Illinois Chapter
2013 HDSA Illinois State Conference
March 9, 2013
8:00 am – 3:15 pm
Allgauer’s Hilton Hotel
Chicago Northbrook
2855 Milwaukee Avenue, Northbrook, Illinois 60062
Please join us for a day of outstanding presentations and breakout sessions! Keynote speaker Alice Wexler, PhD, is the author of Mapping Fate: A Memoir of Family, Risk, and Genetic Research (University of California Press, 1995) and the award-winning medical history, The Woman Who Walked Into the Sea: Huntington’s and the Making of a Genetic Disease (Yale University Press, 2008). Dr. Kathleen Shannon, Director of the HD Center of Excellence at Rush University Medical Center, will give an update on the latest research and treatment for Huntington’s. Breakout sessions include: “Who Cares for the Caregiver?”; “Family Planning and HD”; “How To Tell Your Kids About HD”; and “Financial and Legal Planning.” Supervised children’s activities will be provided during both the morning and afternoon for children ages 6 and up.
Sponsored by the Illinois Chapter of the Huntington’s Disease Society of America.
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8-8:45 AM |
Registration, Coffee, Danish, Networking |
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8:45 AM |
Welcome and Introductions
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Daniel Born, PhD
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9 AM
9 – 11 AM
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"HD Stories: How Testimony and Storytelling Can Change Our Lives."
Art Workshop for Children (Ages 6 and up) (Linden 1) |
Alice Wexler, PhD, UCLA Center for the Study of Women
Liz Born, Anna Cuccinotto |
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10 AM |
Break |
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10:15 AM |
Breakout Sessions and Locations - Financial and Legal Planning (Larch) - The Predictive Test: Positive, Negative, and No Testing at All (Birch)
- HD 101: Getting Your Facts Straight (Linden 2)
- Who Cares for the Caregiver? (Laurel) |
Janna Dutton, JD
Jean Morack, ACSW, MSW (moderator), Emily Hodgson, Amy Merkel, LPN, and Angie Vestal
Stacey Barton, MSW, LCSW
Sadie Foster, MA, LCPC
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11 AM |
Break |
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11:10 AM |
Research Update and Clinical Trials |
Dr. Kathleen Shannon, Rush University Medical Center |
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Noon |
Lunch; HDSA Board Update
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Charlotte Rybarczyk, HDSA Illinois Chapter President |
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1 PM
1 – 3:15 PM |
How Do We Live with HD? Stories from the Front Lines (Panel Discussion)
Children’s Activities (Ages 6 and up) (Linden 1) |
Cori Robin, MSW, LCSW (moderator), Liz Born, Ann Terry, Laurie Jacobsen Ulrich
Charlotte Rybarczyk, Anna Cuccinotto |
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2:15 PM |
BREAK |
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2:30 PM |
Breakout Sessions and Locations - Yoga and Balance (Larch) - Family Planning and HD: You Do Have Choices (Birch) - How To Tell Your Kids About HD (Linden 2) - A Journal Workshop for HD (Writers, Bring Your Journals!) (Laurel) |
Amy Merkel, LPN Andria Besser, MS, CGC
Cori Robin, MSW, LCSW
Daniel Born, PhD
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3:15 PM |
Adjourn |
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Directions to the Hilton-Northbrook Chicago
From Downtown Chicago:
90/94 West to O'Hare/Rockford, I-294 North/Milwaukee, WI; Exit at Willow Road. West on Willow Road to Milwaukee, South on Milwaukee 1/2 mile. Hilton Hotel is on left
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From the West:
90 East to I-294 North, exit at Willow Road. West on Willow Road to Milwaukee Avenue, South on Milwaukee, 1/2 mile, Hotel is on left.
From the North:
94 East to I-294 South, exit at Willow Road, West on Willow Road to Milwaukee Avenue, South on Milwaukee, 1/2 mile, Hotel is on left
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From the South:
I-294 North, exit at Willow Road, West on Willow Road to Milwaukee Avenue, South on Milwaukee 1/2 mile. Hotel is on left
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The hotel is located at the intersection of Milwaukee Avenue (Route 21) and Winkelman Road. It is south of Willow Road, north of Lake Avenue, and just west of the Tri-State Tollway. (I-294). If you have questions, please contact conference chair Daniel Born at (773) 896-4327, or email: dankborn@gmail.com