Please join us and MANY others in the FIGHT against HD!

 

WHY VOLUNTEER OR JOIN OUR BOARD OF DIRECTORS?

To gain leadership, learn a skill, become part of the community, to give back, to be around others, to donate your professional skills, to feel accomplishment, to help out a friend or relative, to be challenged, for fun, to earn academic or professional credit, to build your resume, to have impact, or simply because you care and know what it’s like to have people help you. 

 

Currently we are restructuring our affiliate and are in need of volunteers, and committee members for both the St.Pete/Tampa and Orlando area, in our efforts to gain support for Central and Western FL.  Many of those affected by HD have a hard time being able to find the time to be able to get away from their loved ones to be able to volunteer.  That is why we need YOU!   

 

SYMPTOMS AND FACTS:

Families watch their loved ones go from perfectly healthy to using a cane, wheelchair, needing a feeding tube, loss of bowel and bladder control, bed ridden until finally they pass.  HDSA is the largest voluntary health organization dedicated to fighting Huntington’s disease. HD research helps fuel the research needed to cure these diseases. 

 

VIDEO LINK:  A wonderful man named Daniel Mundy has come forward to share his story, so that you might get a quick understanding of what this disease does to people with HD.  www.youtube.com/HDDaniel

 

UPCOMING EVENTS: 

October 11 - Chicken Drop

Spring 2015 - Team Hope Walk

***Please see Affiliate Upcoming Events for the event date/times

 

Please don’t hesitate to contact me for more information. To learn more about Huntington’s disease and HDSA please visit: www.hdsa.org/cenfl

 

Thank you in advance for your time and consideration.

 

Sincerely,

 

Amanda March

President HDSA Central FL Affiliate

405 Sixth Street S, Suite 102

Saint Petersburg, FL 33701

Phone: 765-418-7295

Email: hdcure@gmail.com

Web:  www.hdsa.org/cenfl