Dear HD Community Member
If you attended the HDSA 25th Annual Convention, one of the many Chapter Education Events, visited the HDSA website or participated in a support group you've heard a lot about the importance of clinical trials and the need for HD community members to make informed choices about participating in clinical trials.
In order to help us identify and understand the ways we can help the design of future clinical trials to be more accessible and "user-friendly" , we are collaborating with the Huntington Study Group, HDDrugworks and other HD researchers, clinicians and family members in the Project AWARE Survey.
Your answers will make it possible for us to gain the critical insight to improve the design of future clinical trials and observational studies, so that participation is easier for our families, and the recruiting process may go more quickly.
We ask that you take the time to go online to
and answers the survey questions.
The survey is completely anonymous.
If you have any questions, please let us know by emailing us at:
Thank you for your assistance in this important process. It's another way you can help bring Help for Today and Hope for Tomorrow to everyone affected by Huntingtons' disease.