National Office
505 Eighth Avenue, Suite 902
New York, NY 10018
212 242-1968
1-800-345-HDSA (4372)
Chief Executive Officer: Louise Vetter
Extension: 220
e. lvetter@hdsa.org
Development Associate: Jodie Baumgarten
Development and administrative support.
Extension: 240
e. jbaumgarten@hdsa.org
Director of Marketing, Development & Communications: Fred Taubman
Marketing strategies to increase awareness and build fundraising dollars to support research, resources, treatment and care for HD families. Website and marketing standards for all HDSA materials and communications.
Extension: 229
e. ftaubman@hdsa.org
Manager of Special Events & Development: Mynelly Perez
HDSA outreach events (Walks, Hoops, etc.), HDSA marketing partners, website and chapters, affiliates and regions. Support National Youth Alliance (NYA) and NYA Scholarship Program, Convention exhibitors and Guthrie Awards Dinner Silent Auction.
Extension: 214
e. mperez@hdsa.org
Assistant Manager of Marketing Programs: Robert Coffey
Customer service and reporting, website coordinator, marketing assistant, matching gifts, convention registration and office management, Summer Cash Bonanza, BMW Sweepstakes, Winter Cash Spectacular, Guthrie Awards Dinner, Gift of Hope.
Extension: 210
e. coffeyr@hdsa.org
Donor Perfect Coordinator: Burnesteen Shivers
Database responsibility, credit card and check processing, gift acknowledgment, donor reporting.
Extension: 225
e. bshivers@hdsa.org
Director of Financial & Administrative Management: Nadene Alleyne
Finance and accounting, strategic financial planning, administration services.
Extension: 212
e. nalleyne@hdsa.org
Senior Accountant: Eddie Byrnes
Accounting services.
Extension: 215
e. ebyrnes@hdsa.org
Accounts Payable & Finance Administrator: Frances Eisenstein Pam
Extension: 224
e. feisenstein@hdsa.org
Manager of Administration: Kyle Graham
Extension: 211
e. kgraham@hdsa.org
Receptionist/Administrative Office Assistant: D. Marjorie Brown
Administrative support.
Extension: 222
e. dbrown@hdsa.org
Director of Education Programs & Services: Debra Lovecky
HDSA Centers of Excellence, education, family services, educational publications and advocacy.
Extension: 228
e. dlovecky@hdsa.org
Manager of Program Services and Advocacy: Jane Kogan, MSW
Extension: 226
e. jkogan@hdsa.org
Information & Fulfillment Aide: Anita Mark-Paul
Customer service and fulfillment for publication orders.
Extension: 219
e. amarkpau@hdsa.org
Acting Director, Med/Sci Programs: Robert Graze
Corporate and foundation support.
Extension: 227
e. rgraze@hdsa.org
Director of Field Development & Operations: Nancy A. Rhodes
Extension: 234
Sr. Manager of Field Development & Operations: Alex Roque
Extension: 233
e. aroque@hdsa.org
Regional staff direction and support for chapters and affiliates in the East. Community Health Charities, United Way and Combined Federated Campaigns.
Field Coordinator: Ashlee Sadler
Extension: 218
e. asadler@hdsa.org
HDSA Regional Field Offices
To locate your nearest HDSA Field Representative click here
and then click on your state. Complete listings continue below.
New England Region
Regional Development Director: Virginia Goolkasian
6 Boston Road, Suite 203A
Chelmsford, MA 01824
p. 978-256-0811
Toll Free: 888-554-8102
f. 978-256-0812
Bookkeeper: Thuy Nguyen
6 Boston Road, Suite 203A
Chelmsford, MA 01824
p. 978-256-0811
Toll Free: 888-554-8102
f. 978-256-0812
Greater New York Region
Special Events Coordinator: Chenell Tannure
505 Eighth Avenue, Suite 902
New York, NY 10018
p. 212-242-1968 ext. 221
Toll Free: 800-345-4372
f. 212-239-3430
New Jersey Chapter
Executive Director: Christi Rokicki
PO Box 943
230 Diamond Spring Road
Denville, NJ 07834
p. 973-784-4965
f. 973-784-4966
Development Coordinator: Victoria Hess
PO Box 943
230 Diamond Spring Road
Denville, NJ 07834
p. 973-784-4965
f. 973-784-4966
Mid-Atlantic Region
Delaware Valley Chapter
Executive Director: Susan Liberace
502 W. Germantown Pike, Suite 405
Plymouth Meeting, PA 19462
p. 610 260-0420
f. 610 260-9423
Great Lakes Region
Regional Development Director: Deb Boyd
p. 269-629-5452
f. 269-629-4205
Regional Coordinator: Liz Molitor
p. 414-303-1214
Northeast Ohio Chapter
Development Director: Barbara Kaiser
10176 Luman Lane
Twinsburg, OH 44087
p. 330-998-6600
f. 330-998-6677
St. Louis Chapter
Development Director: Peggy Cribbin
3286 Ivanhoe Avenue
St. Louis, MO 63139
p. 314-647-4372
f. 314-961-5754
South/Southwest Region
Regional Development Director: Janice Watsky
1637 42nd Street Unit A
Kenner, LA 70065
p. 504-712-0523
Toll Free 866-712-0523
f. 504-712-0527
Upper Mid-West Region
Regional Development Director: Leigh Peterson
7362 University Avenue NE, Suite 212
Fridley, MN 55432
p. 763-502-1407
f. 763-502-1408
Illinois Chapter
Special Events Coordinator: Blanca McCarthy
14 N. Peoria Street, Unit 4E
Chicago, IL 60607
p. 312-265-5840
Toll Free 866-374-9392
Rocky Mountain Region
Regional Development Coordinator: Kendell Aitchison
6545 W. 44th Avenue, Suite 1
Wheat Ridge, CO 80033
p. 303-837-9937
f. 303-837-8983
Northern California Region
Regional Development Director: Penny Riley
2860 Gateway Oaks Drive, #300
Sacramento, CA 95833
p. 916-927-4400
f. 916-830-8015
Regional Development Assistant: Madalyn Kruger
2860 Gateway Oaks Drive, #300
Sacramento, CA 95833
p. 916-927-4400
f. 916-830-8015
Southern California Region
Regional Development Director: Natalie Carpenter
HDSA
PO Box 6334
Irvine, CA 92616
p. 949-542-3907
f. 949-542-3976
Special Events Coordinator: Stephanie Alband
HDSA
PO Box 19524
San Diego, CA 92159
p. 619-225-2255
f. 619-225-2257
Regional Assistant: Katherine Bergfors
p. 619-461-2477