Upcoming Events


Team Hope Walk 2014

September 21, 2014 | 9:00am
Hammonassett Beach State Park | West Beach Pavilions
9:00 am Registration 10:00 am Walk

Catered lunch, DJ, children's activities, raffles. Raise $25 to get a Team Hope T-shirt. T-shirt sponsorships available from $250. Sponsorships of $500+ are highlighted on our national website.

Register, start a team and/or start fundraising: click here

For more information and/or wanting to volunteer to help with the walk contact:
Sue McGann
smcgann@hdsa-ct.org
860 558-8847



Wolfpack Hockey Game Benefits HDSA

Saturday, October 18 at 7pm
This is your opportunity to watch the trilling action of AHL Hockey and help support the HDSA. HDSA FUNDRAISER WITH THE HARTFORD WOLF PACK Saturday, October 18 at 7pm XL Center, Hartford CT

The HDSA and Hartford Wolfpack have joined forces to fight Huntington’s Disease. Please join us for this special fundraising event on Opening Night. Witness all the action up close. This is AHL hockey at its best! Saturday, October 18 at 7pm Youth tickets $12 (twelve and under) Adult tickets $18

Portion from every ticket purchased goes directly to Team Hope Walk fundraising efforts.Order your tickets today. NO DAY OF GAME ORDERS
.

WHEN: Saturday, October 18 at 7pm
WHERE: XL Center, Hartford CT
TICKETS: Youth tickets $12 (twelve and under) Adult tickets $18


ORDER TICKETS: tickets



Woody Sez at Theatreworks

August 15 to Sept. 14, 2014
Hootenannies, 'Woody Sez' At TheaterWorks - "Life's pretty tough," once said Woody Guthrie. "You're lucky if you live through it." The American balladeer had a lot to say and to sing about, and much of it is captured in "Woody Sez," a show that begins previews at Hartford's TheaterWorks on Friday, Aug. 8, opens Aug. 15 and runs through Sept. 14.

Woody Guthrie, America's original folk hero, transformed the folk ballad into a vehicle for social protest and observation. He paved the way for Bob Dylan, Bruce Springsteen, Jeff Tweedy and more. WOODY SEZ is a soul stirring musical event performed by four amazingly talented actor-musicians performing over 25 of his classic songs. Its a joyous, toe-tapping, and heartfelt musical portrait that uses Woody's words and songs to transport the audience through his fascinating and sometimes tragic life. WOODY SEZ captures the heart and spirit of America's great folk troubadour.

For more information visit TheatreWorks


Annual Maher Family Benefit Dinner | Bantam CT

Date TBD | Event is held in April of 2015
Bantam Fire Department
92 Doyle Road, Bantam CT


The Fred Maher's Family Journey is a benefit dinner fundraising event to help make this the last generation affected by Huntington's Disease.

Ticket Prices:
$35 / person in advance
$15 for chiledren 2-10 years
$40 / person at the door
$325 / 10 person table (advance tickets only)

Call or email to order your tickets today! Contact the Maher Family to secure tickets in advance. You may also visit www.curehd2006.com for more information or to make a general donation.
Order tickets by Phone: 203-241-9216
Order tickets by Email: curehd2006@aol.com

We accept Cash, Check, and Credit Cards.
Make checks payable to "The Fred Maher's Family Journey"
Mail payment to:
Maher Family
PO BOX 580
Sherman, CT 06784
All funds raised will be donated toward the Huntington's Disease research.

 


Annual Education Conference

For more information contact Sue McGann smcgann@hdsa-ct.org or 860-558-8847

This event is sponsored by:
Wireless Zone Foundation for Giving


Hoop-a-thon / MA

Annual Hoop-a-thon
Massachusetts Chapter

DATE TBD | Event is held in March 2015

Free throw competition Raffle, prizes, food, DJ Pledged shooters have 5 minutes to sink as many baskets as they can. We provide the rebounders and scorekeepers. There is also two knockout tournaments for an extra $5.00 per person at 12:30 and 1:30 This fun event is perfect for all ages and all athletic abilities. There is a $5.00 registration fee online or $10.00 at the door.

