Sign the HD Petition!

One of our advocacy objectives is to improve how people with Huntington's Disease are evaluated for Social Security Disability benefits.  Currently, the Social Security Administration (SSA) is using outdated information when evaluating people with HD for benefits.  This lack of understanding has resulted in countless delays and denials for HD families already in great need.  We need your help to show Congress that the HD community wants a solution.

The first step is easy: Show Your Support!

In choosing to advocate on behalf of the HD community, we ask you to please take a moment to review
HDSA’s Terms and Conditions to ensure that we speak "with one voice" and maximize our effectiveness with legislators.  As we move forward it will be important that any communications sent on behalf of HDSA or through our web site are not altered to promote any unapproved position or issue. If you agree to these terms and want to help bring about change in the SSA for HD families, please

SIGN THE HD PETITION!

Nearly 30,000 Americans are affected by Huntington’s Disease, a devastating genetic brain disorder for which there is currently no cure or effective treatment.  Due to its progressively debilitating nature, each person affected with HD will become completely dependent upon others.  People with HD are routinely denied disability insurance by Social Security, and those that qualify must wait two years before receiving Medicare, long after most have lost their employer-provided health insurance.  The compounding effects of these barriers continue to leave many people with HD without the care they desperately need.  We strongly urge policymakers in Washington, DC to change these policies and improve the lives of all people affected by HD.