Huntington's Disease Society of America
My husband has Huntington’s Disease (HD). I met Adam, then 16, in 1989. I was fifteen—he was my first love. After going our separate ways for college, we reunited in 1994. When we became engaged in 1997, I knew Adam was at risk for HD. We married in July of 1998.
In 2009, after 11 years of marriage, I noticed that Adam was in the early stages of HD. He began regular neurology appointments. As time progressed, I felt the power that HD had to put me in a fearful and paralyzed place—isolated and sad.
In 2011, I made the decision to speak out about HD. I decided to address my network of friends and family to advocate for HD. After all of the years feeling isolated and that I should keep Adam’s HD, “hush hush,” this took me out of my comfort zone. For me, advocacy put a positive spin on HD in our lives. Advocacy is a way for me to make a difference for the better.
I am proud of my husband, Adam’s, strength as he battles HD. I am proud of my daughter, Kelly’s, compassion, as she struggles to understand her dad’s HD. I am proud of my attempts to make a difference through advocacy for Huntington’s Disease Awareness. Here’s believing in a cure…
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