Living With HD
- HD Care
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- Live From Jacksonville, FL
- 28th Annual Convention June 21-23, 2013 Jacksonville, FL
- HDSA Convention Sponsors
- Past Presentations
- Clinical Research Initiative
- 2010 Convention Videos
- HDSA 26th Annual National Convention 2011
- HDSA Forum
- Wall of Remembrance
2009 Convention Presentations:
(You will need Adobe Acrobat to view these presentations.)
Frequently Asked Questions of Social Workers at An HD Center of Excellence - Anne Leserman, MSW, LISW
Questions Asked of Clinicians Across the HD Disease Trajectory - Randi Jones. Ph.D.
Therapeutic Use of Supplements and Alternative Therapies - Sam
Hospice/Palliative Care - Roseanne Berry, MS, RN
Genetic Information Nondiscrimination Act - GINA and What it Means for You - Cheryl Erwin, J.D., Ph.D.
Genetic Issues - Katherine Hunt, MS, CGC
HD 101 - Holly Shill, M.D.
JHD - Educational Options - Rita Kenison and Marta Urbina
Accommodations for Chronic Illness
AAP's Emergency Information Form for Children with Special Needs
Chart 504 IDEA - ADA
PCH Rec Accommodations
Chapter Treasurer's Supplemental Training - Joe DiSibio
Wellness - Walter Nieri, M.D.
Share the Care - Jane Barton, MTS, MASM (Handouts Only)
100+ Ways to Support Caregivers
Share the Care Information for Community
STC Flow Chart
STC Role Descriptions
Team Caring Handout
Welcome to Holland
To Test or Not to Test - Katherine Hunt, MS, CGC
Meds for Early/Mid Stage HD - Vicki Wheelock, M.D.
Clinical Trials and COHORT - Vicki Wheelock, M.D.
Clinical Research in HD - Vicki Wheelock, M.D.
Safety in Clinical Trials - John Caviness, M.D.
Juvenile Onset Huntington's Disease 2009 - Jane Paulsen, Ph.D.