2013 Long Island Education Day


Sunday, April 07, 2013 | 12:00 PM

Good Samaritan Hospital
Central Islip, NY

Tentative Schedule of Events

12:00 - 12:30     Registration and lunch

12:30 - 12:40     Welcome and Introduction 
Pascal Parker, Lundbeck Representative

12:40 - 1:25        Update on Research   
Andrew Feigin, MD and Clinical Trials Director,
George C. Powell HDSA Center of Excellence at North Shore University Hospital

1:30 - 2:15 Nutrition for HD Mark Gudesblatt, MD
South Shore Neurologic Associates, P.C.

2:15 - 2:30 STRETCH AND BREAK

2:30 - 3:30 Keynote: Hurry Up & Wait! What it Might be Like to Think with HD- Jim Pollard, Supported by CHDI Foundation

3:30 - 3:45 Financial Planning for HD Families

3:45 - 4:00 STRETCH AND BREAK

4:00 - 4:30 HD Advocacy and What You Can Do
Kirby Veevers & & Denise Wilders

4:30 - 5:00 HD Patient Ambassadors
A Personal Perspective on Caring for Someone With HD

5:00pm CLOSING and EVALUATIONS



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