Caregivers
Huntington's Disease is a disease that affects entire families, not just the person with HD. This is particularly true of the person(s) who become caregivers. You become responsible for helping your loved one face the basic responsibilities that he or she previously handled by themselves.
Caring for a person with Huntington's Disease is a monumental task. You will work with a variety of professionals: doctors, nurses, social workers, rehabilitation therapists, psychologists and other specialists. The better your understanding of how HD progresses and how it affects a person with HD's mood, thinking and movement, the better you can help affect his or her life in a very positive manner.
In this family care section you will find medical and non-medical resources that will enable you to improve the quality of life for your loved one. If you have questions, or need further information, please contact Sean Luis, 212 242-1968 ext. 226, sluis@hdsa.org.