Please check back for more information as we continue to develop the events below and others in the future.

For more information about any of our events, contact Marcella Junco at 518-426-3470 or albanyhdsa@gmail.com.


 

 

Huntington's Disease Edcuation Day

Saturday, Novemeber 1, 2014

Agenda:

Time

 

9:30 AM

-

10:00 AM

Registration

10:00 AM

-

10:15 AM

Welcome/Opening Remarks

10:15 AM

-

11:00 AM

Preimplantation Genetic Diagnosis (PGD)
& Invitro Fertilization
Dr. Edward Ditkoff, MD, CNY Fertility

11:00 AM

-

11:15 PM

HDSA Clinical Trials Workshop/Research Update
Dr. Era Hanspal, MD, Albany Medical Center

11:15 PM

-

12:00 PM

To Test or Not to Test: A Panel Discussion
Moderated by Julie Lundberg, MS, Albany Medical Center

12:00 PM

-

1:00 PM

Lunch

1:00 PM

-

1:45 PM

How to Talk to Kids About HD
Bonnie Hennig, MSW, LCSW, QCSW, DCSW

1:45 PM

-

2:00 PM

HDSA Advocacy—Alan Pfeffer, Albany HDSA Advocacy Chairperson

2:00 PM

-

2:30 PM

Introduction to Huntington’s Disease Youth Organization
Chandler Swope, LICSW, Director of Youth Services
Mid-Atlantic Region HDYO

2:30 PM

-

3:00 PM

Q & A

3:00 PM

-

3:15 PM

Closing Remarks & Evaluation

Carondelet Hospitality Center

Sisters of St. Joseph of Carondelet

385 Watervliet-Shaker Road • Latham, NY

 

Registration is free but required.

Lunch will be provided.

Free parking provided.

 

To register:

Online at: www.hdsa.org/edday

Email: albanyhdsa@gmail.com

Call: Marcella Junco, 518-852-0242

 


 

  ....for more great events....

     March 28, 2015, 6-9 PM

677 Prime Restaurant, Albany NY

September 12, 2015, 9 AM

Riverfront Park Ampitheather (Corning Preserve), Albany NY