Support Groups

Hamden HD Support Group / CT

Open to all HD Families / Hamdem, CT
The HDSA-CT is pleased to announce a NEW HD support group, all are welcome. The group will meet the 1st Tuesday of EVEN MONTHS, 6:30-8:00pm at 850 Mix Avenue , Hamden, CT, in the Recreational Theatre 1st floor.

Schedule 2014: Coming soon
Time: 6:30-8:00pm
Arden House 850 Mix Avenue, Hamden, CT 06514
Phone (203) 281-3500
Google Map to support group location

Please contact the group facilitator if you plan on attending:
Debbie Pausig, MFT, CCTP
Phone: 203.985.8246
Email: debbiepausig.MFT@gmail.com
Website: www.debbiepausigmft.com


Danbury HD Support Group / CT

Caregivers Only / Danbury, CT
Healing Hearts for Grieving Children and Families Building The HDSA-CT is pleased to announce a NEW caregivers only support group. The group will meet starting January 14, 2013 from 7-8:30pm at 73 Stadley Rough Road, Danbury, CT. Meetings will be held Mondays on the following dates.

Schedule 2014: Coming soon
Time: 7-8:30pm
Healing Hearts for Grieving Children and Families Building
73 Stadley Rough Road Danbury, CT
Google Map to support group location

Please contact the group facilitator if you plan on attending:
Debbie Pausig, MFT, CCTP
Phone: 203.985.8246
Email: debbiepausig.MFT@gmail.com
Website: www.debbiepausigmft.com


Norwich HD Family Support Group / CT

Open to all HD Families / Norwich, CT
We are pleased to announce that a new support group will be held at Backus Hospital, entry level conference room, every 3rd Thursday of the month from 6-7:30pm. This group is open to all HD families; caregivers, at-risk and those with HD. Capacity is 20. There is free parking and the hospital is handicap accessible.
The following is a special message from group leader Deborah Pausig. I would like everyone to think about specific challenges they are facing within the context of HD.  This will generate discussion and provide valuable input for future group meetings and potential guest speakers. I also ask that you to bring names of doctors: neurologists psychiatrists, physicians/ hospitals/nursing homes/ home health care agencies/social workers/counselors//therapists, that you have had good experiences with in regards to HD.  We are trying to build a list of resources in Connecticut for the HD Community.

The 3rd Thursday of every month
6-7:30pm Where:
Backus Hospital, Norwich, Connecticut
Open to all HD families

Schedule 2014: Coming soon
Backus Hospital Entry Level Conference Room
326 Washington Street
Norwich, Connecticut 06360
860-889-8331 Backus Hospital
Google Map to support group location

Please contact the group facilitator if you plan on attending:
Debbie Pausig, MFT, CCTP
Phone: 203.985.8246
Email: debbiepausig.MFT@gmail.com
Website: www.debbiepausigmft.com


Winter Cancellation Policy:

If schools are closed or have an early dismissal due to inclement weather in the town where your support group meets, Danbury, Norwich, Hamden/North Haven, there will be no support group meeting. For those in Danbury and Norwich, I am commuting one hour to your location. Weather in North Haven is often different than yours since I am in Northern New Haven County. If schools are closed or have an early dismissal in North Haven, no matter how the weather is at your location, I will not travel. I spent 25 years in public safety. Unnecessary and non emergency travel in inclement weather conditions prompting cancellations is a hazard not only to your safety but others on the road as well as first responders. School Cancellations can be viewed on WFSB Hartford Channel 3 and WTNH New Haven Channel 8, WVIT Channel 30. The first rule of being a caregiver is to care for yourself. Safety is self care.

About the Connecticut Chapter

Welcome to Connecticut

We are the Connecticut affiliate of the Huntington's Disease Society of America, a national, not-for-profit voluntary health agency. We have three simple goals / help / educate / promote.

We HELP individuals affected by Huntington's Disease and their families through support and services.
We EDUCATE both the public and health care professionals about Huntington's Disease.
We PROMOTE and support research directed at discovering a treatment and ultimately a cure for Huntington's Disease.

If you'd like to get involved with the Connecticut Chapter please contact
Susan McGann
phone / 860-558-8847
email / smcgann@hdsa-ct.org

Brighter Today, Better Tomorrow
While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.