Huntington's Disease is an illness that affects the entire family -- not just the person with HD. In this section you will find information on the progression and stages of the disease as well as local resources for the entire family: From HDSA Centers of Excellence, to Social Workers, Caregiver resources, Publications, and other valuable information.


In this family care section you will find medical and non-medical resources that will enable you to improve the quality of life for your loved one. If you have questions, or need further information, please contact Seth J. Meyer at 212-242-1968 ext. 240 or via e-mail at

Stages of HD
Living at Risk
Genetic Testing Centers
Juvenile HD 
Caregiver Information
Equipment Board 
Caregiver's Corner (Webinars)
Ask the Social Worker
Treatment Guidelines for Huntington's Disease
Long Term Care