Upcoming Events

2nd Annual Education Conference

April 5, 2014 | 9:00am
Backus Hospital | 326 Washington St, Norwich, CT
Conference Rooms 1, 2, 3 9AM – 3PM

Continental breakfast and Lunch included

Speakers include:
Jimmy Pollard, HD Advocate, Author and Speaker
Karen Baker, LICSW, HDSA Social Worker
Laura Jean Kokoska, RN CKYI, registered nurse and certified Kundalini yoga and meditation teacher
Debbie Pausig MFT, Certified Clinical Trauma Professional

For more information click here or contact Sue McGann smcgann@hdsa-ct.org or 860-558-8847

This event is sponsored by:
Wireless Zone Foundation for Giving

Hockey Game Benefits HDSA

This is your opportunity to watch the trilling action of AHL Hockey and help support the HDSA. On Sunday, April 13 the HDSA and the Bridgeport Sound Tigers have teamed up for a fundraiser. Save $12 off regular ticket prices. Plus $9 of every ticket sales goes to support the HDSA. Order your tickets today. NO DAY OF GAME ORDERS.

WHEN: Sunday, April 13th | 3:00pm
WHAT: Bridgeport Sound Tigers vs. Springfield Falcons
WHERE: Bridgeport’s Webster Bank Arena
TICKETS: Only $25 per person (Save $12 off face value)
*$9 from each ticket will be donated to HDSA*

Download the ticket entry form here: ticket form

Please return form and payment by April 7th to:
Webster Bank Arena
Attn: Mary Boissonneault
600 Main Street
Bridgeport, CT 06604

Tickets will be left at Will Call | Doors open at 2:00pm
Questions? Please contact Mary Boissonneault at:
Mary.Boissonneault@harboryardse.com | 203.345-4829

9th Annual Maher Family Benefit Dinner | Bantam CT

April 26, 2014 | 5:30-9:30pm
Bantam Fire Department
92 Doyle Road, Bantam CT

The Fred Maher's Family Journey is a benefit dinner fundraising event to help make this the last generation affected by Huntington's Disease.

Ticket Prices:
$35 / person in advance
$15 for chiledren 2-10 years
$40 / person at the door
$325 / 10 person table (advance tickets only)

Call or email to order your tickets today! Contact the Maher Family to secure tickets in advance. You may also visit www.curehd2006.com for more information or to make a general donation.
Order tickets by Phone: 203-241-9216
Order tickets by Email: curehd2006@aol.com

We accept Cash, Check, and Credit Cards.
Make checks payable to "The Fred Maher's Family Journey"
Mail payment to:
Maher Family
PO BOX 580
Sherman, CT 06784
All funds raised will be donated toward the Huntington's Disease research.

Team Hope Walk 2014

September 21, 2014 | 9:00am
Hammonassett Beach State Park | West Beach Pavilions
9:00 am Registration 10:00 am Walk

Catered lunch, DJ, children's activities, raffles. Raise $25 to get a Team Hope T-shirt. T-shirt sponsorships available from $250. Sponsorships of $500+ are highlighted on our national website.

Register, start a team and/or start fundraising: click here

For more information and/or wanting to volunteer to help with the walk contact:
Sue McGann
860 558-8847

Family Education Day / RI

Research, Resources, and Treatments / Patient and Provider Symposium
Rhode Island Chapter

Saturday, April 12, 2014
8:15am to 2:00pm
Ray Conference Center
Butler Hospital 345 Blackstone Blvd.
Providence, RI 02906 Rhode Island
CEU Credits available for Professionals attending!

Register Today 

All participants MUST register by March 31, 2014 – No new registration will be accepted at the door. All participants MUST register prior to event – No new registrations will be accepted at the door.

Early Bird Registration Ends March 15th
Individual Tickets $20
Professional Tickets $30

Registration After March 15th
Individual Tickets $25
Professional Tickets $35

Contacts: Lynn Doyle or Aleta Johnson 401-301-4076 or 401-245-6721 lddoyle@cox.net or aleta_johnson@brown.edu

Hoop-a-thon / MA

32nd Annual Hoop-a-thon
Massachusetts Chapter

Sunday, March 16
11am - 3pm
Free throw competition Raffle, prizes, food, DJ Pledged shooters have 5 minutes to sink as many baskets as they can. We provide the rebounders and scorekeepers. There is also two knockout tournaments for an extra $5.00 per person at 12:30 and 1:30 This fun event is perfect for all ages and all athletic abilities. There is a $5.00 registration fee online or $10.00 at the door.

Click here if you wish to raise funds offline and bring a hardcopy registeration form with you.

