National Office
505 Eighth Avenue, Suite 902
New York, NY 10018
212 242-1968
1-800-345-HDSA (4372)
National Executive Director/CEO: Barbara T. Boyle
Major gifts, planned giving, wills and bequests, family funds, stock and insurance gifts, corporate & foundation giving, matching gifts, challenge gifts and High Q Foundation. Professional organizations, National Board liaison. Strategic planning, staff management.
Extension: 216
Email Address: barbaraboyle@hdsa.org
Assistant to the Executive Director/CEO: Leah Donnelly
Manages Fund Development, Board and administrative support.
Extension: 217
Email Address: ldonnelly@hdsa.org
Development Associate: Jodie Baumgarten
Development and administrative support.
Extension: 240
Email Address: jbaumgarten@hdsa.org
Office Assistant: Dethinia Brown
Administrative support.
Extension: 222
Email Address: dbrown@hdsa.org
Director of Marketing, Development & Communications: Fred Taubman
Marketing strategies to increase awareness and build fundraising dollars to support research, resources, treatment and care for HD families. Website and marketing standards for all HDSA materials and communications.
Extension: 229
Email Address: ftaubman@hdsa.org
Manager of Special Events & Development: Mynelly Perez
HDSA outreach events, HDSA marketing partners, website and chapters, affiliates and regions. Support National Youth Alliance (NYA) Scholarship Program, Convention exhibitors and Guthrie Awards Dinner Silent Auction.
Extension: 214
Email Address: mperez@hdsa.org
Assistant Manager of Marketing Programs: Robert Coffey
Customer service and reporting, website coordinator, marketing assistant, matching gifts, convention registration, holiday cards, Summer Cash Bonanza, BMW Sweepstakes, Winter Cash Spectacular, Gift of Hope.
Extension: 210
Email Address: coffeyr@hdsa.org
Donor Perfect Coordinator: Burnesteen Shivers
Database responsibility, credit card and check processing, gift acknowledgment, donor reporting.
Extension: 225
Email Address: bshivers@hdsa.org
Assistant to the Chief Operating Officer: Beatrice Sainvil
Extension: 235
Email: bsainvil@hdsa.org
Director of Finance: Joseph DiSibio
Finance and accounting and strategic financial plans for HDSA.
Extension: 212
Email Address: jdisibio@hdsa.org
Senior Accountant: Eddie Byrnes
Accounting services.
Extension: 215
Email Address: ebyrnes@hdsa.org
Accounts Payable & Finance Administrator: Frances Eisenstein
Extension: 224
Email Address: feisenstein@hdsa.org
Information & Fulfillment Aide: Anita Mark-Paul
Customer service and fulfillment for publication orders.
Extension: 219
Email Address: amarkpau@hdsa.org
Director of Education Programs & Services: Debra Lovecky
HDSA Centers of Excellence, education, family services, educational publications and advocacy.
Extension: 228
Email Address: dlovecky@hdsa.org
Advocacy and Family Services Manager: Sean Luis
Extension: 226
Email Address: sluis@hdsa.org
Acting Director, Med/Sci Programs: Robert Graze
Corporate and foundation support.
Extension: 227
Email Address: rgraze@hdsa.org
Foundations & Corporations Coordinator:
Coordiantion of all incoming foundation and corporate grants.
Extension: 223
Email Address:
HDSA Regional Offices
EAST:
National Field Development & Operations Manager: Alex Roque
Extension: 233
Email Address: aroque@hdsa.org
505 Eighth Avenue
Suite 902
New York, NY 10018
Tel: (212) 242-1968
Fax: (212) 239-3430
Regional staff direction and support for chapters and affiliates in the East. Community Health Charities, United Way and Combined Federated Campaigns. Guthrie Awards Dinner.
Field Administrative Coordinator (East & West): Emily Pollak
Extension: 218
Email: epollak@hdsa.org
Mid-Atlantic:
Delaware & Delaware Valley Chapters: Susan Liberace
525 Plymouth Road, Suite 314
Plymouth Meeting, PA 19462
E-mail:
Tel: (610) 260-0420
Fax: (610) 260-9423
Responsible for the following chapters and affiliates: Delaware, Delaware Valley
Greater NY:
Events Coordinator: Chenell Tannure
505 Eighth Avenue, Suite 902
New York, NY 10018
E-mail: ctannure@hdsa.org
Tel: (212) 242-1968 x221
Fax: (212) 216-9004
Responsible for special events in the Greater NY Region
Development Coordinator:
Email:
Tel: (212) 242-1968
Fax: (212) 239-3430
Great Lakes:
Regional Development Director: Melissa Worthington
HDSA c/o Melissa Worthington
1288 Summit Ave. Suite 107, PMB 152
Oconomowoc, WI 53066
Email: mworthington@hdsa.org
Phone: (920) 428-1074
Fax: (262) 560-0508
Resposible for the following chapters and affiliates: Central Ohio, Indiana,Kentucky
Michigan, Northeast Ohio, Ohio Valley, Wisconsin.
