Let's make 2010 a landmark year for HD Advocacy! Take 2 minutes right now to Personalize a letter to your Representative. If your Rep is on board, then take a minute to contact your Senators. Keep up with everything by joining the HDSA Action E-List!
List of current Sponsors/Co-sponsors
Click above link for list of current Sponsors/Co-Sponsors.
The next District Work Period will take place from August 9-September 12
Contact me if you are interested in scheduling a home office visit.
Calling All Advocates! It's not too late to call on Congress. Click here to make your call
HDSA Advocacy Toolkit Click for documents you can download.
Featured Document:
This handout discusses the four most common misperceptions regarding the Huntington's Disease Parity Act, and provides talking points to respond.
Click here to tell a friend and grow our grassroots HD movement.
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HR 678 Advocacy Toolkit
A brief overview of the difficulties people with HD face when applying for SSDI and receiving Medicare. This is meant to prepare you for the visit and some questions your Representative may ask you.
This is a brief guide that you can print out to have talking points about HR 678.
What You May Hear From Your Representative and How To Respond
This handout discusses some common responses that you may get from your Congressman, and gives advice on what to do in each situation.
Instructions on how to set up and conduct a home office visit with your Representatives to educate them about HD and what they can do to help.
This is a letter from the Congressmen Brian Bilbray and Bob Filner, the bill's original sponsors that was circulated through the House asking for support from their fellow Congress Members.
H.R. 678
This is a copy of HR 678: The Huntington's Disease Parity Act.
Sample Letter
This is a letter that you can personalize about HR 678. Be sure to address, date, and sign this letter before printing.