The Huntington's Disease Parity Act  has been re-introduced in the House as HR 718, and introduced in the Senate as S. 648.

We need the continued help of our grassroots advocates to re-enlist everyone who cosponsored last year! Go to www.hdsa.org/takeaction to personalize a letter to Congress.

 

 HDSA Advocacy Toolkit Click for documents you can download.

Join HDSA Advocacy on Facebook to keep up with the latest in HDSA Advocacy.

 

List of HR 718 Sponsors/Cosponsors
List of S. 648 Sponsors/Cosponsors
Click above links for a list of Representatives and Senators who are cosponsoring the Huntington's Disease Parity Act. Then, contact Congress at www.hdsa.org/takeaction!



Huntington's Disease Parity Act Advocacy Toolkit


Featured Document:

 Tips for a Successful Meeting: This document outlines how you can meet with Congress locally about the Huntington’s Disease Parity Act, as well as what to say in your meeting.

HD Parity Act Myths vs. Facts  This revised handout features an overview of what HDSA and advocates are hearing from Congress

 

H.R. 718: Click here to download a copy of the House Bill

 

S. 648: Click here to download a copy of the Senate Bill

 

House Dear Colleague Letter: This is a letter from the Congressmen Brian Bilbray and Bob Filner, our House Champions, that was circulated through the House asking for support from their fellow Congress Members.

 

Senate Dear Colleague: This is the letter from Senator Kirsten Gillibrand, or Senate Champion, that was circulated through the Senate.

 

Costs Associated with the Huntington’s Disease Parity Act:  This document provides an estimate of the costs associated with the Huntington’s Disease Parity Act using Congressional Budget Office (CBO) criteria.

 

Huntington’s Disease Parity Act Fact Sheet: This document is brief overview of the difficulties people with HD face when applying for SSDI and receiving Medicare that explains the need for the Huntington’s Disease Parity Act.