On behalf of the HD Community in Indiana, the Board would like to thank everyone who has helped make this a busy summer of fundraising events, especially: 

  • The Hartig Family
  • StopHD
  • The Northern Indiana Team Hope Walk Committee
  • Mike Lewis
  • The Rinkel Family, Greenfield Mill


From a Derby Days event, a day of Cool Cars, a walk in Northern Indiana and Golf, Indiana has had a busy, and successful summer of fundraising events.  But we're not done yet!...the following events are coming up!: 



Tammy L Carrol Memorial Walk for A Cure

Join us on May 17th for the 3rd Annual Tammy Laird Carroll Memorial Walk for a cure for Huntington's Disease. The walk was established in 2012 by Trae Carroll (now an IU Freshman) to honor his mom, and bring awareness and money for research!

Grab some friends, form a team, fundraise and come join us for a fun morning! Don't have a team? No problem! All are welcome!

For more information, please visit our website, or find us on Facebook.

To become an event sponsor, and/or donate goods/services to the silent auction, please contact Melanie Nagy at tammyswalk@gmail.com.

Saturday, May 17th
McCormick's Creek State Park
Sign in 9AM


9801 Fall Creek Rd. #176
Indianapolis, IN 46256



Twitter: @HDWalkBton




4th Annual 2014 HDSA Team Hope Walk & Silent Auction


Saturday, June 7, 2014
Discovery Middle School
10050 Brummitt Road
Granger, IN

Walker Registration

Pre-register: entry into drawing for 2 $10 gift cards to area retailers.

Email: Janet Swindle at swindle@yahoo.com or click here to register.

Register on site: at 9:00 a.m.

Registration is FREE and those who raise $50 or more will receive a free HD Team Hope Walk T-shirt. Be sure to list t-shirt size when registering. In order to be guaranteed a t-shirt and to be entered into the drawing for the gift certificates, you must pre-register by May 3, 2014.

Email: Janet Swindle at swindle@yahoo.com for any questions regarding registration for this event.

Silent Auction

Corporate Sponsors

Please mail your donations to:

Northern Indiana HD Walk/Auction
PO Box 785
Bristol, IN 46507

Checks: should be made out to HDSA Team Hope Walk - Indiana. In the memo section please list Granger Walk if you can. Please do not hold this information until the day of the walk. In order to have their information on the t-shirts, banner and website, we must receive it by May 5, 2014. Please list your team name on the corporate sponsors information sheet so your team can receive credit.

If ANYONE has any donations or any questions corporate or otherwise regarding the silent auction please email: troyerhd@hotmail.com

TLC Canvas for a Cause

A Wine and Canvas Event


Wednesday, June 11, 2014
6:00 - 9:00 p.m.
$45.00 a person

North Diamond Hall
4212 E. Park Ave
Terre Haute, IN 47805

Space is limited so register today!

Basket Raffle
Wine and Light Refreshments will be available
Must be 16 or older to attend

Questions Contact Brittany Van Hook at (812) 239-6643 or 37bvhook@gmail.com

Download Flyer

Proceeds will benefit the Tammy L. Carroll Walk for a Cure and go to the Huntington's Disease Society of America, a 501(c)3 nonprofit for Research and to the HD Center of Excellence at the IU Med Center.

Central Indiana Team Hope Walk & 5k Run


September 6, 2014
Eagle Creek Park

7840 W 56th St.
Indianapolis, IN 46278

Registration at 8:30 AM

Run Begins at 9:30 AM, walk shortly after

Silent Auction & Information Booths

Register Online at http://www.firstgiving.com/hdsa-in/thwindy

Email mtweeks@gmail.com for more information



The Indiana Chapter strongly encourages opportunities to increase awareness and fundraise throughout the year, throughout the entire state.  One way to do so is with the Hearts for Huntington's Program

Do you know me?  

Hello.  My name is Katie Long, I’m 22 years of age and from St. Louis and I am HD gene positive.

The reason I’m writing you is because I believe there is a young person, who you know or associate with, who is as passionate about Huntington’s disease as I am.  We need to find them.  We need them to help us.  I know I speak for myself and many others who carry the gene; we are willing to do anything in our power not to pass along the disease to our children. 

Do you know me?   

 My story with HD began when I was a very young girl. Huntington’s Disease has been around my family for almost as long as I can remember. My Mother is the baby of five older brothers and her oldest brother passed away from HD a little over seven years ago. My Mother and my other Uncle found out they were gene positive about five years ago. Hearing the news that this would be affecting my family directly gave me courage to allow the world to begin to understand what Huntington’s was and what we could do to help find a cure. Before I left for college, at the age of 18 I decided to be tested for HD. I am also gene positive along with my Mother and Uncle. Hearing the news at such a young age has only pushed me harder to find a cure. Recently, I have just completed chemo and radiation for Hodgkin’s Lymphoma and I am blessed to be cancer free. 

Do you know me?   

This is where “Heart’s” comes into place. In 2006, I began “Heart’s for Huntington’s,” selling paper hearts in schools, businesses, restaurants, etc.  Since then, this project has gone nationwide and chapters across the country are selling "hearts" in their communities raising thousands of dollars for Huntington's Disease. Seeing these hearts hanging all over can help one who has never heard of HD be aware and learn, one who is affected my HD find hope and soon find a cure to this devastating disease that is still killing the lives of remarkable people every day. 

 Do you know me?   

Life is so fragile, I feel so lucky for everyday I have. My passion for finding a cure to HD is beyond words and I know there are many who feel as I do.  We need help raising funds for research. We all have voices, we all have our own stories and we all can make an impact and help to live in a world without HD.  

If you are interested in selling hearts in your community, please contact Kristin Turner, Fundraising Chair today at kristinturner17@gmail.com.  She will discuss with you the ways you can help make a difference in the lives of so many.



HD Clinic at IU Health