Living With HD National Convention Past Presentations 2009 Presentations

2009 Convention Presentations:


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Focus on the Family Care Forum:
Decision Making in HD - Randi Jones, Ph.D.
Caregiver Strategies - Marsha Miller, Ph.D.

Frequently Asked Questions of Social Workers at An HD Center of Excellence - Anne Leserman, MSW, LISW

Questions Asked of Clinicians Across the HD Disease Trajectory - Randi Jones. Ph.D.

Therapeutic Use of Supplements and Alternative Therapies - Sam
Frank, M.D.

 

Research Forum:
Movement Disorders Associated with HD - Christopher Ross, M.D., Ph.D.
Clinical Research Update - Joseph Giuliano, Ph.D.
Coalition for the Cure Research Update - Mary MacDonald, Ph.D.

 

HD 411: An Introduction to HD - Sam Frank, M.D.

Progression of HD - Sam Frank, M.D.

 

Hospice/Palliative Care - Roseanne Berry, MS, RN

 

Genetic Information Nondiscrimination Act - GINA and What it Means for You - Cheryl Erwin, J.D., Ph.D.

 

Genetic Issues - Katherine Hunt, MS, CGC

 

HD 101 - Holly Shill, M.D.

 

Fundraising Ideas

 

Advocating for HR 678

Team Hope Walk for HD - Jana Wilcox

Board/Chapter Development and Future Leadership - Richard Male

 

JHD - Educational Options - Rita Kenison and Marta Urbina
     Handouts: 
     Accommodations for Chronic Illness
     AAP's Emergency Information Form for Children with Special Needs
     Chart 504 IDEA - ADA
     PCH Rec Accommodations

     Positive Behavior Plan PACER
     School Accommodations and Modifications FAPE - 27
     Special Ed Process Chart Alliance

 

Chapter Treasurer's Supplemental Training - Joe DiSibio

Wellness - Walter Nieri, M.D.

Share the Care - Jane Barton, MTS, MASM (Handouts Only)
     Handouts:
     100+ Ways to Support Caregivers
     Resources 2009
     Share the Care Information for Community
     STC Flow Chart
     STC Role Descriptions
     Team Caring Handout
     Welcome to Holland

To Test or Not to Test - Katherine Hunt, MS, CGC

Meds for Early/Mid Stage HD - Vicki Wheelock, M.D.

Clinical Trials and COHORT - Vicki Wheelock, M.D.

Clinical Research in HD - Vicki Wheelock, M.D.

Safety in Clinical Trials - John Caviness, M.D.

Juvenile Onset Huntington's Disease 2009 - Jane Paulsen, Ph.D.

 

2008 Convention Presentations