Huntington's Disease Society of America
My son Stephen, we call him Stevie, was born on a very special day .... Thanksgiving in 1975, was such an adorable baby. I remember thinking that he was very alert for a newborn. His eyes were wide open. My Stephen was such a good "baby", he didn't cry much he slept all night, smiled from ear to ear when I spoke to him. As Stevie grew he became a "charmer" , he had a personality that won everybody heart. As a toddler he would play around with family and friends, His smile would just capture your attention. He was build husky, had big legs ...like a soccer player I remember someone saying. He began playing soccer at the age of four, he played baseball too! He loved sports. He was a very normal little boy. As he grew into his teens years so did his love for sports. He played football in High School. He was very athletic. He was a normal teenager, he also liked bowling, fishing and working out at the local gym. He joined the U.S. Marines....he was a proud Marine! And then in 2006 my world turned upside down.Stevie was diagnosed with Huntington's Disease(HD) From November 27, 1975 til May of 2006 I prayed that my son would not inherit the HD gene. I saw his Dad go thought this horrible disease .... I didn't want my only child to be effected!
His father died of HD in 1987 when Stevie was 12 years old. He took his dad's death very hard because he had not seen him in six months. Stevie told me that he wanted to remember his dad the way he was...... healthy!
HD also took the lives of his uncle Ernest and Grandma Rosa.
Today my Stevie continues to struggle with everything ! Eating! Walking! Talking!. Everything is such a challenge! It was not to long ago he was able to still enjoy playing his PlayStation, he now is not able to do that. It saddens me a lot to see my Stevie this way :(
It brings a smile to my face when I see Stevie get excited about seeing the Texas Rangers
Play Ball on TV, Stevie dresses up for the game....... wears his Ranger jersey and Ranger ball cap! He dresses up too for the Mavericks & Cowboys games! Its so cute!
The past three years I have walked to raise HD awareness! There are a lot of people that don't know what HD is. NEVER heard of the disease. We need to continue to raise HD awareness and help find a cure. It's to late for my Stevie but there are a lot of young children out there are carrying the gene. I think about them! I pray for a cure!
Stevie's Mom Fidelia