Huntington's Disease Society of America
- Our Mission
- HDSA Goals - Mission in Action
- Find your local HDSA Chapter, Affiliate or Regional Office
- Staff directory
- Board of Trustees
- Faces of HD
News & Announcements Archive
- Taryn Reneau Creates "Cure" A Song for HD Families
- Bike for the Cure 2012
- Make a Difference During Huntington's Disease Awarness Month
- Alnylam Committed to HD Therapy Program
- HDYO Launch
- Pacin Parson
- Chase Community Giving Program
- Walking the Walk for Research
- Plains to Lake
- Lundbeck Phase I LuAF11167
- HDCRS 2012 SAVE THE DATE
- SSA Announces Addition of Adult Onset Huntington's Disease to Compassionate Allowance List
- NY Marathon Cancelled -- But HDSA Runners Resolve Unbroken
- New Facility with 30+ HD Beds Opens
- SSA Adds Adult-Onset HD to the Compassionate Allowance List
- Tangerine Tango -- Featuring an HD Story
- IRA Charitable Rollover Reinstated
- In Memoriam- Eva Weissman
- HDSA Research Symposium
- HD and HDSA In The News
- Thank You Thursday
Make a Difference During Huntington's Disease Awareness Month, May 2012
May is Huntington's Disease Awareness Month. It's the time when we focus on reaching out beyond the HD community to educate the general public about Huntington's disease and HDSA.
Faces of Huntington's
The best way to explain the devastation of HD is to tell the story of someone who has to confront its challenges on a daily baseis. Therefore, each day during May we will feature a person with HD, a caregiver, a clinician or a scientist who is truly a "Face of HD." We will feature their personal story on the national website (www.hdsa.org/facesofhd). We will also send out the stories by email daily. Please help spread the word by forwarding the emails to your friends and colleagues, or ask them to visit this link.
HDSA May Awareness Events
Please visit the HDSA Events calendar to find a Team Hope Walk, Celebration of Hope, Educational Meeting or other event taking place during the month of May. Participate. Volunteer. Bring your friends. Show your support for members of the HD community in your area.
If you are willing to speak to the media, or to public groups about your experience with Huntington's disease, please contact your local HDSA Regional Director or Chapter/Affiliate Leader (visit Find HDSA In Your Community for contact information) and tell them you would like to speak about HD.
Advocate for the HD Parity Act
May is a great time to visit the offices of your local represntatives who have not yet committed to S648 and HR718. Call and ask if they are willing to support May HD Awareness activities and learn about the HD Parity Act. For more information, please contact Jane Kogan at email@example.com, 212 242 1968 ext. 226.
Build Awareness for HD at your Workplace or School
In Your Genes Promotion Kit
Almost anyone would welcome the opportunity to have a “casual day” at work – whether they have regular “casual Fridays” or not. In Your Genes is a way to capitalize on casual workdays, while creating greater awareness of HD and HDSA and raising funds to support local mission activities. The Kit contains everything you will need to promote In Your Genes to local businesses and schools. Send us a list of the participating companies and photos from their event. If you have any questions about In Your Genes, or need additional materials please email Sarah Pattison at firstname.lastname@example.org, 212-242-1968 ext. 218.
Hearts for Huntington’s Pin-Up Campaign
Hearts for Huntington’s Pin-Ups are a great opportunity for companies, schools, retail outlets and other businesses to help HDSA raise awareness and funds for HD. In association with the Team Hope Walk program, this campaign helps to unite volunteers and donors from across the country.
The pin-up campaign can be used to add value as a wrap-around event to the Team Hope program in your community or could be used to help your Chapter and Affiliate raise money and awareness during HD May Awareness Month. Please contact Sarah Pattison at email@example.com, 212-242-1968 ext. 218.
Help us bring Help for Today Hope for Tomorrow to everyone affected by Huntington's diseae.
Please support HDSA's efforts to improve the quality of life for everyone affected by Huntington's disease by making a donation during May Awareness Month. Please ask your friends and neighbors to do so as well.
To make a donation please click here.
In honor of Huntington’s Disease (HD) Awareness Month, Lundbeck is developing a word cloud to illustrate what gives us hope for HD. Add your one-word answer for what gives you hope in the comments section below. For every submission, Lundbeck will donate $1.00 to the Huntington’s Disease Society of America (HDSA). Upon reaching 1,000 submissions, Lundbeck will double its donation to the HDSA, up to $2,000. Click here.
Due to privacy and compliance requirements, we cannot accept proper names or names of medications. Please use general terms like “doctor,” “caregiver,” or “science” in lieu of specific names. Offensive or derogatory words will also not be accepted.
We will be updating the word cloud throughout the month. Check in regularly to watch the progress and see what gives others hope for HD!