On behalf of the HD Community in Indiana, the Board would like to thank everyone who has helped make this a busy summer of fundraising events, especially: 

  • The Hartig Family
  • StopHD
  • The Northern Indiana Team Hope Walk Committee
  • Mike Lewis
  • The Rinkel Family, Greenfield Mill


From a Derby Days event, a day of Cool Cars, a walk in Northern Indiana and Golf, Indiana has had a busy, and successful summer of fundraising events.  But we're not done yet!...the following events are coming up!: 



Tammy L Carrol Memorial Walk for A Cure

Join us on May 17th for the 3rd Annual Tammy Laird Carroll Memorial Walk for a cure for Huntington's Disease. The walk was established in 2012 by Trae Carroll (now an IU Freshman) to honor his mom, and bring awareness and money for research!

Grab some friends, form a team, fundraise and come join us for a fun morning! Don't have a team? No problem! All are welcome!

For more information, please visit our website, or find us on Facebook.

To become an event sponsor, and/or donate goods/services to the silent auction, please contact Melanie Nagy at tammyswalk@gmail.com.

Saturday, May 17th
McCormick's Creek State Park
Sign in 9AM


9801 Fall Creek Rd. #176
Indianapolis, IN 46256



Twitter: @HDWalkBton



Cornhole anyone? 

The StopHD group will host it's 4th annual Nancy & Sean Irwin Memorial Cornhole Tourney fundraiser to raise money and awareness for Huntington's Disease. All proceeds go to the HDSA Indiana Chapter for HD Research.

The Cornhole tourney will be hosted at Holy Name Catholic Parish, located at 89N. 17th Ave.  Beech Grove, IN  46107. 

The event will start with a "Pool Play". Then teams with winning records will go into Bracket A and teams with losing records will go into Bracket B. Teams are guaranteed to play a minimum of 6 games. Pool play will consist of playing 4 games. Bracket play will be double elimination tourneys. The Top 3 in each Bracket will receive prizes. Prizes are TBD. There will also be a Kids Challenge for ages 13 and under.  The last 3 years winners received 4 Colts tickets. Food, Beer, Jello Shots, Raffles and lots of good people to support a great cause. Join us in our fight to StopHD!! Team registration is $30 per team. If you need a partner, we can pair you up with someone the day of the event. The event is Rain or Shine. We will move into the Gym if raining. Indy Custom Cornhole will be running the event again this year.

To register, for more information or questions, or to find out how you can sponsor this FUN event, please visit www.stophd.org


The StopHD Nancy L. Irwin Memorial Walk for a Cure 

Take a Step to StopHD and join us for the StopHD 7th Annual Nancy L. Irwin Memorial Walk for a Cure.  The course for the family fun walk is 2 MilesWalk more or less, if you wish. Registration is $10 per person, children 5 and under are free!  Registration begins at 9am, the walk will commence at 10am 

The walk will be held at Southeastway Park 5624 South Carroll Road Indianapolis Indiana 46239 Shelter #4. 

Enjoy a day full of food, face painting, door prizes and fun...Together we can StopHD!  For more information, or to register for this event, please visit www.stophd.org.




The Indiana Chapter strongly encourages opportunities to increase awareness and fundraise throughout the year, throughout the entire state.  One way to do so is with the Hearts for Huntington's Program

Do you know me?  

Hello.  My name is Katie Long, I’m 22 years of age and from St. Louis and I am HD gene positive.

The reason I’m writing you is because I believe there is a young person, who you know or associate with, who is as passionate about Huntington’s disease as I am.  We need to find them.  We need them to help us.  I know I speak for myself and many others who carry the gene; we are willing to do anything in our power not to pass along the disease to our children. 

Do you know me?   

 My story with HD began when I was a very young girl. Huntington’s Disease has been around my family for almost as long as I can remember. My Mother is the baby of five older brothers and her oldest brother passed away from HD a little over seven years ago. My Mother and my other Uncle found out they were gene positive about five years ago. Hearing the news that this would be affecting my family directly gave me courage to allow the world to begin to understand what Huntington’s was and what we could do to help find a cure. Before I left for college, at the age of 18 I decided to be tested for HD. I am also gene positive along with my Mother and Uncle. Hearing the news at such a young age has only pushed me harder to find a cure. Recently, I have just completed chemo and radiation for Hodgkin’s Lymphoma and I am blessed to be cancer free. 

Do you know me?   

This is where “Heart’s” comes into place. In 2006, I began “Heart’s for Huntington’s,” selling paper hearts in schools, businesses, restaurants, etc.  Since then, this project has gone nationwide and chapters across the country are selling "hearts" in their communities raising thousands of dollars for Huntington's Disease. Seeing these hearts hanging all over can help one who has never heard of HD be aware and learn, one who is affected my HD find hope and soon find a cure to this devastating disease that is still killing the lives of remarkable people every day. 

 Do you know me?   

Life is so fragile, I feel so lucky for everyday I have. My passion for finding a cure to HD is beyond words and I know there are many who feel as I do.  We need help raising funds for research. We all have voices, we all have our own stories and we all can make an impact and help to live in a world without HD.  

If you are interested in selling hearts in your community, please contact Kristin Turner, Fundraising Chair today at kristinturner17@gmail.com.  She will discuss with you the ways you can help make a difference in the lives of so many.



HD Clinic at IU Health