HDSA's Strategic Plan 2012-2016

May 25, 2012

Dear Friend,

It is with great pleasure that we announce the launch of the Huntington’s Disease Society of America’s new Strategic Plan 2012-2016. 

After nearly two years of data review, community surveys, discussions among the many constituencies of the HD community and open forums for feedback, the HDSA Board of Trustees is releasing this new Plan to grow the Society so that we can provide more easily-accessible services to families affected by HD and fund more research that can improve our knowledge base on HD, therefore leading us closer to effective therapeutic interventions.

The Strategic Plan provides a detailed roadmap of HDSA’s work on the following seven goals:


1.     Build an HD Community-service organization.

2.     Support HD research & communicate its impact.

3.     Remove barriers to quality care.

4.     Become the premier communicator of HD information.

5.     Grow volunteer involvement.

6.     Operate in a fiscally responsible manner.

7.     Increase revenue to grow organizational capacity.

It is an active plan with specific milestones throughout by which we will measure our progress.   Specifically, the Plan identifies the areas of importance for the families that HDSA serves, defines goals and target objectives for the Society over the next five years, and presents guidance for the plans of work to be developed and implemented by the HDSA staff and volunteers to reach the identified goals. 

We would like to thank the more than 700 of you who actively helped shape the Strategic Plan by participating in surveys and sending in your feedback on the draft that was distributed in January 2012.  Because of your guidance and contributions, we have a roadmap that ensures that HDSA’s work addresses the broad needs of the community at-large, our public relations efforts focus on disease awareness, and youth engagement and long-term care issues remain high priorities.

We look forward to providing you with annual updates on the implementation of HDSA’s Strategic Plan so that we may all celebrate our accomplishments in providing Help for Today, Hope for Tomorrow.  Together we are leading HDSA into the future and strengthening our ability to improve the lives of everyone affected by Huntington’s disease.   

Thank you for all you do.




Donald L. Barr

Chairman of the Board     

 Louise Vetter

Chief Executive Officer