Illinois Chapter Care and Support

Care and Support

Care and support for our HD affected families throughout Illinois is paramount to the Illinois Chapter’s mission.  Care and support come in many different ways.  The chapter hosts several support groups as well as offering in-service training sessions for nursing home personnel, for hospice workers, as well as the medical professionals.  Please click Support Groups  on the navigation bar to the left to find a support group near you.  In order to schedule an in-service for your loved one’s nursing home, please contact Cori Robin by phone at (630) 443-9876 or by email at crobin@hdsa.org.

You may also ask your nursing home director to contact Cori in the same manner.  The Illinois chapter also works hand in hand with Cori, social worker, at the Chicago HDSA Center of Excellence at Rush Medical Center.  Your loved one’s care is our #1 priority!

Message from The Illinois Respite Coalition
Funding is currently available for families in need of emergency respite care for individuals with special needs in Illinois. There is no age limit on the person to be cared for (birth to 100+). The funding for this project is available until September 30, 2012.

 **Special needs may include any disability, any chronic or terminal physical, emotional, cognitive or mental health condition requiring ongoing care and supervision, including Alzheimer’s disease and related disorders, developmental disabilities, and children with special medical needs. Family Caregivers provide unpaid, physical and/or emotional support to a loved one.**

Called the Lifespan Emergency Respite Program, the purpose is to help families with children or adults with special needs deal with an urgent need for respite care in the absence of any other funding source. The program does not provide the particular respite caregiver, although a list of caregivers can be found on the website. There are other rules for eligibility and limits on expenses that are described on the website.
For more information visit the Illinois Respite Coalition website at http://www.illinoisrespite.org/index.php/about_us/  or contact Kelsey Kramer, Illinois Respite Coalition at kkramer@marklund.org or 630-529-2871 x3231

**NEW**

As of June 25, 2013 the Chicago Stroger HD group will be moving to Rush University Medical Center!

 
Join us to meet others battling HD as well as family and friends who are caring for a loved one affected by HD.
We will be meeting the 4th Tuesday of even months 7 P.M. to 8:30 P.M., free of charge in the Tower Resource Center
(Tower, 4th floor, Suite 04527), 1620 W. Harrison Street., Chicago, Illinois.  For more information and to register, please
call 630-443-9876.

·        Provide and receive support from others who are affected by HD

·        Learn about community resources and new research/clinical trials that are continuously working towards a cure

·        Open to all whether you are at-risk, gene positive, currently have HD or are a family or friend of someone with HD

·        Co-sponsored by HDSA Illinois Chapter, Rush Health and Aging and Rush HDSA Center of Excellence

 

Parking is available at the Rush garage on the southeast corner of Paulina and Harrison Streets.  From the 4th floor, follow the signs to the Tower.  Valet parking is available in front of 1620 W. Harrison.  Parking at both of these venues will be validated in full.

 




Do you receive Medicaid from the State of Illinois?  There are two VERY IMPORTANT changes you need to know about:

1.      Keep an eye on your mail for an envelope that asks you to verify your Medicaid eligibility. You will have only TEN DAYS to respond.

 2.      HFS is changing its Medicaid card process. Instead of having a new card every month, you will get ONE CARD FOR A WHOLE YEAR. So you will need to watch for this new card and keep it.

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