Caregivers
Huntington's Disease is a disease that affects entire families, not just the person with HD. This is particularly true of the person(s) who become caregivers. You become responsible for helping your loved one face the basic responsibilities that he or she previously handled by themselves.
Caring for a person with Huntington's Disease is a monumental task. You will work with a variety of professionals: doctors, nurses, social workers, rehabilitation therapists, psychologists and other specialists. The better your understanding of how HD progresses and how it affects a person with HD's mood, thinking and movement, the better you can help affect his or her life in a very positive manner.
If you have questions, or need further information, please contact Jane Kogan, 212 242-1968 ext. 226, jkogan@hdsa.org
Behavior
Behavioral and Sexual Problems in Huntington's Disease
Understanding Behavior in Huntington's Disease
Caregiving
A Caregiver's Handbook for Advanced-Stage Huntington's Disease
Huntington's Disease at Mid-Stage
Nursing Approaches for Clients with Huntington's Disease
Long Term Care: A Guide for Families
Clinical Care
A Physician's Guide to the Management of Huntington's Disease (2nd Edition)
HDSA Family Guide Series
Coping with Speech and Swallowing Difficulties in Huntington's Disease
Huntington's Disease: A Guide for Families
Long Term Care: A Guide for Families
Nutrition and Huntington's Disease: A Guide for Families
Physical and Occupational Therapy for Huntington's Disease
Understanding Behavior in Huntington's Disease
Juvenile HD
Family Guide Series for Juvenile Onset HD
The Juvenile HD Handbook: A Guide for Families and Caregivers
The Juvenile Onset HD Resource Directory
Nutrition and Swallowing
Coping with Speech and Swallowing Difficulties in Huntington's Disease
Managing Swallowing Difficulties Associated with HD
Nutrition and Huntington's Disease: A Guide for Families
Nutrition Intervention in Huntington's Disease
Occupational Therapy
Occupational Therapy in Huntington's Disease
Physical and Occupational Therapy for Huntington's Disease: A Guide for Families
Personal and Family Issues
Telling the Children
Suicide and Huntington's Disease
Huntington's Chorea: Its Impact on the Spouse
Physical Therapy
Physiotherapy for Huntington's Disease Patients
A Physical Therapy Program for HD Patients
Spanish Publications
Enfermedad de Huntington: un camino a la Esperanza
17 pages, Spanish, Asociacion de Corea de Huntington Espanola (ACHE)
Que es la Enfermedad de Huntington? Una guia para ninos (entre 8 y 14 anos)
9 pages, Spanish, Asociacion de Corea de Huntington Espanola (ACHE)
Problemas de conducta en la enfermeda de Huntington
90 pages, Dr. Jane Paulsen, Spanish, Asociacion de Corea de Huntington Espanola (ACHE)
Huntington: Toda Una Historia, 119 pages, Spanish
Portuguese Publications
Doenca de Huntington: Nao ihe toca a si...mas toca a todas, 3 Pages, Portuguese, Associacao Portuguesa de Doentes de Huntington (APDH)