On behalf of the HD Community in Indiana, the Board would like to thank everyone who has helped make this a busy summer of fundraising events, especially: 

  • The Hartig Family
  • StopHD
  • The Northern Indiana Team Hope Walk Committee
  • Mike Lewis
  • The Rinkel Family, Greenfield Mill


From a Derby Days event, a day of Cool Cars, a walk in Northern Indiana and Golf, Indiana has had a busy, and successful summer of fundraising events.  But we're not done yet!...the following events are coming up!: 

Central Indiana Team Hope Walk & 5k Run


September 6, 2014
Eagle Creek Park

7840 W 56th St.
Indianapolis, IN 46278

Registration at 8:30 AM

Run Begins at 9:30 AM, walk shortly after

Silent Auction & Information Booths

Register Online at http://www.firstgiving.com/hdsa-in/thwindy

Email mtweeks@gmail.com for more information

Tipton City Park Team Hope Walk


October 11. 2014
Tipton City Park

Tipton, IN

Reistration at 10 AM

Walk Beings at 11 AM

Register online at Tipton, IN Team Hope Walk

Email nightonpart@yahoo.com for more information


2014 HDSA Indiana State Conference

Saturday, Oct. 25th, 2014

IU Health Neuroscience Center
355 W. 16th St
Indianapolis, IN 46202

Registration: Noon to 1 PM
Presentations will got from 1 PM to 4:30
Topics will include:
Research Updates
Symptom Management
Support Groups for Caregivers and Gene-positive
Home Health Care Options
The conference and parking are free.


Pre-register by emailing hdsaindiana@gmail.com, or register at the conference




The Indiana Chapter strongly encourages opportunities to increase awareness and fundraise throughout the year, throughout the entire state.  One way to do so is with the Hearts for Huntington's Program

Do you know me?  

Hello.  My name is Katie Long, I’m 22 years of age and from St. Louis and I am HD gene positive.

The reason I’m writing you is because I believe there is a young person, who you know or associate with, who is as passionate about Huntington’s disease as I am.  We need to find them.  We need them to help us.  I know I speak for myself and many others who carry the gene; we are willing to do anything in our power not to pass along the disease to our children. 

Do you know me?   

 My story with HD began when I was a very young girl. Huntington’s Disease has been around my family for almost as long as I can remember. My Mother is the baby of five older brothers and her oldest brother passed away from HD a little over seven years ago. My Mother and my other Uncle found out they were gene positive about five years ago. Hearing the news that this would be affecting my family directly gave me courage to allow the world to begin to understand what Huntington’s was and what we could do to help find a cure. Before I left for college, at the age of 18 I decided to be tested for HD. I am also gene positive along with my Mother and Uncle. Hearing the news at such a young age has only pushed me harder to find a cure. Recently, I have just completed chemo and radiation for Hodgkin’s Lymphoma and I am blessed to be cancer free. 

Do you know me?   

This is where “Heart’s” comes into place. In 2006, I began “Heart’s for Huntington’s,” selling paper hearts in schools, businesses, restaurants, etc.  Since then, this project has gone nationwide and chapters across the country are selling "hearts" in their communities raising thousands of dollars for Huntington's Disease. Seeing these hearts hanging all over can help one who has never heard of HD be aware and learn, one who is affected my HD find hope and soon find a cure to this devastating disease that is still killing the lives of remarkable people every day. 

 Do you know me?   

Life is so fragile, I feel so lucky for everyday I have. My passion for finding a cure to HD is beyond words and I know there are many who feel as I do.  We need help raising funds for research. We all have voices, we all have our own stories and we all can make an impact and help to live in a world without HD.  

If you are interested in selling hearts in your community, please contact Kristin Turner, Fundraising Chair today at kristinturner17@gmail.com.  She will discuss with you the ways you can help make a difference in the lives of so many.



HD Clinic at IU Health