family Planning	Katie Plunkett, MS and Cheryl Erwin, JD
Youth, Teens and Young Adults	How Youth and Young Adults Can Make a Difference	BJ Viau
Juvenile Onset HD	Special Needs Planning	MetLife Center for Special Needs Planning Robert J. Westbrook, CLU, ChFC, CFP® and Donna M. Stefans Esq
HDSA RESEARCH	Potential New Therapies	Moderator: Jang-Ho Cha, MD, PhD Panelists: Beth Hoffman, PhD – Vertex Adriana Prundean, MD – Raptor Holly Kordasiewicz, PhD - Isis
HDSA Field Leadership	HDSA Clinical Trials Diplomat Training	Sam Frank, MD
Behavior, Cognition and Movement and HD	How to Communicate with Your Healthcare Provider	Moderator; Donna Munic-Miller, PhD Panel: Victor Sung, MD and Lorin Scher, MD	http://www.hdsa.org/images/content/1/7/17146/how to communicate w ur healthcare provider.pdf
Ethical Issues	Psychological Consequences of a Negative Test Result	Carol Manning, PhD	http://www.hdsa.org/images/content/1/7/17228/HD Consequences of a Negative Test Result - HDSA 2012.pdf
All Attendees	Questions to Ask when Looking for a Long Term Care Facility	Rebecca Ferrini, MD and Anthony Lechich, MD	http://www.hdsa.org/images/content/1/7/17190/HDSA LTC presentation semifinal.pdf
HDSA RESEARCH	More Hope, Less Hype: Understanding HD Science News	Jeff Carroll, PhD and Ed Wild, PhD
HDSA Field Leadership	Raising Awareness About Your HDSA Events Through Media