Send Us Your Story
We often hear from people new to the HDSA Community that the stories of how other individuals and families have coped with the knowledge that they are at risk, or that a family member has become symptomatic with HD.
So we would like you to send us your story - how you you face the difficulties of the disease as a person with HD, a person at risk, a caregiver or family member. Tell us what you do to make it through the day, to improve the quality of life of a loved one.
Please send us photos, and videos to feature on the website as well.
Email your story (300-400 words please) and any photos or videos to: Mystory@hdsa.org
or mail it to: My Story
HDSA
505 Eighth Avenue
Suite 902
New York, NY 10018