News & Announcements

Welcome to the homepage of the Huntington's Disease Society of America, Albany NY, Western Massachusetts and Southern Vermont Affiliate. We are an Affiliate of the Huntington's Disease Society of America, a national, not-for-profit voluntary health agency.

The purpose of our chapter is:
• To help individuals affected by Huntington's Disease and their families through support and services
• To educate both the public and health care professionals about Huntington's Disease
• To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's Disease.

While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones


For more information about any of our events, contact Marcella Junco at 518-852-0242 or albanyhdsa@gmail.com.


The Albany Affiliate of the Huntington’s Disease Societyof America (HDSA) will present testimony on January 13, 2015 at the public hearing held by the NewYork State Assembly on the New York Health bill to create state single payer health coverage. The presented testimony outlines the struggles of an individual with Huntington’s Disease to access health care through various insurance plans shortly after her diagnosis and the early stage of her illness. 

New York Health, a universal "single payer" health coverage bill, would replaceinsurance  company  coverage,  premiums,  deductibles,  co-pays,  limited  providernetworks  and  out-of-network  charges.  Instead,  it  would  provide  comprehensive,universal  health  coverage  for  every  New  Yorker,  with  a  benefit  package  morecomprehensive than commercial or other health plans, with full choices of doctorsand other providers. The program would be funded by broad-based taxes based onability  to  pay.  People  who  are  struck  in  mid-life  with  the  sudden  on-set  of  apermanent disability causing the loss of employment and health insurance wouldbenefit greatly by the planned law.

A  complete  copy  of  the  testimony is here!

 

For more information: 

Email: albanyhdsa@gmail.com

Call: Marcella Junco, 518-852-0242

 


 

  ....for more great events....

     March 28, 2015, 6-9 PM

677 Prime Restaurant, Albany NY

September 12, 2015, 9 AM

Riverfront Park Ampitheather (Corning Preserve), Albany NY

 

 

 

 

 

 

 Thank You to our Fishy Frolic Sponsors

 

Gold Sponsors

 

 

Silver Sponsors

 

 

 

  

 

 

 

 

Bronze Sponsors

 Gerald Weinburg, P.C.

 

 

 

Other Supporters

 

 

 

 

If you would like to be a sponsor for our Team Hope Walk and 5K or any event, please contact Marcella Junco, 518-852-0242, albanyhdsa@gmail.com

 

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