HDSA-LA 2010 Membership Meeting Write-Up


HDSA-LA held its 2010 Membership Meeting on July 18th at Northridge Hospital.


The main feature of the program was a presentation by UCLA's Center of Excellence staff including Doctors Perlman, Bordelon and Johnson.


They provided an excellent summary on services available to HD families from the center and an update on the current focus of research towards a cure and a legislative review including HDSA's effort on HR 678.


Chapter President, Peter Lawson provided a summary of the Chapter's 2010 financials, recent events and upcoming fund raisers including the highly anticipated Hoop-a-thon at Pauley Pavilion and the Walk-a-thon in Studio City at CBS Studios.  Peter also made a general call to attendees to consider participating in chapter activities and/or bring friends, families and co-workers to support our cause.


Chapter board member Steve Seekins, and in his capacity as National board member, provided a summary on national level issues and the many accomplishments achieved by Louise Vetter since her tenure as Chief Executive Officer.  Steve also reiterated the exciting progress made on HR 678 and potential for very hopeful news in the near future.


LA Chapter Support Group leader Ed Garza and facilitator Jan Jones discussed the importance of support group meetings for HD patients and families as a vital resource to draw from when dealing with the many challenges HD brings to all.  They also announced the upcoming support group meeting schedule and the planning of a future caregivers retreat.


The program closed with Peter giving a brief summary of the above, thanking all the speakers for their participation and inviting attendees to get acquainted with the presenters and LA board members at the meeting during the social hour that followed immediately thereafter.


Feedback from attendees was excellent and many gathered flyers on upcoming fund raisers, added their name and contact information to our sign-in sheet and said they looked forward to the next membership meeting.


In addition to our appreciation to those who volunteered their time and efforts to make this meeting such a success, we give special thanks to Northridge Hospital for donating the room and equipment and Lundbeck for underwriting the beverages and snacks for the social hour.   


Attached are a few photographs of the event for your enjoyment.


Peter Lawson and Steve Seekins Call the Meeting to Order:



Dr. Pearlman addressed the assembled chapter members


Dr. Arik Johnsons speaks about the Center of Excellence at UCLA


Dr. Bordelon speaks on new developments in HD research