Huntington's Disease Society of America
Staff Directory
National Office
505 Eighth Avenue, Suite 902
New York, NY 10018
212 242-1968
1-800-345-HDSA (4372)
1-888-HDSA-506 (NEW HDSA HELPLINE NUMBER)
Chief Executive Officer: Louise Vetter
Extension: 220
e. lvetter@hdsa.org
Director of Marketing & Communications: Fred Taubman
Marketing strategies to increase awareness and build fundraising dollars to support research, resources, treatment and care for HD families. Website and marketing standards for all HDSA materials and communications.
Extension: 229
e. ftaubman@hdsa.org
Senior Manager of Communications & Event Marketing: Mynelly Perez
HDSA outreach events (Walks, Hoops, etc.), HDSA marketing partners, website and chapters, affiliates and regions. Support National Youth Alliance (NYA) and NYA Scholarship Program, Convention exhibitors and Guthrie Awards Dinner Silent Auction.
Extension: 214
e. mperez@hdsa.org
Director of Development: Jules Greenwald
Major Donors, National Fundraising Initiatives.
Extension: 235
e. jgreenwald@hdsa.org
Development Manager: Robert Coffey
Matching gifts, Convention, Summer Cash Bonanza, BMW Sweepstakes, Winter Cash Spectacular, Guthrie Dinner/Concert, Gift of Hope, Direct Mail, Family Funds, Major Gifts.
Extension: 210
e. coffeyr@hdsa.org
Donor Database Manager: Burnesteen Shivers
Database responsibility, credit card and check processing, gift acknowledgment, donor reporting, Tributes & Memorials.
Extension: 225
e. bshivers@hdsa.org
Director of Financial & Administrative Management: Nadene Alleyne
Finance and accounting, strategic financial planning, administration services.
Extension: 212
e. nalleyne@hdsa.org
Senior Accountant: Eddie Byrnes
Extension: 215
e. ebyrnes@hdsa.org
Senior Accountant: Rebecca Chan
Extension: 224
e. rchan@hdsa.org
Receptionist/Administrative Office Assistant: D. Marjorie Brown
Administrative support.
Extension: 222
e. dbrown@hdsa.org
Director of Program Services & Advocacy: Debra Lovecky
HDSA Centers of Excellence, education, family services, educational publications and advocacy.
Extension: 228
e. dlovecky@hdsa.org
Manager of Education & Advocacy: Jane Kogan, LMSW
Advocacy, field-based educational events, educational publications, Clinical Trials Diplomats, Speakers Bureau
Extension: 226
e. jkogan@hdsa.org
Community Services & Resource Development Manager: Seth Meyer, LMSW
Extension: 240
e. smeyer@hdsa.org
Mid Atlantic Regional Social Worker: Anne Leserman, LCSW
Phone: 929-777-1150
Information & Fulfillment Aide: Anita Mark-Paul
Customer service and fulfillment for publication orders.
Extension: 219
e. amarkpaul@hdsa.org
Director of medical and scientific affairs: George Yohrling, Ph.D.
HDSA Research Program
Extension: 211
e. gyohrling@hdsa.org
Director of Field Development & Operations: Nancy A. Rhodes
Extension: 234
e. nrhodes@hdsa.org
Manager Team Hope Walks: cj Redfern
Extension: 218
e. cjredfern@hdsa.org
Coordination of Team Hope Walk Program
Field Coordinator: Samantha Peters
Extension: 233
e. speters@hdsa.org
HDSA Regional Field Offices
To locate your nearest HDSA Field Representative click here
and then click on your state. Complete listings continue below.
