News & Announcements

Welcome to the homepage of the Huntington's Disease Society of America, Albany NY, Western Massachusetts and Southern Vermont Affiliate. We are an Affiliate of the Huntington's Disease Society of America, a national, not-for-profit voluntary health agency.

The purpose of our chapter is:
• To help individuals affected by Huntington's Disease and their families through support and services
• To educate both the public and health care professionals about Huntington's Disease
• To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's Disease.

While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones


For more information about any of our events, contact Marcella Junco at 518-852-0242 or albanyhdsa@gmail.com.


 

Huntington's Disease Edcuation Day

Saturday, Novemeber 1, 2014

Agenda:

Time

 

9:30 AM

-

10:00 AM

Registration

10:00 AM

-

10:15 AM

Welcome/Opening Remarks

10:15 AM

-

11:00 AM

Preimplantation Genetic Diagnosis (PGD)
& Invitro Fertilization
Dr. Edward Ditkoff, MD, CNY Fertility

11:00 AM

-

11:15 PM

HDSA Clinical Trials Workshop/Research Update
Dr. Era Hanspal, MD, Albany Medical Center

11:15 PM

-

12:00 PM

To Test or Not to Test: A Panel Discussion
Moderated by Julie Lundberg, MS, Albany Medical Center

12:00 PM

-

1:00 PM

Lunch

1:00 PM

-

1:45 PM

How to Talk to Kids About HD
Bonnie Hennig, MSW, LCSW, QCSW, DCSW

1:45 PM

-

2:00 PM

HDSA Advocacy—Alan Pfeffer, Albany HDSA Advocacy Chairperson

2:00 PM

-

2:30 PM

Introduction to Huntington’s Disease Youth Organization
Chandler Swope, LICSW, Director of Youth Services
Mid-Atlantic Region HDYO

2:30 PM

-

3:00 PM

Q & A

3:00 PM

-

3:15 PM

Closing Remarks & Evaluation

Carondelet Hospitality Center

Sisters of St. Joseph of Carondelet

385 Watervliet-Shaker Road • Latham, NY

 

Registration is free but required.

Lunch will be provided.

Free parking provided.

 

To register:

Online at: www.hdsa.org/edday

Email: albanyhdsa@gmail.com

Call: Marcella Junco, 518-852-0242

 


 

  ....for more great events....

     March 28, 2015, 6-9 PM

677 Prime Restaurant, Albany NY

September 12, 2015, 9 AM

Riverfront Park Ampitheather (Corning Preserve), Albany NY

 

 Thank You to our Fishy Frolic Sponsors

 

Gold Sponsors

 

 

Silver Sponsors

 

 

 

  

 

 

 

 

Bronze Sponsors

 Gerald Weinburg, P.C.

 

 

 

Other Supporters

 

 

 

 

If you would like to be a sponsor for our Team Hope Walk and 5K or any event, please contact Marcella Junco, 518-852-0242, albanyhdsa@gmail.com

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