Caregivers


Publications for Download

Caregiver's Corner (Webinars)

 

Huntington's Disease is a disease that affects entire families, not just the person with HD. This is particularly true of the person(s) who become caregivers. You become responsible for helping your loved one face the basic responsibilities that he or she previously handled by themselves.

 

Caring for a person with Huntington's Disease is a monumental task. You will work with a variety of professionals: doctors, nurses, social workers, rehabilitation therapists, psychologists and other specialists. The better your understanding of how HD progresses and how it affects a person with HD's mood, thinking and movement, the better you can help affect his or her life in a very positive manner.

 

If you have questions, or need further information, please contact Jane Kogan, 212 242-1968 ext. 226, jkogan@hdsa.org

 

Publications for Download

Caregiving

A Caregiver's Handbook for Advanced-Stage Huntington's Disease

Huntington's Disease at Mid-Stage

Nursing Approaches for Clients with Huntington's Disease

Long Term Care: A Guide for Families

HD Care Kit

 

Clinical Care

A Physician's Guide to the Management of Huntington's Disease (2nd Edition)

 

HDSA Family Guide Series

Coping with Speech and Swallowing Difficulties in Huntington's Disease

Huntington's Disease: A Guide for Families

Juvenile HD: A Guide for Families

Long Term Care: A Guide for Families

Nutrition and Huntington's Disease: A Guide for Families

Physical and Occupational Therapy for Huntington's Disease

Understanding Behavior in Huntington's Disease

 

Personal and Family Issues

Telling the Children
Suicide and Huntington's Disease
Huntington's Chorea: Its Impact on the Spouse