Huntington's Disease Society of America

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To:       The HD Community - Patients, Caregivers, Those at-risk,
            Family, Friends, Social Workers & Medical Personnel

Fr:        Don Barr, Chair of the Strategic Planning Committee
            Louise Vetter, Chief Executive Officer

RE:       Strategic Planning Update & Survey --

             Please participate by June 2

As many of you know, recently the Board of Trustees for the Huntington’s Disease Society of America (HDSA) began a Strategic Planning process which was kicked off officially in March. The goal of the process is to identify the long-term strategic goals that will define and grow the Society’s ability to accomplish its mission: to improve the lives of people with HD and their families.

In the last year, we have made a renewed commitment to communication and transparency.   We have been listening to your suggestions and visions for HDSA and as we engage formal strategic planning, we are very interested in your feedback regarding our activities in our four mission areas – Family Services (aka Care), Research (aka Cure), Advocacy and Education.

Please take a few moments between now and Wednesday, June 2nd to participate in the following online survey http://www.surveymonkey.com/s/6C79SJK to provide your personal perspective on which programs by the Society you consider the highest priority or most important. In each of the four mission areas, you’ll be asked to rank each program from highest to lowest. Additionally, at the end of the survey we’ve provided space for your personal comments on potential new strategies for the Society.

The results of this survey will be used by the Strategic Planning Committee, chaired by Don Barr, Vice Chair of the Board of Trustees, to inform their development of our organization’s long-term directions.

All participation in the survey is anonymous and it is limited to one response per participant. We encourage you to share this survey broadly with your HD community and family so that we can secure the maximum participation and therefore the most representative results. For those who may not have home computers, please encourage them to visit their local library to use community internet access. Everyone’s feedback is important.

Thank you in advance for participating in this survey and for caring enough to help us shape the future of our Society.   We appreciate your dedication and commitment and look forward to touching more lives through the important work of HDSA.