National Office

505 Eighth Avenue, Suite 902
New York, NY 10018
212 242-1968
1-800-345-HDSA (4372)

Chief Executive Officer: Louise Vetter
Extension: 220
e. lvetter@hdsa.org

Executive Assistant: Felicia Vaughn
Extension: 232
e. fvaughn@hdsa.org

Director of Marketing & Communications: Fred Taubman
Marketing strategies to increase awareness and build fundraising dollars to support research, resources, treatment and care for HD families. Website and marketing standards for all HDSA materials and communications.
Extension: 229
e. ftaubman@hdsa.org

Senior Manager of Communications & Event Marketing: Mynelly Perez
HDSA outreach events (Walks, Hoops, etc.), HDSA marketing partners, website and chapters, affiliates and regions. Support National Youth Alliance (NYA) and NYA Scholarship Program, Convention exhibitors and Guthrie Awards Dinner Silent Auction.
Extension: 214
e. mperez@hdsa.org

Director of Development: Jules Greenwald
Major Donors, National Fundraising Initiatives.
Extension: 235
e. jgreenwald@hdsa.org

Development Manager: Robert Coffey
Matching gifts, Convention, Summer Cash Bonanza, BMW Sweepstakes, Winter Cash Spectacular, Guthrie Dinner/Concert, Gift of Hope, Direct Mail, Family Funds, Major Gifts.
Extension: 210
e. coffeyr@hdsa.org

Donor Database Manager: Burnesteen Shivers
Database responsibility, credit card and check processing, gift acknowledgment, donor reporting, Tributes & Memorials.
Extension: 225
e. bshivers@hdsa.org

Director of Financial & Administrative Management: Nadene Alleyne
Finance and accounting, strategic financial planning, administration services.
Extension: 212
e. nalleyne@hdsa.org

Senior Accountant- National /Regional Operations: Eddie Byrnes
Accounting services.
Extension: 215
e. ebyrnes@hdsa.org

Senior Accountant- Chapter Operations & Accounts Payable: Frances Eisenstein Pam
Extension: 224
e. feisenstein@hdsa.org

Manager of Operations:
Extension:
e.

Receptionist/Administrative Office Assistant: D. Marjorie Brown
Administrative support.
Extension: 222
e. dbrown@hdsa.org

Director of Program Services & Advocacy: Debra Lovecky
HDSA Centers of Excellence, education, family services, educational publications and advocacy.
Extension: 228
e. dlovecky@hdsa.org

Manager of Program Services & Advocacy: Jane Kogan, MSW
Extension: 226
e. jkogan@hdsa.org

Community Services & Resource Development Manager: Seth Meyer
Extension: 240
e. smeyer@hdsa.org

Information & Fulfillment Aide: Anita Mark-Paul
Customer service and fulfillment for publication orders.

Extension: 219
e. amarkpaul@hdsa.org

Acting Director, Med/Sci Programs:
Corporate and foundation support.
Extension:
e.

Director of Field Development & Operations: Nancy A. Rhodes

Extension: 234

e. nrhodes@hdsa.org

Manager of Field Development & Operations:
Extension:
e.
Regional staff direction and support for chapters and affiliates in the East. Community Health Charities, United Way and Combined Federated Campaigns.

Field Coordinator: Sarah Pattison
Extension: 218
e. spattison@hdsa.org

HDSA Regional Field Offices

To locate your nearest HDSA Field Representative click here

and then click on your state. Complete listings continue below.

Greater NY-NJ Region
Great Lakes Region
Mid-Atlantic Region
New England Region
Northeast Ohio Chapter
Pacific Northwest Region

Pacific South West Region
South East Region
St. Louis Chapter
South Central Region
Upper-MidWest Region

New England Region

(Maine, Massachusetts, New Hampshire, Rhode Island, Vermont)

Regional Development Director: Virginia Goolkasian

6 Boston Road, Suite 203A

Chelmsford, MA 01824

p. 978-256-0811

Toll Free: 888-554-8102

f. 978-256-0812

e. vgoolkasian@hdsa.org

Bookkeeper: Thuy Nguyen

6 Boston Road, Suite 203A

Chelmsford, MA 01824

p. 978-256-0811

Toll Free: 888-554-8102

f. 978-256-0812

e. tnguyen@hdsa.org

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Greater New York- New Jersey Region

(New Jersey, New York)

Development Manager: Victoria Hess

PO Box 943

230 Diamond Spring Road

Denville, NJ 07834

p. 973-784-4965

f. 973-784-4966

e. vhess@hdsa.org

Regional Coordinator:

PO Box 943

230 Diamond Spring Road

Denville, NJ 07834

p. 973-784-4965

f. 973-784-4966

e.

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Mid-Atlantic Region

( Delaware, Maryland, Pennsylvania, Virginia, Washington DC, West Virginia)
Regional Development Director: Caryn Freas
502 W. Germantown Pike, Suite 405

Plymouth Meeting, PA 19462

p. 610 260-0421

f. 610 260-0423

e. cfreas@hdsa.org

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Great Lakes Region

(Illinois, Indiana, Kentucky, Michigan, Missouri, Ohio, Wisconsin)

Regional Development Director: Deb Boyd

p. 269-629-5452

f. 269-629-4205

e. dboyd@hdsa.org

Regional Coordinator:
p.
e.

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Northeast Ohio Chapter

Development Director: Barbara Kaiser

10176 Luman Lane

Twinsburg, OH 44087

p. 330-998-6600

f. 330-998-6677

e. bkaiser@hdsa.org

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St. Louis Chapter

Development Director: Peggy Cribbin

3286 Ivanhoe Avenue

St. Louis, MO 63139

p. 314-647-4372

f. 314-961-5754

e. pcribbin@hdsa.org

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South Central Region

(Arkansas, Colorado, Louisiana, Mississippi, New Mexico, Oklahoma, Texas)

Sarah Pattison Field Coordinator

spattison@hdsa.org

212 242 1968 x218

Regional Development Coordinator: Kendell Aitchison
6545 W. 44th Avenue, Suite 1

Wheat Ridge, CO 80033

p. 303-837-9937

f. 303-837-8983

e. kaitchison@hdsa.org

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South East Region

(Alabama, Florida, Georgia, North Carolina, Tenessee, South Carolina )

Southeast Regional Development Manager: Edwina Bullard-Simms
p. 407-507-3831
e. esimms@hdsa.org

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