2014 Education Day- Northwest Chapter


Saturday, May 24, 2014 | 8:00 AM

Institute for Systems Biology
401 Terry Avenue N, Seattle, WA
Free Parking – Enter on Republican St.

$10.00 suggested donation

9:00 – 9:30: Registration
Coffee & rolls served
9:30 – 9:45: Welcome and Chapter Update
Rev. Jim Bridges, President of the Northwest
Chapter of the HDSA
9:45 – 10:00: Center of Excellence Update
Suman Jayadev, M.D. Director of the Center of
Excellence at the University of Washington.
10:00 - 10:30: CYST-HD Clinical Trial
Hopeful results at 18 months: Raptor
Pharmaceuticals (Speaker TBA)
10:30 – 11:00: MRI Biomarker Study Update
Kevin Conley, PhD, University of Washington
11:00 – 11:50: Challenging Behaviors
Arik Johnson, PsyD, UCLA Movement Disorder
Program at UCLA
11:50 - 12:50: Lunch
First Floor Lobby, Complementary Boxed Lunch
12:50- 1:00: Overview of Afternoon Workshops
First Floor Lecture Hall, Lavonne Veatch
Goodman, M.D, Everett Clinic, Chair of
Education Committee, NW Chapter of HDSA

Afternoon Workshops

1:00 – 2:00: Workshop Session 1

1st Floor Auditorium:

Cognitive changes in HD: Suman Jayadev:

M.D, University of Washington Center of Excellence

3rd Floor Room A: Care for the Care-partner: Eric Johnson, PsyD: UCLA  Movement Disorder Program

3rd Floor Room B:

Talking to Kids about HD: Erica Bjorkland, Board Member Northwest HDSA, Regional HDYO representative, and Ian Wallace, MS, CGC, Pullman Regional Hospital

4th Floor Room A:

Management of Later Stages of HD: LaVonne Veatch Goodman, M.D.

Everett Clinic, Chair of Education Committee, Northwest Chapter of HDSA,

and Susan Reynolds, MSW, LICSW, Social Worker at the Neurogenetics Clinic at the University of Washington

2:00 – 3:00: Workshop Session 2

1st Floor Auditorium:

“Ask the Doctors”

Suman Jayadev: M.D, and Marie Davis, M.D. , University of Washington

Center of Excellence

3rd Floor Room A:

High Quality, Affordable PGD for Huntington’s: Michael Opsahl, M.D. POMA Fertility, Kirkland, WA

3rd Floor Room B:

Learn about Northwest clinical studies and trials: Roger Carnes, M.D.,
HDSA Diplomat, and clinical research coordinators from U.W. and Evergreen


4th Floor Room A:
The Proactive Life Style: Prescriptions for Exercise, Quality Sleep and Nutrition: LaVonne Veatch Goodman, M.D.

3:00 – 4:00: Reception
A chance to mingle, meet the presenters, and have some snacks.



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