Chapter events

The HDSA Iowa Chapter hosts several fun and family-friendly events and fundraisers throughout the year. If you are interested in starting an event in your own community, please email


January 25, 2015

Hoop-A-Thon - Rock Rapids

Central Lyon High School
1105 South Story Street
Rock Rapids, IA 51246

11:30 Lunch
12:30 Shooting Begins - 3:30 PM

Register here:

Contact: Yvette Waagmeester 712.472.2393

Thursday, January 29

"The Lion's Mouth Opens" HD documentary screening

University of Iowa, Chemistry Building, W290 (Auditorium)

Iowa City, IA

Doors open at 6:30 p.m., screening starts at 7 p.m.

Contact: Jamie Parish,, Sean Thompson,

RSVP on Faebook!


March 1st, 2015

Hoop-A-Thon - Ankeny

Crocker Elementary School
2910 SW Applewood St
Ankeny, IA 50023

Time: 1:30 PM - 5:00 PM

Contact: Keith Wesack

 Donate Here:

March 15th, 2015

Hoop-A-Thon - Audubon

Audubon High School
800 3rd Ave
Audubon, IA 50025

Time: 12:00 - 3:00 PM

Contact: Carrie Bauer

 Donate Here:

May 2nd, 2015

Second Annual Iowa Huntington's Disease Family Education Day

Saturday, May 2nd

Holiday Inn Des Moines Airport
6111 Fleur Drive
Des Moines, IA 50321

8:00 a.m. - 3:30 p.m.
Registration & Breakfast start at 8:00 a.m.
Speakers start at 9:00 a.m.

Come together with other HD families and hear from HD experts on the following topics:

  • Treatment options for HD - Dr. John Kamholz
  • Pros & Cons of Taking the HD-Predictive Test - Shawna Feely, Genetic Counselor
  • Nutrition and HD - Nancy Downing, PhD, RN, SANE-A
  • And more!

This event is free to attend, and breakfast and lunch are provided. Discount hotel rooms are available.

RSVP here:

For more information, contact Jamie Parish at 515-478-0244



Saturday, June 21

Burmeister/Eden Golf Tournament

Crestwood Hills Golf Course

Anita, Iowa



Friday, July 11 and Saturday, July 12


Greenfield and Fontanelle, Iowa (various locations)

Website (includes full schedule and information about each event)

This unique fundraising event includes a talent show, live music, a golf tournament at the Greenfield Golf & Country Club, 10K walk/run/bike, dare show and more!


Saturday, July 26

Alive & Well Documentary Screening

Fleur Cinema

Des Moines, Iowa

A screening of the award-winning Huntington's disease documentary "Alive & Well."


Saturday, September 27

Team Hope Walk - Ankeny

Des Moines Area Community College Ankeny Campus

Ankeny, Iowa

9 a.m.

Register for the walk

Contact: Lori Wesack,


Thursday, October 2

"Twitch" HD documentary screening and conversation with film's creator and star Kristen Powers

Seamens Center, Stanley Auditorium, Room 1505

Iowa City, Iowa

Doors open at 6:30 p.m., screening begins at 7 p.m.

Contact: Jamie Parish,, Sean Thompson,

More information

RSVP on Facebook!


Saturday, November 15

Celebration of Hope Dinner

Holiday Inn Des Moines - Airport/Conference Center

Des Moines, Iowa

6-10:30 p.m.

Contact: Christy Walker,, 712-370-3128

More information, sponsorship and purchase tickets





Volunteer for HDSA

Join our group of dedicated volunteers!


Contact the HDSA Iowa Chapter:

phone:  866.248.IAHD (4243)