Living With HD Advocacy

Advocacy

The Huntington’s Disease Parity Act of 2013: H.R. 1015/S. 723

Raise Your Voice for HD! Click on the link to take action

Learn More Click on the link to learn about the challenges that individuals with HD currently experience when applying for Disability, and waiting for their healthcare during the Medicare Waiting Period.

Cosponsors of H.R. 1015 Click here to see who is cosponsoring the Huntington’s Disease Parity Act in the House

Cosponsors of S. 723 Click here to see who is cosponsoring the Huntington’s Disease Parity Act in the Senate

 HDSA Advocacy Toolkit Click for documents you can download.

Voices of HD Click to read stories about individuals who are speaking up for HD.


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Insurance Marketplaces & Essential Health Benefits Click on the link to learn more about Healthcare Reform implementation and advocacy opportunities to speak up for HD care as part of the Federally-mandated Essential Health Benefits package.



Huntington's Disease Parity Act Advocacy Toolkit


Featured Document:

 Tips for a Successful Meeting: This document outlines how you can meet with Congress locally about the Huntington’s Disease Parity Act, as well as what to say in your meeting.

Myths vs. Facts: Huntington’s Disease Parity Act This revised handout features an overview of what HDSA and advocates are hearing from Congress

HR 1015: Click here to download a copy of the House Bill

Dear Colleague Letter: Cosponsors
Click here to read the Dear Colleague letter that was sent to cosponsors of The Huntington’s Disease Parity Act of 2011

Click here to read the Dear Colleague letter.

Costs Associated with the Huntington’s Disease Parity Act:  This document provides an estimate of the costs associated with the Huntington’s Disease Parity Act using Congressional Budget Office (CBO) criteria.

Huntington’s Disease Parity Act Fact Sheet: This document is brief overview of the need for the Huntington’s Disease Parity Act.