Sign Up

Become an HDSA Advocate!

HDSA Advocacy Terms and Conditions

To maximize our effectiveness, we need to speak "with one voice" when advocating 
the positions of HDSA. When acting as an HDSA advocate (rather than as an individual 
constituent), it is important that you agree to the following terms and conditions:

.        I agree to use the materials, including sample letters sent by HDSA, as they 
are intended and will not make changes in the content of any materials provided 
other than to insert information where indicated by HDSA.


.        I agree to promote only the positions on which HDSA has an official policy 
including current treatments and experimental therapies, experimental surgical 
treatments, stem cell research, animal research and therapeutic cloning. 
Copies of HDSA's official positions are available upon request.


.        I agree that I will not use HDSA's internet-based advocacy tool to voice opinions 
other than those supported by HDSA. Should I have an opinion on a topic on which 
HDSA has no position or if I disagree with the HDSA position, I will contact my 
elected official through other means including emailing through that elected 
representative's official website.


.        I agree that I will identify myself as an HDSA advocate only when supporting legislation 
or an action promoted by HDSA. I will not identify myself as an HDSA advocate for my personal opinions that may not be supported by HDSA.


.        I understand that to be an HDSA advocate, I must reside in the United States.

Your voice can make a difference in Congress! With the assistance of AstraZeneca 
Pharmaceuticals, HDSA has a nationwide network of advocates who will help educate 
public policy makers about issues of importance to the HD community, such as NIH 
funding for HD research, health insurance coverage issues, and genetic privacy and 
discrimination. This year's goal: an HDSA Advocate in every congressional district in 
the country! 

I have read the terms and conditions for being an HDSA advocate and agree to adhere 
to each of the terms above.