Note: Information is maintained for informational purposes only. Inclusion in the Resource Directory does not constitute endorsement by HDSA.
Assistive Technology Resources
ASSISTIVE TECHNOLOGY RESOURCES
Alternative Financing Programs
Alternative financing progrms offer financing for the purchase of assistive technology by people with disabilities. These programs provide loans at more favorable terms than you might find at at traditional lender.
AbilityHub
This web site provides information on adaptive equipment and alternative methods that aid individuals with disabilities or health conditions in accessing computers.
ABLEDATA
ABLEDATA provides extensive information about assistive technology products and rehabilitation equipment available both in the United States as well as internationally. While they do not sell products themselves, they are able to aid buyers in locating companies that do.
Assistivetech.net
This site offers information on assistive technology, as well as a database to aid in finding vendors and products for individuals with disabilities.
The Center for Assistive Technology & Environmental Access (CATEA)
CATEA focuses on assistive technology, promoting accessible environments, and barrier-free education. Their search function allows users to easily find the equipment most useful for them. They also link to a number of other organizations that may be useful.
National Assistive Technology Technical Assistance Project
Sponsored by RESNA, this organization's mission is to reduce barriers by increasing access to assistive technology for individuals with disabilities. This site also has information on funding assistive technology, as well as universal design.
Center for Personal Assistance Services
The Center for Personal Assistance Services offers a wealth of information on personal assistance services (i.e. assistance in the home and at work in completing daily tasks) in the United States, as well as a searchable by state feature that enables users to gain additional information on disability services in their state.
Families USA - The Medicaid Clearinghouse
Families USA is a nonprofit organization that provides not only extensive information on Medicaid, but works on a variety of levels to ensure high-quality and inexpensive healthcare for all Americans.
National Family Caregivers Association (NFCA)
The mission of NFCA is to empower and enable family caregivers to act on behalf of themselves and their loved ones while advancing the principles of health and well being. This is accomplished through the provision of links to numerous organizations and programs designed to aid family members and professionals in caring for individuals with disabilities.
NeedyMeds
This site offers a list of pharmaceutical programs and organizations that can assist individuals in buying medications they cannot afford.
American Association of People with Disabilities (AAPD)
AAPD continually updates their website with the latest news and information on issues that affect those with disabilities.
National Organization of Social Security Claimants' Representatives (NOSSCR)
This page has a FAQ on Social Security as well as information on attorneys and paralegals that represent Social Security and Supplemental Security Income claimants.
Adult Day Care Finder
Offered in community centers and through some senior programs, Adult Day Care provides social, recreational, meals, and sometimes transportation services.
This tool has detailed information about every Medicare and Medicaid-certified nursing home in the country.
The National Respite Locator
The National Respite Locator Service helps parents, caregivers, and professionals find respite services in their state and local area to match their specific needs
Nursing Home Locator
This tool provides ratings, detailed reports, graphics and analysis of every Medicare and Medicaid certified Nursing Home in the USA.
Centers for Medicare and Medicaid Services
This government site provides information on Medicaid waiver programs by state, low cost health insurance, regulations and guidelines, research and statistics and Medicare.
GovBenefits.gov is a partnership of Federal agencies with a shared vision - to provide improved, personalized access to government assistance programs.
State and Local Government Internet
State and Local Government on the Net is a frequently updated directory of links to government sponsored and controlled resources on the Internet. The directory provides convenient one-stop access to the websites of thousands of state agencies and city and county governments.
CHDI Foundation
CHDI is a private, not-for-profit research organization that works with an international network of scientists to discover drugs that slow the progression or delay the onset of Huntington's disease.
HDTrials.org has been created to enable clinical trial participation, the HDTrials.org web site will provide quick notification to Huntington families of opportunities for participation in clinical trials and studies through a confidential email list.
Huntington's Disease Lighthouse
The HDLighthouse mission is to present and explain the latest research findings so that HD families can become proactive in their care, have hope for the future, and make good decisions in the present.
Huntington's Disease Advocacy Center
This site's goal is to find answers for the numerous questions that pHDs and those who give care to pHDs face. They discuss it's effect on those who've inherited the disease, and to try to supplement the information that your neurologist, physician, or psychiatrist provides to you regarding HD. They also provide a forum for those who have offered to share their experiences regarding issues that simply don't have "answers" but rather options to be considered such as feeding tubes, nursing home placement and the like.
Huntington's Disease Drug Works
HDDW's single goal: the earliest possible therapeutic benefit is correctly identified and used in individuals of this generation of Huntington's people. Make sure to read about the trial agents.
The Hereditary Disease Foundation
The Hereditary Disease Foundation sponsors workshops, grants, fellowships, and targeted research contracts to solve the mysteries of genetic disease and develop new treatments and cures.
National Research Roster for Huntington's Disease Patients and Families
The Roster is a unique nationwide information resource dedicated to assisting scientific research on Huntington's disease. The Roster computerizes the names of families, including information about the history of HD in the family (family trees) and other related data. This information identifies HD patients and families who are interested in participating in research project.
Stanford Hopes
HOPES is a student-run project at Stanford University dedicated to making scientific information about Huntington's disease more readily accessible to patients and the public.
Centers for Medicare and Medicaid Services
This government site provides information on Medicaid waiver programs by state, low cost health insurance, regulations and guidelines, research and statistics and Medicare.
Families USA - The Medicaid Clearinghouse
Families USA is a nonprofit organization that provides not only extensive information on Medicaid, but works on a variety of levels to ensure high-quality and inexpensive healthcare for all Americans.
Medline
National Library of Medicine sponsors Medlineplus, a popular health information site.
National Organization for Rare Disorders (NORD)
NORD is a nonprofit organization that has an extensive database, a library of links, free booklets for physicians and more as they work towards the identification, treatment and cure of rare disorders.
NeedyMeds
This site offers a list of pharmaceutical programs and organizations that can assist individuals in buying medications they cannot afford.
WeMove
WeMove has extensive information on movement disorders including a discussion board, information on meetings, and research updates.
AMS Vans
AMS Vans has listings of adapted vans which are sold at wholesale prices. Rear and side entry accessible vehicles available, and front door delivery available nationwide.
National Financial Resources Guidebook for Patients
The Patient Advocate Foundation's National Financial Resources Guidebook is a Directory of information for patients seeking financial relief for a broad range of needs including housing, utilities, food, transportation to medical treatment, and children's resources.