National Office

505 Eighth Avenue, Suite 902
New York, NY 10018
212 242-1968
1-800-345-HDSA (4372)
 

 

Chief Executive Officer: Louise Vetter
Extension: 220
e. lvetter@hdsa.org

Development Associate: Jodie Baumgarten

Development and administrative support.
Extension: 240
e. jbaumgarten@hdsa.org

 

Director of Marketing, Development & Communications: Fred Taubman
Marketing strategies to increase awareness and build fundraising dollars to support research, resources, treatment and care for HD families. Website and marketing standards for all HDSA materials and communications.
Extension: 229 
e. ftaubman@hdsa.org

 

Manager of Special Events & Development: Mynelly Perez
HDSA outreach events (Walks, Hoops, etc.), HDSA marketing partners, website and chapters, affiliates and regions. Support National Youth Alliance (NYA) and NYA Scholarship Program, Convention exhibitors and Guthrie Awards Dinner Silent Auction.
Extension: 214 
e. mperez@hdsa.org

 

Assistant Manager of Marketing Programs: Robert Coffey
Customer service and reporting, website coordinator, marketing assistant, matching gifts, convention registration and office management,  Summer Cash Bonanza, BMW Sweepstakes, Winter Cash Spectacular, Guthrie Awards Dinner, Gift of Hope.
Extension: 210 
e. coffeyr@hdsa.org

 

Donor Perfect Coordinator: Burnesteen Shivers
Database responsibility, credit card and check processing, gift acknowledgment, donor reporting.
Extension: 225
e. bshivers@hdsa.org

 

Director of Financial & Administrative Management: Nadene Alleyne
Finance and accounting, strategic financial planning, administration services.
Extension: 212 
e. nalleyne@hdsa.org

 

Senior Accountant: Eddie Byrnes
Accounting services.
Extension: 215 
e. ebyrnes@hdsa.org

 

Accounts Payable & Finance Administrator: Frances Eisenstein Pam
Extension: 224
e. feisenstein@hdsa.org

 

Manager of Administration: Kyle Graham

Extension: 211
e. kgraham@hdsa.org

 

Receptionist/Administrative Office Assistant: D. Marjorie Brown
Administrative support.
Extension: 222
e. dbrown@hdsa.org

 

Director of Education Programs & Services: Debra Lovecky
HDSA Centers of Excellence, education, family services, educational publications and advocacy.
Extension: 228 
e. dlovecky@hdsa.org

 

Manager of Program Services and Advocacy: Jane Kogan, MSW
Extension: 226 
e. jkogan@hdsa.org

 

Information & Fulfillment Aide: Anita Mark-Paul
Customer service and fulfillment for publication orders. 

Extension: 219
e. amarkpau@hdsa.org

 

Acting Director, Med/Sci Programs: Robert Graze
Corporate and foundation support.
Extension: 227 
e. rgraze@hdsa.org

 

Director of Field Development & Operations: Nancy A. Rhodes

Extension: 234

e. nrhodes@hdsa.org

 

Sr. Manager of Field Development & Operations: Alex Roque
Extension: 233
e. aroque@hdsa.org
Regional staff direction and support for chapters and affiliates in the East. Community Health Charities, United Way and Combined Federated Campaigns. 

Field Coordinator: Ashlee Sadler

Extension: 218
e. asadler@hdsa.org


HDSA Regional Field Offices

To locate your nearest HDSA Field Representative click here

and then click on your state. Complete listings continue below.

 

 

New England Region

 

Regional Development Director: Virginia Goolkasian

6 Boston Road, Suite 203A

Chelmsford, MA 01824

p. 978-256-0811

Toll Free: 888-554-8102

f. 978-256-0812

e. vgoolkasian@hdsa.org

  

Bookkeeper: Thuy Nguyen

6 Boston Road, Suite 203A

Chelmsford, MA 01824

p. 978-256-0811

Toll Free: 888-554-8102

f. 978-256-0812

e. tnguyen@hdsa.org

 

Greater New York Region

 

Special Events Coordinator: Chenell Tannure

505 Eighth Avenue, Suite 902

New York, NY 10018

p. 212-242-1968 ext. 221

Toll Free: 800-345-4372

f. 212-239-3430

e. ctannure@hdsa.org

 

New Jersey Chapter

 

Executive Director: Christi Rokicki

PO Box 943

230 Diamond Spring Road

Denville, NJ 07834

p. 973-784-4965

f. 973-784-4966

e. crokicki@hdsa.org

 

Development Coordinator: Victoria Hess

PO Box 943

230 Diamond Spring Road

Denville, NJ 07834

p. 973-784-4965

f. 973-784-4966

e. vhess@hdsa.org

 

Mid-Atlantic Region

 

Delaware Valley Chapter

 

Executive Director: Susan Liberace

502 W. Germantown Pike, Suite 405

Plymouth Meeting, PA 19462

p. 610 260-0420

f. 610 260-9423

e. sliberace@hdsa.org

 

Great Lakes Region

 

Regional Development Director: Deb Boyd

p. 269-629-5452

f. 269-629-4205

e. dboyd@hdsa.org

 

Regional Coordinator: Liz Molitor

p. 414-303-1214

e. lmolitor@hdsa.org

 

Northeast Ohio Chapter

 

Development Director: Barbara Kaiser

10176 Luman Lane

Twinsburg, OH 44087

p. 330-998-6600

f. 330-998-6677

e. bkaiser@hdsa.org

 

St. Louis Chapter

 

Development Director: Peggy Cribbin

3286 Ivanhoe Avenue

St. Louis, MO 63139

p. 314-647-4372

f. 314-961-5754

e. pcribbin@hdsa.org

 

South/Southwest Region


Regional Development Director: Janice Watsky

1637 42nd Street Unit A

Kenner, LA 70065

p. 504-712-0523

Toll Free 866-712-0523

f. 504-712-0527

e. jwatsky@hdsa.org

 

Upper Mid-West Region

 

Regional Development Director: Leigh Peterson

7362 University Avenue NE, Suite 212
Fridley, MN 55432
p. 763-502-1407

f. 763-502-1408

e. lpeterson@hdsa.org

 

Illinois Chapter

 

Special Events Coordinator: Blanca McCarthy
14 N. Peoria Street, Unit 4E

Chicago, IL 60607

p. 312-265-5840

Toll Free 866-374-9392

e. bmccarthy@hdsa.org

 

Rocky Mountain Region


Regional Development Coordinator: Kendell Aitchison
6545 W. 44th Avenue, Suite 1

Wheat Ridge, CO 80033

p. 303-837-9937

f. 303-837-8983

e. kaitchison@hdsa.org

 

Northern California Region


Regional Development Director: Penny Riley
2860 Gateway Oaks Drive, #300

Sacramento, CA 95833

p. 916-927-4400

f. 916-830-8015

e. priley@hdsa.org

 

Regional Development Assistant: Madalyn Kruger

2860 Gateway Oaks Drive, #300

Sacramento, CA 95833

p. 916-927-4400

f. 916-830-8015

e. mkruger@hdsa.org

 

Southern California Region

 

Regional Development Director: Natalie Carpenter
HDSA

PO Box 6334

Irvine, CA 92616

p. 949-542-3907

f. 949-542-3976

e. ncarpenter@hdsa.org

 

Special Events Coordinator: Stephanie Alband

HDSA

PO Box 19524

San Diego, CA 92159

p. 619-225-2255

f. 619-225-2257

e. salband@hdsa.org

 

Regional Assistant: Katherine Bergfors
p. 619-461-2477

e. bergfors@cox.net