Regional Development Coordinator: Liz Molitor
E-mail: lmolitor@hdsa.org
Phone: (414) 303-1214
Executive Director, Northeast Ohio Chapter: Kevin Gianotto
1210 West Boulevard
Suite 202
Cleveland, OH 44102
Email: kgianotto@hdsa.org
Phone:(216) 862-6249
Fax:
Chapter Coordinator for St. Louis: Peggy Cribbin
3286 Ivanhoe Avenue
St. Louis, MO 63139
Email: pcribbin@hdsa.org
Phone:(314) 647-HDSA (4372)
Fax: (314) 961-5754
Responsible for the St. Louis Chapter
New Jersey - Chapter
Chapter Executive Director: Christi Rokicki
PO Box 943, 230 Diamond Spring Road
Denville, NJ 07834
E-mail: crokicki@hdsa.org
Tel: 973-784-4965
Fax: 973-784-4966
Chapter Development Coordinator: Victoria Hess
E-mail: vhess@hdsa.org
New England:
Regional Development Director: Virginia Goolkasian
6 Courthouse Lane Unit 12
Chelmsford, MA 01824
E-mail: virginia@hdsa-ne.org
Tel: (978) 454-8102
Toll Free: (888) 554-8102
Fax: (978) 454-8101
Responsible for the following chapters and affiliates: Massachusetts, Connecticut,
Rhode Island, Maine.
South East:
Regional Development Director:
C/O HDSA South East
505 Eighth Avenue, Suite 902
New York, NY 10018
Tel: (212) 242-1968, ext.
Fax: (212) 239-3430
Email:
Responsible for the following chapters and affiliates: Georgia, Central Florida,
South Florida.
WEST:
National Field Development & Operations Director-West: Scotti Hutton
E-mail: shutton@hdsa.org
Tel:
Fax:
Regional staff direction and support for chapters and affiliates in the West.
Field Administrative Coordinator(East & West): Emily Pollak
Extension: 218
Email: epollak@hdsa.org
505 Eighth Avenue
Suite 902
New York, NY 10018
Tel: (212) 242-1968
Fax: (212) 239-3430
Rocky Mountain:
Regional Development Director: Kendell Aitchison
6545 W. 44th Avenue, Suite 1
Wheatridge, CO 80033
E-mail: kaitchison@hdsa.org
Tel: (303) 837-9937
Fax: (303) 837-8983
Responsible for the following chapters and affiliates: Rocky Mountain, Arizona.
Regional Special Projects Coordinator:
E-mail:
Tel: (303) 837-9937
Fax: (303) 837-8983
Southern California Region
Special Events Coordinator: Natalie Carpenter
HDSA
San Diego Chapter
PO Box 19524
San Diego, CA 92159
E-mail: ncarpenter@hdsa.org
Tel: 619-225-2255
Fax: 619-225-2277
Upper Mid-West:
Regional Development Director: Leigh Peterson
459 63rd Avenue, NE
Fridley, MN 55432
E-mail: lpeterson@hdsa.org
Tel: (763) 502-1407
Fax: (763) 502-1408
Responsible for the following chapters and affiliates: Minnesota, Illinois, Iowa, Sioux Valley.
Regional Special Events Coordinator, Illinois: Blanca McCarthy
14 N. Peoria Street, Unit 4E
Chicago, IL 60607
E-mail: bmccarthy@hdsa.org
Tel: (312) 265-5840
Toll Free: (866) 374-9392
Northern California:
Regional Development Director: Penny Riley
2860 Gateway Oaks Drive, #300
Sacramento, CA 95833
E-mail: priley@hdsa.org
Tel: (916) 927-4400
Fax: (916) 830-8015
Responsible for the follow chapters and affiliates: Northern California.
Regional Assistant: Madalyn Kruger
E-mail: mkruger@hdsa.org
South/Southwest:
Regional Development Director: Janice Watsky
1637 42nd St. Unit A
Kenner, LA 70065
E-mail: jwatsky@hotmail.com
Toll-free: (866) 712-0523
Tel: (504) 712-0523
Fax: (504) 712-0527
Responsible for the following chapters and affiliates: Oklahoma, Texas.