HDSA Family Funds

 

"Your fight has been an inspiration to all, but we hope your children experience the victory."

 

Make your Donation Work: Choose Cure or Care or both.
Take a Stand Against Huntington's Disease. Progress has been made in the pace of HD research, education & support services.


This has not happened by chance but can be directly attributed to the support from our HD families. As part of their commitment to care and cure, many families have chosen to fight HD by establishing a Family Fund to support a specific program or project.

 

When a family creates their Fund, they take a proactive stand against HD.  They know that 100% of their contributions are used to fund their chosen HDSA program. If a family chooses to support a scientist investigating new treatments for the disease, the family knows that every dollar they give HDSA will go to fund that scientist's work to unlock the puzzle HD poses.

Should a family choose to give to an HDSA education program, they know that every dollar, their entire gift, will be used to educate about the disease.When a family opts to invest in HDSA family services, they can be confident that every dollar will be used to underwrite support for people struggling with HD today.

 

Family Fund donors can see just how powerful their gift can be since they receive reports from scientists and project leaders who receive their support. Families can choose to make an annual commitment to projects in Research, Education, Family Services or any combination of the three.

 

YOU CAN ESTABLISH AN HDSA FAMILY FUND

By combining resources, families can contribute a much larger gift that they could individually. Families can tap into a variety of fundraising methods to support their Family Fund including letter-writing campaigns, hoop-a-thons, their own webpage (through our firstgiving.com* site) or enlisting the support of their employer's matching gift program. The HDSA National Office is happy to provide families with guidelines and suggestions and can assist in developing your fundraising program to support your family fund.

* To create a fundraising page using firstgiving.com please contact Mynelly Perez at (212) 242-1968, ext. 214 or via e-mail at mperez@hdsa.org.

A family fund can be established in a variety of ways:


(See below on ways to support HDSA programs)

  • Become an HDSA Giving Partner with a year investment of $1,000 or more.

Designate 100% of your gift to a specific HDSA-approved programmatic area, such as Research, Education or Family Services (see below). HDSA recognizes our giving partners in the HDSA The Marker magazine and in the HDSA Annual Report.

 

  • Establish an HDSA Family Fund with a yearly investment of $10,000 or more.

Designate 100% of your gift to co-sponsor or partially sponsor a specific HDSA program, receive annual updates from the scientist or program leader, and be recognized as an associate of  the program. Associate Family Funds can be used to co-sponsor HDSA Research Fellowships and partially sponsor HDSA Research Grants, HDSA Coalition for the Cure Grants, HDSA Centers of Excellence and HDSA publications.

 

  • Establish an HDSA Investor Family Fund with a yearly investment of
    $25,000 or more.

Designate 100% of your gift to sponsor or partially sponsor a specific HDSA program, receive annual updates from the scientist or program leader, and be recognized as an investor in the program. Investor Family Funds can be used to co-sponsor HDSA Research Fellowships, HDSA Research Grants, and HDSA publications and can be used to partially sponsor HDSA Coalition for the Cure Grants and HDSA Centers of Excellence.

 

  • Establish an HDSA Partnership Family Fund with a yearly investment of
    $50,000 or more.

Designate 100% of your gift to sponsor or co-sponsor a specific HDSA program, receive annual updates from the scientist or program leader, and be recognized as a partner in the program. Partnership Family Funds can be used to co-sponsor HDSA Research Fellowships, HDSA Research Grants, and HDSA publications. You can also co-sponsor HDSA Coalition for the Cure Grants and HDSA Centers of Excellence.

 

  • Establish an HDSA Benefactor Family Fund with a yearly investment of
    $100,000 or more.

Designate 100% of your gift to sponsor a specific HDSA program, receive regular updates from the scientist or program leader, and be recognized as a benefactor of the program. HDSA Benefactor Family Funds sponsor HDSA Research Fellowships, HDSA Research Grants, and HDSA Coalition for the Cure Grants, HDSA publications and HDSA Centers of Excellence.

 

  • Establish a permanent HDSA Founding Leadership Family Fund with
    an investment of $250,000 or more.

Your gift to HDSA can help ensure the future of an HDSA Research, Education or Family Services program. You will be recognized as a Founding Leader and will be updated regularly as a founder.

For more information about how you can establish an HDSA Family Fund, or for information about other opportunities to battle Huntington's disease, contact HDSA's Chief Executive Officer, Louise Vetter at lvetter@hdsa.org
or contact Leah Donnelly at ldonnelly@hdsa.org.