WELCOME TO OUR ADVOCATE'S CORNER
where HD advocates across the country and on capitol hill share what they've done, why they get involved, and why you should do the same.
Denise Wilders, HDSA Advoacte
"PROUD TO ANNOUNCE...MY EFFORTS PAID OFF! Letters, emails, faxes and phone calls. I contacted Mandy Spears at Congressman BIll Pascrell's office and I received an email on Friday that he co-sponsored. I looked on website this morning and his name was there!"
Kelly Branch, HDSA Advocate
"I am a student nurse who has recently been assigned to a patient with Huntington's Disease. I had never heard of HD until now. My classmates and I are now full speed ahead on a project for school as well as bringing HD awareness to others."
Rep. Brian Bilbray [R-CA]
"Thousands of people across the nation suffer from Huntington's Disease, which hinders their ability to walk, talk and reason. I cosponsored this legislation because it will undoubtedly assist these families in accessing treatments and improve their quality of life."
Misty Oto, HDSA Advocate
"We developed a dream team with a set-up man, a constituent and a closer for our visit. It was effective and successful for us in San Diego. When I explained to Congressman Bob Filner how Huntington's Disease has devastated and is still devastating my life and the lives of others, he was compelled to help. Then a simple emailed letter followed up by a phone call is all it took to get a co-sponsor. I couldn't believe how easy it was. Shocking in fact."
Rep. Bob Filner [D-CA]
"Americans suffering from Huntington's disease (HD) often face a double battle: the fight against their illness and the fight to obtain necessary benefits from Medicare and the Social Security Administration (SSA)... I believe that this legislation will create a system that responds to beneficiary needs. I am grateful to HDSA for bringing these issues to my attention, and I am proud to join your fight for effective treatment and benefits!"
We want to hear from you too!
Share your experiences in advocating for HD here!