Living With HD
- Stages Of HD
- Living At Risk
- Juvenile HD
- HDSA Chapters
- Caregiver's Corner (Webinars)
- Lunch & Learn (Webinars)
- Ask the Social Worker
- Treatment Guidelines for Huntington's disease
- Long Term Care
- Physician's Guide to the Management of HD - 3rd Edition
- HDSA Concerns with AAN Chorea Treatment Recommendations
- Healthcare Marketplaces
- Equipment Board
- Advance Planning
- Community Services
- Annual Convention
Huntington's disease is a disease that affects entire families, not just the person with HD. This is particularly true of the person(s) who become caregivers. You become responsible for helping your loved one face the basic responsibilities that he or she previously handled by themselves.
Caring for a person with Huntington's disease is a monumental task. You will work with a variety of professionals: doctors, nurses, social workers, rehabilitation therapists, psychologists and other specialists. The better your understanding of how HD progresses and how it affects a person with HD's mood, thinking and movement, the better you can help your loved one.
If you have questions or need further information, please contact the HDSA National Helpline at (888) HDSA-506 or via e-mail at firstname.lastname@example.org.
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