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HDSA 2nd Legislative Advocacy Day
On April 4, HDSA will be holding the second HDSA Legislative Advocacy Day to educate Congress about HD and generate Congressional support for the Huntington’s Disease Parity Act of 2013, which would improve access to Disability and Medicare benefits for individuals disabled by HD. HDSA will organize the meetings, provide comprehensive training as well as materials, and will follow up on each of the Congressional appointments. HDSA will offer training from 9:30-12:30 at the Washington Court Hotel. Those attending the training will then break into groups to attend Congressional meetings in the afternoon. Each group will have the support of an expert advocate, so if you’ve never met with Congress before, this is a great opportunity to raise your voice for HD.