How You Can Help
2013 Long Island Education Day
Good Samaritan Hospital
Central Islip, NY
Tentative Schedule of Events
12:00 - 12:30 Registration and lunch
12:30 - 12:40 Welcome and Introduction
Pascal Parker, Lundbeck Representative
12:40 - 1:25 Update on Research
Andrew Feigin, MD and Clinical Trials Director,
George C. Powell HDSA Center of Excellence at North Shore University Hospital
1:30 - 2:15 Nutrition for HD Mark Gudesblatt, MD
South Shore Neurologic Associates, P.C.
2:15 - 2:30 STRETCH AND BREAK
2:30 - 3:30 Keynote: Hurry Up & Wait! What it Might be Like to Think with HD- Jim Pollard, Supported by CHDI Foundation
3:30 - 3:45 Financial Planning for HD Families
3:45 - 4:00 STRETCH AND BREAK
4:00 - 4:30 HD Advocacy and What You Can Do
Kirby Veevers & & Denise Wilders
4:30 - 5:00 HD Patient Ambassadors
A Personal Perspective on Caring for Someone With HD
5:00pm CLOSING and EVALUATIONS