Calling All Advocates! March 18th is National Call in Day for HD
HDSA Advocacy Toolkit Click here for documents you can download.
Let's make 2010 a landmark year for HD Advocacy! Take 2 minutes right now to personalize a letter to your Representative. If your Rep is on board, then take a minute to contact your Senators.
List of current Sponsors/Co-sponsors
Click above link for list of current Sponsors/Co-Sponsors.
Did visit your Rep you over the President's Day Recess?
Email me to tell me how it went!
The next Congressional Recess will be March 29-April 12. Contact me if you are interested in scheduling a home office visit.
Featured Document:
What You May Hear From Your Representative and How To Respond
This handout discusses some common responses that you may get from your Congressman, and gives advice on what to do in each situation.
Click here to Tell a friend and grow our grassroots HD movement.
Join HDSA Advocacy on Facebook to keep up with the latest in HDSA Advocacy.
HR 678 Advocacy Toolkit
A brief overview of the difficulties people with HD face when applying for SSDI and receiving Medicare. This is meant to prepare you for the visit and some questions your Representative may ask you.
This is a brief guide that you can print out to have talking points about HR 678.
Instructions on how to set up and conduct a home office visit with your Representatives to educate them about HD and what they can do to help.
This is a letter from the Congressmen Brian Bilbray and Bob Filner, the bill's original sponsors that was circulated through the House asking for support from their fellow Congress Members.
H.R. 678
This is a copy of HR 678: The Huntington's Disease Parity Act.
Sample Letter
This is a letter that you can personalize about HR 678. Be sure to address, date, and sign this letter before printing.