Care and Support
Care and support for our HD affected families throughout Illinois is paramount to the Illinois Chapter’s mission. Care and support come in many different ways. The chapter hosts several support groups as well as offering in-service training sessions for nursing home personnel, for hospice workers, as well as the medical professionals. Please click Support Groups on the navigation bar to the left to find a support group near you. In order to schedule an in-service for your loved one’s nursing home, please contact Rebecca Klein by phone at (630) 443-9876.
Are you willing to be a Caregiver's mentor? If so, click on this link.
SD-809 ER has the same action as tetrabenazine; however all formulations of SD-809 are broken down in the body more slowly than tetrabenazine. The SD-809 ER form also releases the drug more slowly into the body. These differences in break down and release may mean that the drug:
1) may be taken fewer times a day and
2) may improve how well the body reacts to the drug.
I have reached out to some of the other local HDSA contacts and I know that the HSG has sent out communication nationwide to HDSA chapters about this study. We are hoping that you can help us out by giving information out at any HD support groups or events that you attend. We need all the help that we can get with subject recruitment to help learn more about HD and helping to control chorea.
Additionally, there is a link below that has additional information about the study and a slide deck attached.
Please call me with any questions! I look forward to hearing from you and possibly working together on this effort. Thanks!
Lynn Wheeler, MS
Clinical Research Assistant III
Department of Neurology
Medical College of Wisconsin
9200 W. Wisconsin Ave
Milwaukee, WI 53226
Information About the Affordable Care Act
Are you confused about the Affordable Care Act (also known as Obamacare)? Click on this link: http://www2.illinois.gov/gov/healthcarereform/Pages/HealthInsuranceMarketplace.aspx
Also click on this link for checklists, brochures, etc., for health insurance options via marketplace: http://marketplace.cms.gov/getofficialresources/publications-and-articles/publications-and-articles.html