Team HOPE Walk / RI

Rhode Island Chapter

Saturday, June 7, 2014
Colt State Park
Bristol, RI / The Bristol Sports Complex
FREE T-Shirt for the First 200 People!
9:00am Registration
10:00am Walk Begins

Register / Start Fundraising Online

Talking Smack with Jackie Mac

Thursday, March 27, 2014
6pm to 10:30pm
Marriott Courtyard
Charles River Ballroom
Memorial Drive Cambridge, MA
Free Parking and all dress codes acceptable. Cocktail reception 6 to 7pm followed by music, dinner, auction, and a very entertaining evening with ESPN analyst, author and "Around the Horn" panelist Jackie MacMullan sharing great stories covering the world of Major league sports. Special guest of honor Jose Valdivieso. Tx $65 per person or table of 10 $600.
Tickets at hdsa.org/talkingsmack
Questions? Virginia Goolkasian 888-554-8102 ex:13 vgoolkasian@hdsa.org

Support Groups

Hamden HD Support Group / CT

Open to all HD Families / Hamdem, CT
The HDSA-CT is pleased to announce a NEW HD support group, all are welcome. The group will meet the 1st Tuesday of EVEN MONTHS, 6:30-8:00pm at 850 Mix Avenue , Hamden, CT, in the Recreational Theatre 1st floor.

Schedule 2014: Coming soon
Time: 6:30-8:00pm
Arden House 850 Mix Avenue, Hamden, CT 06514
Phone (203) 281-3500
Google Map to support group location

Please contact the group facilitator if you plan on attending:
Debbie Pausig, MFT, CCTP
Phone: 203.985.8246
Email: debbiepausig.MFT@gmail.com
Website: www.debbiepausigmft.com

Danbury HD Support Group / CT

Caregivers Only / Danbury, CT
Healing Hearts for Grieving Children and Families Building The HDSA-CT is pleased to announce a NEW caregivers only support group. The group will meet starting January 14, 2013 from 7-8:30pm at 73 Stadley Rough Road, Danbury, CT. Meetings will be held Mondays on the following dates.

Schedule 2014: Coming soon
Time: 7-8:30pm
Healing Hearts for Grieving Children and Families Building
73 Stadley Rough Road Danbury, CT
Google Map to support group location

Please contact the group facilitator if you plan on attending:
Debbie Pausig, MFT, CCTP
Phone: 203.985.8246
Email: debbiepausig.MFT@gmail.com
Website: www.debbiepausigmft.com

Norwich HD Family Support Group / CT

Open to all HD Families / Norwich, CT
We are pleased to announce that a new support group will be held at Backus Hospital, entry level conference room, every 3rd Thursday of the month from 6-7:30pm. This group is open to all HD families; caregivers, at-risk and those with HD. Capacity is 20. There is free parking and the hospital is handicap accessible.
The following is a special message from group leader Deborah Pausig. I would like everyone to think about specific challenges they are facing within the context of HD.  This will generate discussion and provide valuable input for future group meetings and potential guest speakers. I also ask that you to bring names of doctors: neurologists psychiatrists, physicians/ hospitals/nursing homes/ home health care agencies/social workers/counselors//therapists, that you have had good experiences with in regards to HD.  We are trying to build a list of resources in Connecticut for the HD Community.

The 3rd Thursday of every month
6-7:30pm Where:
Backus Hospital, Norwich, Connecticut
Open to all HD families

Schedule 2014: Coming soon
Backus Hospital Entry Level Conference Room
326 Washington Street
Norwich, Connecticut 06360
860-889-8331 Backus Hospital
Google Map to support group location

Please contact the group facilitator if you plan on attending:
Debbie Pausig, MFT, CCTP
Phone: 203.985.8246
Email: debbiepausig.MFT@gmail.com
Website: www.debbiepausigmft.com

Winter Cancellation Policy:

If schools are closed or have an early dismissal due to inclement weather in the town where your support group meets, Danbury, Norwich, Hamden/North Haven, there will be no support group meeting. For those in Danbury and Norwich, I am commuting one hour to your location. Weather in North Haven is often different than yours since I am in Northern New Haven County. If schools are closed or have an early dismissal in North Haven, no matter how the weather is at your location, I will not travel. I spent 25 years in public safety. Unnecessary and non emergency travel in inclement weather conditions prompting cancellations is a hazard not only to your safety but others on the road as well as first responders. School Cancellations can be viewed on WFSB Hartford Channel 3 and WTNH New Haven Channel 8, WVIT Channel 30. The first rule of being a caregiver is to care for yourself. Safety is self care.

About the Connecticut Chapter

Welcome to Connecticut

We are the Connecticut affiliate of the Huntington's Disease Society of America, a national, not-for-profit voluntary health agency. We have three simple goals / help / educate / promote.

We HELP individuals affected by Huntington's Disease and their families through support and services.
We EDUCATE both the public and health care professionals about Huntington's Disease.
We PROMOTE and support research directed at discovering a treatment and ultimately a cure for Huntington's Disease.

If you'd like to get involved with the Connecticut Chapter please contact
Susan McGann
phone / 860-558-8847
email / smcgann@hdsa-ct.org

Brighter Today, Better Tomorrow
While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.