Huntington's disease is a disease that affects entire families, not just the person with HD. This is particularly true of the person(s) who become caregivers. You become responsible for helping your loved one face the basic responsibilities that he or she previously handled by themselves.

Caring for a person with Huntington's disease is a monumental task. You will work with a variety of professionals: doctors, nurses, social workers, rehabilitation therapists, psychologists and other specialists. The better your understanding of how HD progresses and how it affects a person with HD's mood, thinking and movement, the better you can help your loved one.

If you have questions or need further information, please contact the HDSA National Helpline at (888) HDSA-506 or via e-mail at

Frequently Used Links

Caregiver's Corner (Webinars)

Publications (For Download & Purchase)