860 family members, clinicians, researchers and interested guests attended the 27th Annual HDSA Convention in Las Vegas, June 9-11.

 Videos of major symposia and several workshops are available by clicking on the pages below. Powerpoint presentations from other workshops will be available in the next few weeks.

 Opening Ceremony

Welcome from Jenny Rogers, Chair of Las Vegas Affiliate of HDSA; Message from HDSA by Don Barr , Chair of HDSA Board of Trustees; State of the Society by Louise Vetter, CEO 
 

We Are HDSA
Panel of HDSA family Members
: Ted Krull, Shana Martin, Ken Serbin
 

 

Saturday Morning
 

HDSA Research Keynote Address
Huntington's Disease - Yes We Can!

Sarah Tabrizi, MD, FRCP, PhD

University College London
 

 

Clinical Research Showcase 

Moderator: Ira Shoulson, MD
 

Panelists:
Bernard Landwehrmeyer, MD, PhD - ENROLL-HD
Jane Paulson, PhD - PREDICT 2.0
Steven Hersch, MD, PhD - CREST-E
Ira Shoulson, MD - Reach2HD
 

 

 

Workshops 

Movement and HD HD 101: Martha Nance, MD


Behavior, Cognition and Movement and HD
Alternative Medicine: Kathleen Shannon, MD
 


 

Ethical Issues
Psychological Consequences of a Negative Test Result: Carol Manning, PhD
 

Behavior Issues Treatment Options , Pharmacologic Options:  Dylan Wint, MD

Cognition and HD Detection of Early and Mid Stage Cognition Problems: Don Higgins, Jr., MD 

 

 

 

 

Please check back often. We are posting presentations everyday.

     

Topic

Title

Speaker

Presentation for Download

Behavior Issues

Behavior Management Issues in Early HD

Lorin Scher, MD

http://www.hdsa.org/images/content/1/7/17189/120608 HDSA talk SCHER.pdf

Cognition and HD

Overview of Cognitive Problems and HD

Jane Paulsen, PhD

 

Movement and HD

HD 101

Martha Nance, MD

http://www.hdsa.org/images/content/1/7/17191/HDSAnance1012012.pdf

 

Ethical Issues

Caring for the Caregiver

Amy Chesire, LCSW-R, MSG

http://www.hdsa.org/images/content/1/7/17142/HDSA 2012 Caregiver talk.pdf

 

All Attendees

Estate Planning

MetLife Center for Special Needs Planning,
Robert Westbrook, CLU, ChFC, CFP© &

Mark Loftis, CFP©, CLU, ChFC

 

Field Leadership

Board, Volunteer and Committee Development

 

 

JHD

What Is Juvenile Onset HD?

Sandra Kostyk, MD, PhD

http://www.hdsa.org/images/content/1/7/17151/jhd kostyk.pdf

 

Behavior Issues

Managing Behavior

Non-Pharmacologic Approaches

Donna Munic-Miller, PhD

http://www.hdsa.org/images/content/1/7/17140/behavior%20issues-%20donna%20miller.pdf

 

Cognition and HD

Detection of Early and Mid Stage Cognitive Problems

Don Higgins, Jr., MD

 

Movement and HD

Medical Management of Motor Symptoms

Victor Sung, MD

http://www.hdsa.org/images/content/1/7/17144/HDSA Medical Management Motor Symptoms 2012- victor sung.pdf

All Attendees

How to Start an HDSA Support Group

Seth Meyer, LMSW

http://www.hdsa.org/images/content/1/7/17149/Starting a support group- smeyer.pdf

 

HDSA Field Leadership

Start a Team Hope Walk in Your Community

 

 

JHD

JHD Natural History

Jane Paulsen, PhD

 

Behavior Issues

Treatment Options

Pharmacologic Options

Dylan Wint, MD

http://www.hdsa.org/images/content/1/7/17139/Behavior in HD_HDSA June 2012- dylan wint.pdf

 

Movement and HD

Nutrition Assistance

Zhaoping Li, MD

http://www.hdsa.org/images/content/1/7/17227/HDSA Are calorie the same.PDF

 

Ethical Issues

Psychological Issues of Testing Positive for HD

Kim Quaid, PhD

http://www.hdsa.org/images/content/1/7/17148/Psychologicalissuesof testingpositive - quaid.pdf

 

All Attendees

Advocacy Meet and Greet

Peggy Tighe, JD, Jason Gromley, Esq. and Jane Kogan, LMSW

http://www.hdsa.org/images/content/1/7/17143/HDSA Convention 2012 Presentation.pdf

 

Youth, Teens and Young Adults

The Genetic Testing Process Unraveled

Katie Plunkett, MS

http://www.hdsa.org/images/content/1/7/17141/Genetic Testing HDSA- katie plunkett.pdf

 

HDSA Field Leadership

Create a New Fundraising Event in Your Community

 

 

JHD

Multidisciplinary Approach to Treatment and Care

Martha Nance, MD

 

http://www.hdsa.org/images/content/1/7/17192/Juvenile-onsetHD2012revised.pdf

HDSA RESEARCH 

Huntington's disease - Yes We Can! 

Sarah Tabrizi, MD, FRCP, PhD

 

HDSA RESEARCH 

CLINICAL RESEARCH SHOWCASE

Moderator: Ira Shoulson, MD

Panelists: Bernhard Landwehrmeyer, MD, PhD - ENROLL-HD

Jane Paulsen, PhD - PREDICT 2.0
Steven Hersch, MD, PhD - Crest-E

Ira Shoulson, MD - Reach2HD

 

Behavior, Cognition and Movement and HD

Alternative Medicine

Kathleen Shannon, MD

http://www.hdsa.org/images/content/1/7/17138/alternative medicinefinal.pdf

 

Ethical Issues

Family Planning

Katie Plunkett, MS and Cheryl Erwin, JD

 

Youth, Teens and Young Adults

How Youth and Young Adults Can Make a Difference

BJ Viau

 

Juvenile Onset HD

Special Needs Planning

MetLife Center for Special Needs Planning

Robert J. Westbrook, CLU, ChFC, CFP® and Donna M. Stefans Esq

 

HDSA RESEARCH

Potential New Therapies

Moderator: Jang-Ho Cha, MD, PhD

Panelists: Beth Hoffman, PhD – Vertex

Adriana Prundean, MD – Raptor

Holly Kordasiewicz, PhD - Isis

 

HDSA Field Leadership

HDSA Clinical Trials Diplomat Training

Sam Frank, MD

 

Behavior, Cognition and Movement and HD

How to Communicate with Your Healthcare Provider

Moderator; Donna Munic-Miller, PhD

Panel: Victor Sung, MD and Lorin Scher, MD

http://www.hdsa.org/images/content/1/7/17146/how to communicate w ur healthcare provider.pdf

 

Ethical Issues

Psychological Consequences of a Negative Test Result

Carol Manning, PhD

http://www.hdsa.org/images/content/1/7/17228/HD Consequences of a Negative Test Result - HDSA 2012.pdf

All Attendees

Questions to Ask when Looking for a Long Term Care Facility

Rebecca Ferrini, MD and Anthony Lechich, MD

http://www.hdsa.org/images/content/1/7/17190/HDSA LTC presentation semifinal.pdf

HDSA RESEARCH

More Hope, Less Hype: Understanding HD Science News

Jeff Carroll, PhD and Ed Wild, PhD

 

HDSA Field

Leadership

Raising Awareness About Your HDSA Events Through Media