Greater NY-NJ Region
Great Lakes Region
Mid-Atlantic Region
New England Region
Pacific Northwest Region
Pacific Southwest Region
South East Region
South Central Region
Upper-MidWest Region
New England Region
(Maine, Massachusetts, New Hampshire, Rhode Island, Vermont)
Regional Development Director: Virginia Goolkasian
6 Boston Road, Suite 203A
Chelmsford, MA 01824
p. 978-256-0811
Toll Free: 888-554-8102
f. 978-256-0812
e. vgoolkasian@hdsa.org
Bookkeeper: Thuy Nguyen
6 Boston Road, Suite 203A
Chelmsford, MA 01824
p. 978-256-0811
Toll Free: 888-554-8102
f. 978-256-0812
e. tnguyen@hdsa.org
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Greater New York- New Jersey Region
(New Jersey, New York)
New York/New Jersey Regional Development Manager: Sarah Katerle
PO Box 1191
Penfield, NY 14526
585 643 5239
skaterle@hdsa.org
Mid-Atlantic Region
( Delaware, Maryland, Pennsylvania, Virginia, Washington DC, West Virginia)
Regional Development Director: Caryn Freas
502 W. Germantown Pike, Suite 405
Plymouth Meeting, PA 19462
p. 610 260-0421
f. 610 260-0423
e. cfreas@hdsa.org
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Great Lakes Region
(Illinois, Indiana, Kentucky, Michigan, Missouri, Ohio, Wisconsin)
Regional Development Director: Deb Boyd
P.O. Box 72
Richland, MI 49083
p. 269-629-5452
f. 269-629-4205
e. dboyd@hdsa.org
Development Director: Peggy Cribbin
3286 Ivanhoe Avenue
St. Louis, MO 63139
p. 314-647-4372
f. 314-645-5754
e. pcribbin@hdsa.org
ReGional Development Coordinator: Chelsea Boers
P.O. Box 1617
Holland, MI 49422
p. 269-370-3997
e. cboers@hdsa.org
South Central Region
(Arkansas, Colorado, Louisiana, Mississippi, New Mexico, Oklahoma, Texas)
Regional Development Director: Leesa McNeese
PO Box 81545
Corpus Christi, TX 78468
p. 361-774-8247
f. 361-334-1244
e: lmcneese@hdsa.org
Regional Development Coordinator: Kendell Aitchison
6545 W. 44th Avenue, Suite 1
Wheat Ridge, CO 80033
p. 303-837-9937
f. 303-837-8983
e. kaitchison@hdsa.org
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Southeast Region
(Alabama, Florida, Georgia, North Carolina, Tenessee, South Carolina )
Southeast Regional Development Manager: Edwina Bullard-Simms
PO Box 691452
Orlando, FL 32869-1452
p. 407-507-3831
c. 305-505-3831
e. esimms@hdsa.org
Upper Midwest Region
(Iowa, Minnesota, Nebraska, North Dakota, South Dakota)
Regional Development Director: Michele Asmussen
7362 University Avenue NE, Suite 303
Fridley, MN 55432
O: 763.502.1407
C: 612.702.9523
F: 763.502.1408
e. masmussen@hdsa.org
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Pacific Southwest Region
(Arizona, California, Nevada, Utah)
Regional Development Director: Natalie Carpenter
27702 Crown Valley Parkway
Suite D-4 #336
Ladera Ranch, CA 92694
p. 949-542-3907
f. 949-542-3976
e. ncarpenter@hdsa.org
Regional Development Coordinator: Madalyn Guevara
2860 Gateway Oaks Drive, #300
Sacramento, CA 95833
p. 916-927-4400
f. 916-830-8015
e. mguevara@hdsa.org
Regional Coordinator: Stephanie Alband
PO Box 19524
San Diego, CA 92159
p. 619-225-2255
f. 619-225-2277
e. salband@hdsa.org
Regional Assistant: Katherine Bergfors
p. 619-461-2477
e. bergfors@cox.net
Pacific Northwest Region
(Idaho, Montana, Oregon, Washington, Wyoming)
Director of Field Development & Operations: Nancy A. Rhodes
Extension: 234
e. nrhodes@hdsa.org